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Preventing HPV-Related Cancers: Cervivor’s Urgent Call for Action This Women’s Health Month

At Cervivor, Inc., every month is Women’s Health Month. But this May, we’re taking the opportunity to spotlight a critical public health issue that disproportionately impacts women: HPV-related cancers. 

HPV, or human papillomavirus, is an extremely common virus. According to the Centers for Disease Control and Prevention (CDC), approximately 85% of people will be exposed to the virus at some point in their lives. While many HPV strains are essentially harmless, high-risk strains are responsible for more than 37,000 new cancer cases each year in the U.S., including about 21,800 cases in women and 16,000 in men. 

These cancers include vaginal, vulvar, anal, oropharyngeal, penile, and cervical cancer—what Cervivor is dedicated to eliminating. Cervical cancer remains the most common HPV-related cancer in women, with more than 11,000 new cases diagnosed annually.

The good news? Nearly all HPV-related cancers are preventable with tools like vaccination, regular checkups, and early treatment. Just last month, National Cancer Institute researchers reported “phenomenal” new data that a single dose of the HPV vaccine is just as effective as the two doses currently recommended for people aged 9 to 25!

This recent CDC infographic illustrates how effective the HPV vaccine can be in preventing over 90% of related cancers including cervical cancer.

“Knowledge is power—but it’s only the start,” says Tamika Felder, Cervivor’s Founder and Chief Visionary. “Preventable cancers like cervical cancer are on the rise because of complacency, stigma, and misinformation. Up-to-date cervical screenings have dropped over the past two decades, and HPV vaccine uptake was ‘flat’ from 2021 to 2023,” she says, citing an alarming recent report from the American Cancer Society. “The time to prevent suffering—and save lives from cervical and other HPV-related cancers—is now.”

The National HPV Conference: A Gathering of the Minds

Fortunately, Tamika and Cervivor aren’t the only ones prioritizing women’s health and tackling the ongoing challenges of HPV-related diseases. Over 400 attendees gathered with the same mission at the recent National HPV Conference in Indianapolis from April 15 to 17, 2025. Bringing together leading experts, healthcare professionals, researchers, policymakers, and survivors, the conference aimed to facilitate networking, collaboration, and resource sharing like “never done before” in the U.S. 

The National HPV Conference unites leaders toward their shared mission.

Representing Cervivor, Tamika took part in a panel discussion moderated by Dr. Rachel Katzenellenbogen and included other HPV cancer and disease survivors, including recurrent respiratory papillomatosis survivor, Kim McClellan, anal cancer survivor Lillian Kreppel and tonsil cancer survivor Jason Mendelsohn, that underscored the human impact of HPV-related cancers. Later, she and Community Engagement Liaison, Morgan Newman, MSW—a metastatic and recurrent cervical cancer survivor—co-presented with leading global expert and author Dr. Linda Eckert in a session titled “Beyond the Data,” highlighting the power of personal narratives in advocacy.

Cervivor’s founder, Tamika, shared her experience and expertise alongside other HPV cancer survivors, emphasizing the importance of the patient voice.

A few other program highlights from the National HPV Conference: 

  • Keynote Addresses: Dr. Susan Vadaparampil, Associate Center Director of Community Outreach, Engagement, and Equity at Moffitt Cancer Center, delivered a keynote about the importance of advocacy and gave a special shoutout to the Cervivor community. Dr. Michelle Fiscus, Chief Medical Officer for the Association of Immunization Managers and Co-Chair of the National HPV Vaccination Roundtable, also gave a dynamic presentation on the current state of vaccination.
  • Policy and Advocacy Discussions: Dr. Heather Brandt, Director of the St. Jude HPV Cancer Prevention Program, alongside Martha Nolan, Senior Policy Advisor at HealthyWomen, highlighted the critical role of legislative action and community engagement in HPV prevention efforts.
  • Storytelling Session: Sally Perkins, a professional storyteller and cancer survivor, demonstrated the transformative power of storytelling in advocacy.

What’s Next: Challenges and Opportunities

“HPV-related cancers are still a greater threat in the developing world, but it’s alarming that preventable cancers are increasing here in the U.S.—especially as funding from the National Institutes of Health (NIH) and other public and private sources shrinks,” shares Morgan. 

Cervivor Morgan Newman at National HPV Conference
Cervivor’s Community Engagement Liaison Morgan explained how personal narratives can change minds.

Fresh from the National HPV Conference, Morgan outlines several pressing challenges facing the HPV prevention movement:

Vaccine Hesitancy: Despite strong scientific evidence that the HPV vaccine is both safe and effective—and promising news that a single dose may be enough in the future—misinformation and mistrust persist. Disinformation campaigns and cultural stigmas around vaccines continue to suppress vaccination rates, particularly in vulnerable communities. 

Policy and Funding: Sustained progress in HPV prevention relies heavily on legislative support and adequate funding. Cuts to public health budgets and shifting policy priorities threaten access to the HPV vaccine, routine screenings, and treatment services—especially in underserved areas. 

Healthcare Access: Longstanding disparities in healthcare access, insurance coverage, and provider availability mean that too many people—especially in rural, low-income, and marginalized communities—still face barriers to prevention and early detection. Expanding equitable access to care remains a critical need. 

Cervivor’s Response: Advocacy in Action

These challenges fuel our ongoing commitment to protect every person with a cervix from HPV-related cancers. Here’s how Cervivor is responding:

Cervivor School 2024 Graduates and Team Cervivor
Cervivor’s commitment to HPV prevention advocacy includes organizing the annual Cervivor School, where patients and survivors are equipped with the knowledge and tools to advocate for better women’s health care. Shown here is the graduating class of the 2024 school.
  • Enhanced Education Campaigns: Cervivor is tackling vaccine hesitancy through culturally relevant messaging and resources via initiatives such as the Cervical Cancer Summit and Cervivor School, which aims to equip participants with the knowledge and confidence to advocate for HPV prevention within their communities.
  • Empowering Survivors: Through our growing collection of Cervivor Stories, we amplify the lived experiences of patients and survivors to raise awareness, break stigma, and drive meaningful change.
  • Advocacy and Policy Engagement: Members of Cervivor’s team and community proudly contribute to national coalitions including the National HPV Roundtable, National Roundtable on Cervical Cancer, HealthyWomen HPV Coalition, HPV Cancers Alliance, and the St. Jude HPV Cancer Prevention Program, helping shape policies that support prevention, access, and care.
  • Addressing Disparities: Through grassroots, community-led conversations like DEI MeetUps, Black Cervix Chat, Cervivor Español, and international groups like Cervivor Africa and Cervivor Caribbean, we’re ensuring underrepresented voices are heard. (Visit our Events to see if there is a meetup or group that you’d like to join.) We also serve on advisory boards and research committees, championing patient advocacy in clinical trials, screening, and vaccination efforts. 

This Women’s Health Month, we urge our Cervivor community and its allies to recommit to action. Preventable HPV-related cancers shouldn’t still be claiming lives. While cancer doesn’t discriminate, the systems surrounding it often do. It’s time to break down the barriers that stand in the way of prevention, early detection, and treatment.

If you believe in Cervivor’s mission to end cervical cancer and ensure that no one has to face it alone, please consider making a tax-deductible contribution today. Your support helps us continue our lifesaving work.

Educate to Eliminate: Amplifying the Global Call to End Cervical Cancer 

Cervical Cancer Elimination Day of Action is this Sunday, November 17. It marks the global goal set by the World Health Organization (WHO) to eliminate cervical cancer by 2030. Since the WHO announced its strategy in 2020, nearly 200 countries have committed to the mission, and numerous global and national groups have joined the call.

But we won’t reach this goal if we don’t roll up our collective sleeves and do the work. Cervical Cancer Elimination Day of Action is an important reminder that the fight is still on. It is especially meaningful to many in our Cervivor community, including Cervivor Ambassador and Cervivor Español Co-Lead Karla Chavez.

Karla Chavez

“As a cervical cancer survivor, this day hits close to home. It’s not just about setting targets – it’s about making sure the tools to prevent and treat cervical cancer reach women everywhere,” says Karla, who will give remarks at a WHO-hosted virtual webinar on Monday, November 18, about frontline workers and the cause. “I know firsthand how life-changing these resources are, and it means so much to see us actively working to make sure no one else has to endure this disease.”

So, what are the targets?

Global Guidelines to End Cervical Cancer

The WHO’s “90-70-90” strategy to eliminate cervical cancer by 2030 includes these key global targets:

  • HPV Vaccination Rate: 90% of girls get the HPV vaccine by age 15. Doing so protects them against high-risk HPV strains that can cause cancers in the cervix, vagina, vulva, head, neck, mouth, and anus (the last four in men as well).
  • Improved Screening: Make sure 70% of women get screened for cervical cancer by age 35 and again by age 45. Pap tests find abnormal cells that can become cancerous, while HPV tests check for the virus – aiming to catch risks early.
  • Better Access to Treatment: 90% of women with early signs of cervical cancer receive treatment, and 90% of women with invasive cancer get the care they need to manage and treat the disease effectively.

Is it possible to eliminate cervical cancer completely? The WHO estimates that cervical cancer will become a rare disease – rather than a common health threat – when fewer than 4 cases per 100,000 women are diagnosed each year.

How Are We Doing? 

Globally, approximately 350,000 women continue to die each year from cervical cancer. When the WHO set its guidelines in 2020, the number was around 311,000, which shows the significant challenges in meeting the targets, particularly in economically disadvantaged countries. It also highlights the ongoing need for global action to end cervical cancer.

The outlook in the U.S. is encouraging. This year, approximately 4,360 women are expected to die from cervical cancer, a significant decrease from the 1970s and ’80s when annual deaths reached up to 10,000. The U.S. is getting closer to meeting the WHO’s targets, thanks to rising HPV vaccination rates, although it still falls short of the 90% goal. According to the CDC, in 2023, 76.8% of adolescents had received at least one dose of the HPV vaccine, and 61.4% were fully vaccinated. While access to screening and treatment is strong in many regions around the country, disparities persist.

Educate to Eliminate Cervical Cancer

How can the Cervivor community support the global mission to end cervical cancer? One powerful way is by sharing life-saving information to “Educate to Eliminate,” starting with these 4 Crucial Facts about HPV and Cervical Cancer.

Just as important, continue sharing your Cervivor Stories – because you never know who needs to hear them. Stories like U.K. Cervivor Samina Cepal, whose cervical cancer was detected during a routine Pap test, or Washington-based Pamela Akers, who had regular Pap tests but still had “below the belt” issues. The lessons learned? Regular screenings are key to preventing cervical cancer, but it’s also essential to listen to your body beyond routine exams so you can seek care early, as the WHO advocates.

Samina Cepal
Pamela Akers

This also requires frontline healthcare workers to have the resources needed for accurate screenings and proper treatment. Cervivor Ambassador Karla, a patient advocate on the WHO’s Living Guidelines team for Cervical Cancer Screening, emphasizes these medical professionals’ important role in ending cervical cancer. “I deeply appreciate the struggles frontline workers face. They’re dedicated but need our support – whether for tools, training, or recognition – to make a real difference in women’s lives.”

Or, you could decide to be a frontline worker yourself like Anh Le! Diagnosed as a medical student in 2018 with a rare, aggressive form of cervical cancer, Anh underwent lifesaving surgery at Memorial Sloan Kettering, which motivated her to become an OB/GYN oncologist to help cancer patients. She’s now cancer-free and doing her OB/GYN residency.

Donate to Eliminate, Too!

On this Cervical Cancer Elimination Day of Action, let’s honor those who continue to fight the good fight – like Samina, Pamela, Karla, and Anh Le – and those who lost the battle, like my friend Heather. While it’s heartbreaking to think that today’s prevention tools could have saved her life, the fact that we have them now is the best reason to make this day count.

At Cervivor, we’re asking our community to commemorate the day by donating $17 on November 17 to support our critical work in regions most affected by cervical cancer. Donations will help fund Cervivor School Kenya (2025) and a Cervivor Cares community awareness event in Honduras, where Karla lives, among other initiatives.

We’re also amplifying the WHO’s goal with our November 2024 podcast featuring Dr. Trisha L. Amboree, a public health expert at MUSC Hollings Cancer Center, who discusses the importance of the Elimination Day of Action. The episode airs on Sunday, November 17.

Check out our many other resources on Cervivor.org and learn how you can get involved or share your cervical cancer experience on Elimination Day and every day. 

SARA LYLE-INGERSOLL is a seasoned content and communications expert dedicated to transforming lived experiences into impactful stories. Her award-winning magazine feature about a close friend who passed from cervical cancer in their twenties led her to connect with Cervivor’s founder, Tamika Felder, and solidified her commitment to cervical cancer awareness and prevention. Now, as Cervivor’s Communications Director, Sara brings this mission full circle. Her previous roles include Editor-in-Chief of The Finder in Singapore, Deputy Editor at Woman’s Day, Lifestyle Director at Good Housekeeping, and Senior Editor at Jane Magazine. Based in Denver, she is a boy mom of a blended family and enjoys good food, travel, and all the sunsets.