Cervivor Founder: A Voice for Cervical Cancer Survivors and Health Equity This Black Philanthropy Month

When Tamika Felder founded Cervivor, Inc., in 2005, she wasn’t trying to build a national nonprofit with global reach. She was simply navigating her own cervical cancer diagnosis and determined that no woman should feel as alone as she once did.

Today, as Founder and Chief Visionary of Cervivor, Tamika leads an international movement to eliminate cervical cancer and confront health disparities—especially those affecting women of color.

During Black Philanthropy Month—and on Give 8/28, a national day dedicated to uplifting Black-led and Black-benefiting nonprofits—Tamika’s story is a powerful reminder of how Black leaders are driving change in health equity and advocacy. For her, the day is rooted in pride and visibility. “I’ve always been a part of community service,” she says, reflecting on the example set by her parents. “There are so many Black organizations doing incredible work, but they don’t always get the recognition they deserve. Give 8/28 is a day to say we’re proud to lead these organizations.”

Here, Tamika shares her wisdom and advice for others—whether you’re launching a nonprofit or fighting for access to quality healthcare for all.

Finding Her ‘Why’ and Reclaiming Her Voice

One of Tamika’s guiding messages as a leader and survivor is the importance of finding your “why”—the driving force behind your advocacy work and passion. For her, that “why” was born during cancer treatment and its aftermath, as she grieved the sudden end of her career as an up-and-coming broadcast journalist in Washington, D.C., and the loss of her fertility. “Little by little, the trauma had less of a hold on my life, and I began to embrace the possibilities that life beyond cancer could hold,” she says.

A pivotal moment came when she was asked to testify in support of a Maryland law to safeguard parenthood for young adult cancer patients. “Through tears and shaky hands, I shared my story with legislators, and it made a difference,” she recalls. The Protect Parenthood law was ultimately passed in 2018. Since then, Tamika has continued to use her powerful voice—speaking on Presidential Panels and global stages, serving on national roundtables, and appearing in award-winning documentaries and major publications.

“Black Philanthropy Month is about increasing visibility for Black-led nonprofits,” she says. “Some people might look at Cervivor and think, ‘Well, it already has great visibility.’ But until cervical cancer is eliminated, it will always need more.”

Centering Health Equity

Tamika has always been clear: While the mission of Cervivor is universal—cervical cancer prevention and elimination—the path forward must address inequities that disproportionately affect Black and brown women. And she doesn’t mince words about why health equity is central to her work. “We know that there are disparity gaps in this space, and that people of color, especially Black and brown women, are falling through those gaps at a higher incidence,” she explains.

Cervical cancer is one of the most preventable cancers. With the HPV vaccine, Pap tests, HPV testing, and now self-collection options, the prevention tools exist to save lives. Yet Black women continue to face higher rates of diagnosis and death. Tamika believes part of the solution lies in representation: survivors telling their own stories and trusted messengers bringing information to their communities.

The image is a graphic featuring a quote and a photograph. The quote, displayed on the left side of the image, reads: "MY LEGACY WOULDN'T BE THE LIVES I BROUGHT INTO THE WORLD. IT WAS GOING TO BE THE LIVES THAT I SAVED." The text is presented in a large, bold font, with the words "MY LEGACY," "WAS GOING TO BE THE," and "LIVES THAT I SAVED" in teal, and "WOULDN'T BE THE," "LIVES I BROUGHT," and "IT" in red and orange.
To the right of the quote is a photograph of a group of eight women, all wearing white or light-colored shirts with the word "cervivor" printed on them. They are seated on two white couches, arranged in a conversational manner. The background of the photograph features a wood-paneled wall adorned with a large piece of artwork.
At the bottom-right corner of the image, three logos are visible. The first logo, situated closest to the photograph, reads "cervivor" in teal text, accompanied by the tagline "informed. empowered. alive." in smaller text below. The second logo, positioned to the right of the first, displays the name "Tamika Felder" in orange text. The overall design of the image suggests that it may be related to a campaign or organization focused on cervical cancer awareness or support.
Cervivor Noir community members at last year’s Cervical Cancer Patient Advocacy Retreat For Communities of Color in Cleveland, OH.

“When I first started sharing my story, I didn’t see anyone who looked like me,” she says. “Every time I see a Black woman sharing their story and sharing the correct scientific information behind cervical cancer, it makes me feel really, really proud.”

The Power of Patient Stories

Tamika has built Cervivor around the conviction that data alone is not enough. “We gave the data, but we didn’t tell the story,” a researcher once told her. That insight reshaped her advocacy.

“You hear all the time that patient stories are important, but I uniquely got it,” Tamika reflects. “My story makes a difference. The hard parts of my story that I may not want to talk about can make a difference. ”From Cleveland to Rwanda, Cervivor has seen an impact by uplifting patient voices. At a Cleveland Clinic event, Cervivor ensured that “no one was left out of the screening” by providing culturally specific support through Cervivor Español and Cervivor Noir.

These stories matter because they reveal the lived reality of surviving cervical cancer—the hysterectomies, infertility, ostomies, and lifelong side effects often invisible to the public. “If we just let the general population tell it, well, you survived it, you’re doing fine. But I don’t look like what I’ve been through,” Tamika says.

Building Trust and Representation

Trust is everything in underserved communities, and Tamika insists on meeting people where they are. “I go to those communities. If I don’t go myself, someone from my organization goes. We talk to them. We build trust,” she says.

Representation plays a central role in Cervivor’s impact. Tamika works to ensure that photos, videos, and programs reflect diverse survivors. “I never want anyone not to see themselves,” she explains. “There’s something special to be said by connecting with people who’ve gone through what you’ve gone through.”

Resilience and Self-Care in Leadership

Running a nonprofit rooted in lived trauma is deeply personal work, and Tamika is candid about the toll. “There are points where it’s going to be really hard, but when you’re really committed to this work, you’ll find a way to keep going,” she says.

The image is a collage of 84 headshots of women, arranged in six rows, with a light blue background that gradually darkens towards the top. The headshots are presented in white-bordered boxes, each containing a photo of a woman and her name, along with her birth and death years. The women depicted are diverse in terms of age, ethnicity, and attire. At the bottom of the image, the text "WITH CERVIVOR, THEY LIVE ON #ENDCERVICALCANCER" is displayed in white, accompanied by the Cervivor logo in the bottom-right corner. The overall tone of the image is somber, as it appears to be a tribute to women who have passed away from cervical cancer.

Tamika with Lisa Simms Booth, Executive Director of the Smith Center for Healing and the Arts

As a survivor herself, every death in the community is another wound. “It’s another person who’s died from a preventable disease, and so I have to really practice self-care around that,” she shares. Surrounding herself with other Black women nonprofit leaders helps her carry the weight. “It’s a very hard time, not only for nonprofits, but nonprofits run by Black women. Knowing that you’re not alone helps it be manageable.”

Standing Firm on Equity

Even as some organizations shy away from terms like “DEI” or “health equity” in response to political pressures, Tamika refuses to dilute Cervivor’s mission. “Just because we change and don’t call a thing a thing doesn’t mean that we don’t experience it,” she says. “We’ve already had a funder not fund us because of our Communities of Color retreat. And I’m not going to change the name of it. No one is going to die from cervical cancer on my watch.”

Her vision is clear: to leave behind a legacy of courage, visibility, and unrelenting advocacy.

A Legacy of Hope and Action

What began as one woman’s way to not feel alone has become a global movement of survivors, advocates, and educators. Tamika is proud of how Cervivor has connected patients, clinicians, community workers, and researchers. “We’ve inspired patients, educated clinicians, and shifted the narrative around cervical cancer,” she says.

On Black Philanthropy Day, her journey reminds us that philanthropy is not just about giving money—it’s about giving voice, visibility, and leadership. Tamika embodies all three, leading with resilience and purpose to ensure that no one falls through the gaps in the fight against cervical cancer.

Support the Mission

This Black Philanthropy Month, we invite you to support Tamika’s vision and Cervivor’s mission to end cervical cancer through advocacy, education, and community. Here’s how you can take action:  

  • Give $20 on 8/28: As part of Cervivor’s year-long Tell 20, Give 20 campaign, your $20 donation will directly support a Black-led nonprofit committed to health equity for all. 
  • Engage with Cervivor: Follow us on social media, share our posts, and help amplify the voices of cervical cancer survivors and advocates. Your engagement builds awareness, strengthens our community, and inspires action.
  • Attend Cervivor Events: From Cervivor School and monthly virtual meetups to the next Cervical Cancer Summit—your presence makes a difference. Show up, speak out, and stand with us.

Thriving, Not Just Surviving: Inspiring Stories from Cervical Cancer Survivors

For many cervical cancer survivors, healing goes beyond remission, often leading to advocacy that raises awareness and offers strength. Here, Cervivor community members and cervical cancer advocates Christy Basa Chambers, Athena Porter, and Lorie Wallace share personal reflections on how their journey with cervical cancer has helped them thrive — not just survive.

If you’re in need of a pick-me-up, read on!

Christy’s Story: Living Her ‘Dash’

About Christy: An 18-month Stage IV cervical cancer survivor, Christy Basa Chambers lives in Monroe, NC, with her family. She’s a Cervivor Ambassador, 2023 Cervivor School graduate, and winner of the 2024 Brittany Wagner Social Media Advocacy Award.

This image shows cervical cancer survivor, Christy, who is from North Carolina. She has teal hair and glasses with a ruffled white shirt.
Christy Basa Chambers (photo by Molly Dockery Photography)

“I was given a second chance at living.”

When I first wrote that phrase in a blog post, I paused. Was it “a second chance at life,” or did I really mean living? Are they different? I think they are. Life is the span of time we are given, but living is what we do with that time.

The distinction became clear after my diagnosis of Stage IV metastatic cervical cancer. Facing my mortality forced me to ask hard questions: How would I be remembered? What legacy would I leave? These questions didn’t just make me reflect on my past; they became a wake-up call to reevaluate my present. Survival wasn’t enough for me — I wanted to thrive.

But thriving didn’t happen overnight. It was a choice I made every day, even when it felt impossible. I had to face my fears and let go of what didn’t serve me.

Now, I’m living my “dash.” What’s a dash? It’s that little line between the dates of our birth and death. It’s small, yet so powerful, because it represents everything we do while we’re here. Cancer taught me to live my dash with intention — to focus on love, kindness, generosity, and joy.

Advocacy has been one of the most transformative ways I’ve chosen to live my dash. As a Cervivor Ambassador, I’ve found healing through helping others. Sharing my story and empowering others to share theirs has given me a sense of purpose and a way to leave an impact.

Who am I? A Cervivor, a thriver, and an opti-mystic who sees the world through the eyes of possibility. That’s the legacy I want to leave.

Athena’s Story: Overcoming Survivor’s Guilt

About Athena: Athena Porter was diagnosed with cervical cancer in 2023. She lives in Iowa with her husband and two little girls. Since her diagnosis, Athena has served on a panel at the 2024 Cervical Cancer Summit and continues to advocate for cervical cancer awareness and prevention.

Athena Porter

To call myself a “cervical cancer survivor” used to feel like a fraud. My cancer was caught early, and my treatment was a radical hysterectomy. Diagnosed after having two children, I was spared the devastation of infertility and the physical toll of chemo, radiation, or brachytherapy. I got to keep my hair.

In contrast, many of the women in the Cervivor community I’ve been blessed to meet since my diagnosis have endured grueling treatments. They’ve shaved their heads, relocated for care, lost their fertility, and dealt with the lingering effects of treatment-induced trauma. Despite facing anxiety, depression, pain, and significant physical challenges, they continue to persevere and advocate for those without a voice. I am honored to know these women. Their strength, passion, and unwavering light inspire me.

Still, survivor’s guilt is real. My experience feels minimal in comparison because I “only” needed surgery to remove my cancer. Thankfully, the incredible women I admire have reminded me that it wasn’t “just” surgery or “just” stage 1A cancer. They’ve encouraged and supported me, helping me embrace my journey as valid. Their support has been instrumental in helping me thrive, not just survive.

I’ve been given a platform to advocate not only for those impacted by cervical cancer but also for its prevention. My hysterectomy was radical and represented the best-case treatment scenario for me, but the true best-case scenario is no cancer at all. Supporting the HPV vaccine, promoting early screenings, and advocating for proper treatment is the least I can do for all the women battling cervical cancer.

Lorie’s Story: Never Giving Up

About Lorie: Lorie Wallace, a Detroit resident, was diagnosed with invasive cervical adenocarcinoma in 2017. She underwent surgery, radiation, and chemotherapy, and later developed radiation-induced lumbosacral plexopathy (RILP), a debilitating condition with no cure. Today, as a Cervivor Ambassador and 2022 Cervivor Champion, she inspires others with her resilience.

This image shows Lorie, a cervical cancer survivor from Michigan wearing a black "Making Cancer Pay" t-shirt. She has blonde hair, blue eyes, and brownish pink lipstick.
Lorie Wallace during Cervivor School 2022

Sometimes, I wait until I’m alone to scream at the injustice of it all. But I refuse to let cervical cancer or my radiation-induced lumbosacral plexopathy (RILP) define me.  

I’ve learned that while I can’t control everything, everything cannot control me. I’ve found ways to adapt and thrive, not just survive. I’ve focused on strengthening the muscles not affected by plexopathy, embraced the support of my cane, and let go of the stigma I once felt about using a disabled parking pass. Learning to give myself grace and to see these tools not as symbols of weakness but of perseverance has been a profound part of my journey.

Through advocacy, I’ve reclaimed my purpose. As a Cervivor Ambassador, a cancer support coach, and a mentor with organizations like Imerman Angels, I use my voice to help others navigate life after cancer. This work has been as healing for me as it has been impactful for others. I’ve discovered that purpose can emerge even from the darkest times.

For me, advocacy is more than action — it’s a declaration: I am still here, I am still fighting, and I will never give up.

Interested in Patient Advocacy?

Christy, Athena, and Lorie’s stories show that surviving cancer is only the beginning. By turning their experiences into cervical cancer patient advocacy, they’ve found healing, hope, and a way to thrive. You can make a difference too! 

Here’s how you can get involved with Cervivor advocacy:

  • Attend Cervivor School: Gain training to become a leader in cervical cancer advocacy. Sign up to receive the latest updates!
  • Support Through Donations: Help fund programs that empower survivors.
  • Raise Awareness: Promote cervical cancer prevention and survivorship.

Together, we can thrive, not just survive — and make a difference!