Cervivor Founder: A Voice for Cervical Cancer Survivors and Health Equity This Black Philanthropy Month

When Tamika Felder founded Cervivor, Inc., in 2005, she wasn’t trying to build a national nonprofit with global reach. She was simply navigating her own cervical cancer diagnosis and determined that no woman should feel as alone as she once did.

Today, as Founder and Chief Visionary of Cervivor, Tamika leads an international movement to eliminate cervical cancer and confront health disparities—especially those affecting women of color.

During Black Philanthropy Month—and on Give 8/28, a national day dedicated to uplifting Black-led and Black-benefiting nonprofits—Tamika’s story is a powerful reminder of how Black leaders are driving change in health equity and advocacy. For her, the day is rooted in pride and visibility. “I’ve always been a part of community service,” she says, reflecting on the example set by her parents. “There are so many Black organizations doing incredible work, but they don’t always get the recognition they deserve. Give 8/28 is a day to say we’re proud to lead these organizations.”

Here, Tamika shares her wisdom and advice for others—whether you’re launching a nonprofit or fighting for access to quality healthcare for all.

Finding Her ‘Why’ and Reclaiming Her Voice

One of Tamika’s guiding messages as a leader and survivor is the importance of finding your “why”—the driving force behind your advocacy work and passion. For her, that “why” was born during cancer treatment and its aftermath, as she grieved the sudden end of her career as an up-and-coming broadcast journalist in Washington, D.C., and the loss of her fertility. “Little by little, the trauma had less of a hold on my life, and I began to embrace the possibilities that life beyond cancer could hold,” she says.

A pivotal moment came when she was asked to testify in support of a Maryland law to safeguard parenthood for young adult cancer patients. “Through tears and shaky hands, I shared my story with legislators, and it made a difference,” she recalls. The Protect Parenthood law was ultimately passed in 2018. Since then, Tamika has continued to use her powerful voice—speaking on Presidential Panels and global stages, serving on national roundtables, and appearing in award-winning documentaries and major publications.

“Black Philanthropy Month is about increasing visibility for Black-led nonprofits,” she says. “Some people might look at Cervivor and think, ‘Well, it already has great visibility.’ But until cervical cancer is eliminated, it will always need more.”

Centering Health Equity

Tamika has always been clear: While the mission of Cervivor is universal—cervical cancer prevention and elimination—the path forward must address inequities that disproportionately affect Black and brown women. And she doesn’t mince words about why health equity is central to her work. “We know that there are disparity gaps in this space, and that people of color, especially Black and brown women, are falling through those gaps at a higher incidence,” she explains.

Cervical cancer is one of the most preventable cancers. With the HPV vaccine, Pap tests, HPV testing, and now self-collection options, the prevention tools exist to save lives. Yet Black women continue to face higher rates of diagnosis and death. Tamika believes part of the solution lies in representation: survivors telling their own stories and trusted messengers bringing information to their communities.

The image is a graphic featuring a quote and a photograph. The quote, displayed on the left side of the image, reads: "MY LEGACY WOULDN'T BE THE LIVES I BROUGHT INTO THE WORLD. IT WAS GOING TO BE THE LIVES THAT I SAVED." The text is presented in a large, bold font, with the words "MY LEGACY," "WAS GOING TO BE THE," and "LIVES THAT I SAVED" in teal, and "WOULDN'T BE THE," "LIVES I BROUGHT," and "IT" in red and orange.
To the right of the quote is a photograph of a group of eight women, all wearing white or light-colored shirts with the word "cervivor" printed on them. They are seated on two white couches, arranged in a conversational manner. The background of the photograph features a wood-paneled wall adorned with a large piece of artwork.
At the bottom-right corner of the image, three logos are visible. The first logo, situated closest to the photograph, reads "cervivor" in teal text, accompanied by the tagline "informed. empowered. alive." in smaller text below. The second logo, positioned to the right of the first, displays the name "Tamika Felder" in orange text. The overall design of the image suggests that it may be related to a campaign or organization focused on cervical cancer awareness or support.
Cervivor Noir community members at last year’s Cervical Cancer Patient Advocacy Retreat For Communities of Color in Cleveland, OH.

“When I first started sharing my story, I didn’t see anyone who looked like me,” she says. “Every time I see a Black woman sharing their story and sharing the correct scientific information behind cervical cancer, it makes me feel really, really proud.”

The Power of Patient Stories

Tamika has built Cervivor around the conviction that data alone is not enough. “We gave the data, but we didn’t tell the story,” a researcher once told her. That insight reshaped her advocacy.

“You hear all the time that patient stories are important, but I uniquely got it,” Tamika reflects. “My story makes a difference. The hard parts of my story that I may not want to talk about can make a difference. ”From Cleveland to Rwanda, Cervivor has seen an impact by uplifting patient voices. At a Cleveland Clinic event, Cervivor ensured that “no one was left out of the screening” by providing culturally specific support through Cervivor Español and Cervivor Noir.

These stories matter because they reveal the lived reality of surviving cervical cancer—the hysterectomies, infertility, ostomies, and lifelong side effects often invisible to the public. “If we just let the general population tell it, well, you survived it, you’re doing fine. But I don’t look like what I’ve been through,” Tamika says.

Building Trust and Representation

Trust is everything in underserved communities, and Tamika insists on meeting people where they are. “I go to those communities. If I don’t go myself, someone from my organization goes. We talk to them. We build trust,” she says.

Representation plays a central role in Cervivor’s impact. Tamika works to ensure that photos, videos, and programs reflect diverse survivors. “I never want anyone not to see themselves,” she explains. “There’s something special to be said by connecting with people who’ve gone through what you’ve gone through.”

Resilience and Self-Care in Leadership

Running a nonprofit rooted in lived trauma is deeply personal work, and Tamika is candid about the toll. “There are points where it’s going to be really hard, but when you’re really committed to this work, you’ll find a way to keep going,” she says.

The image is a collage of 84 headshots of women, arranged in six rows, with a light blue background that gradually darkens towards the top. The headshots are presented in white-bordered boxes, each containing a photo of a woman and her name, along with her birth and death years. The women depicted are diverse in terms of age, ethnicity, and attire. At the bottom of the image, the text "WITH CERVIVOR, THEY LIVE ON #ENDCERVICALCANCER" is displayed in white, accompanied by the Cervivor logo in the bottom-right corner. The overall tone of the image is somber, as it appears to be a tribute to women who have passed away from cervical cancer.

Tamika with Lisa Simms Booth, Executive Director of the Smith Center for Healing and the Arts

As a survivor herself, every death in the community is another wound. “It’s another person who’s died from a preventable disease, and so I have to really practice self-care around that,” she shares. Surrounding herself with other Black women nonprofit leaders helps her carry the weight. “It’s a very hard time, not only for nonprofits, but nonprofits run by Black women. Knowing that you’re not alone helps it be manageable.”

Standing Firm on Equity

Even as some organizations shy away from terms like “DEI” or “health equity” in response to political pressures, Tamika refuses to dilute Cervivor’s mission. “Just because we change and don’t call a thing a thing doesn’t mean that we don’t experience it,” she says. “We’ve already had a funder not fund us because of our Communities of Color retreat. And I’m not going to change the name of it. No one is going to die from cervical cancer on my watch.”

Her vision is clear: to leave behind a legacy of courage, visibility, and unrelenting advocacy.

A Legacy of Hope and Action

What began as one woman’s way to not feel alone has become a global movement of survivors, advocates, and educators. Tamika is proud of how Cervivor has connected patients, clinicians, community workers, and researchers. “We’ve inspired patients, educated clinicians, and shifted the narrative around cervical cancer,” she says.

On Black Philanthropy Day, her journey reminds us that philanthropy is not just about giving money—it’s about giving voice, visibility, and leadership. Tamika embodies all three, leading with resilience and purpose to ensure that no one falls through the gaps in the fight against cervical cancer.

Support the Mission

This Black Philanthropy Month, we invite you to support Tamika’s vision and Cervivor’s mission to end cervical cancer through advocacy, education, and community. Here’s how you can take action:  

  • Give $20 on 8/28: As part of Cervivor’s year-long Tell 20, Give 20 campaign, your $20 donation will directly support a Black-led nonprofit committed to health equity for all. 
  • Engage with Cervivor: Follow us on social media, share our posts, and help amplify the voices of cervical cancer survivors and advocates. Your engagement builds awareness, strengthens our community, and inspires action.
  • Attend Cervivor Events: From Cervivor School and monthly virtual meetups to the next Cervical Cancer Summit—your presence makes a difference. Show up, speak out, and stand with us.

The Ladies in the White Shirts

Cervivor is committed to making a difference by working to close disparity gaps that continue to plague Communities of Color. This commitment led Cervivor’s Founder and Chief Visionary, Tamika Felder, and Cervivor’s Chief Diversity Equity and Inclusion Officer, Kimberly Williams to unite community members this past weekend from around the world—Honduras, St. Lucia, and U.S. states like Texas, Maryland, California, Alabama, New York, North Carolina, Iowa, and more—to Cleveland, Ohio, for the Cervical Cancer Patient Advocacy Retreat for Communities of Color. This retreat wasn’t just a local event; it was a global movement. We had community members participating via Zoom from Mexico, the Caribbean, and Africa, emphasizing our commitment to advocating for change worldwide.

Empowering Knowledge
Renowned experts from the Cleveland Clinic and Langston Hughes shared their insights on cervical cancer prevention, treatment, and advocacy. Attendees gained a deeper understanding of the importance of:

  • Routine screenings and HPV vaccination.
  • The need for cultural competency in healthcare.
  • Ways for them to engage in community outreach and education.

After an expert-led panel, Chief Diversity Equity and Inclusion Officer, Kimberly Williams recapped the powerful message, “An educated patient takes action.”

Participants also had the opportunity to discuss self-collection cervical cancer screening and participated in discussions that answered questions about self-collection and its importance in eliminating cervical cancer. This discussion aided the advocates in understanding and promoting self-collection as a viable option for early detection when they return to their communities.

A special session with Dr. Leeya Pinder, who practices both in the United States and Africa, provided a global perspective on the issue of access (not just screening and treatment, but also clinical trials). Dr. Pinder explained the dire need for advocacy to end the disease, highlighting that many individuals with a cervix in these countries lack access to essential screening materials, leading to detrimental results. Her insights allowed participants to see the full circle of need in cervical cancer prevention and treatment.

Turning Knowledge into Action
On Saturday, Cervivor launched Cervivor Cares, which is our initiative to raise awareness about cervical cancer in communities through education, volunteering, and active presence. We engaged in community outreach, raised funds, and supported the mission to eliminate cervical cancer by providing essential resources and promoting access to necessary screening and treatment for all. 

What better way to launch Cervivor Cares, than a Cervivor in Action day after a full day of classroom training? That’s right, our retreat participants increased their advocacy footprint by putting their knowledge into action. They volunteered their time at a clinic hosted by Medworks and the Cleveland Clinic that provided preventative screenings to the underserved community of Cleveland, Ohio. 

It was not only an opportunity for preventive screenings, it was an opportunity for our participants to bring education and empowerment to all those who attended and were touched by our volunteers. Without hesitation, our retreat participants assisted by sharing their stories and expressing the importance of our mission. Our Cervivor Español, attendees translated to and for patients in every facet including the exam room so patients understood the physician’s questions and requests. This group put the information they learned into action immediately. Our participants met people where they were, in their daily routines —urging them to schedule their cervical cancer screenings, attend follow-ups, and the importance of HPV vaccination. 

As they shared their stories and stressed the importance of cervical cancer screenings and HPV Vaccination, the clinic was buzzing with excitement. Patients and staff alike began referring to them as “The Ladies in the White Shirts,” urging others, “You need to go talk to the ladies in the white shirts.”  These Cervivors were educating patients before they even walked through the door, helping them understand that regardless of their past, getting screened and following up on any abnormalities now is crucial. The retreat participants’ presence underscored the importance of the Cervivor mission and served as a reminder that their story mattered, and was already making a difference.

Embracing the Spirit of the Ladies in the White Shirts
As we reflect on this transformative event, we celebrate the spirit of “The Ladies in the White Shirts”—the Cervivor community. Each of you embodies this spirit by wearing your shirt, sharing your story, and advocating for screening. Your dedication makes you a vital part of the movement to end cervical cancer. In the words of Gwendolyn Jackson, “You have prepared me to go out into my community.” If you don’t feel prepared, we have programs available for you!

We encourage everyone to grab your Cervivor Spark, use the hashtags #Screen4Me and #Cervivor, and continue advocating for cervical cancer screenings. By sharing your story and spreading awareness, you become a powerful advocate, helping others access the screenings they need and contributing to a future free from cervical cancer. Together, as a community working to eradicate cervical cancer, let’s continue to make our voices heard, drive change, and support each other in this crucial mission.

Cervivor would like to extend its sincerest gratitude to our sponsors, including Pfizer, Genmab, Roche, and The Marchetta Family (Vince, Amanda, & William in honor of their late wife and mother, Betsy), as well as our in-kind donors, La Roche-Posay, Kafela, Lepley & Co., and Kesh the Creative, for their generous support and contributions to our mission.