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Cultural Perspectives: Understanding the Impact of Cervical Cancer on Black Women

Cervical cancer is a global health concern that affects women of all races and ethnicities. However, when we look into the cultural nuances surrounding healthcare, it becomes evident that certain communities face unique challenges. 

Black women, despite advancements in healthcare, continue to face disproportionate rates of cervical cancer. The reasons behind these disparities are complex and rooted in a combination of socioeconomic factors, healthcare access, and cultural considerations. To truly understand the impact, we need to listen to the stories of Black women who have faced the challenges of cervical cancer head-on.

Impactful Stories of Black Cervical Cancer Survivors

Shondria’s Journey: Navigating Societal Norms: “Giving up my dream of having children with the man I loved and giving Romeo a sibling was one of the hardest things to deal with. After Matt and I got married, people automatically asked when were we going to have a baby. My son was from a previous relationship and Matt didn’t have any kids and I was hoping that later down the line if we were still together we would be able to have a child or 2. I even told my doctor that I didn’t want to give up my reproductive rights but I still chose the supposed better option. On March 27, 2008, I had my radical hysterectomy where they removed my cervix, the top part of my vagina, my uterus, my Fallopian tubes, and about 20 lymph nodes. I requested a copy of my surgery report that showed that the cancer was about 1 cm. Everything else was negative for cancer. Raising awareness is so important and I don’t know how many times at work I hear my female coworkers say they don’t think they need a Pap or they’re too afraid to find out if it’s bad news. Also, knowing your family’s medical history is so important! My mom never told me that other women in our family have had cervical cancer, ovarian cancer, and vulva cancer, which is extremely important to know. Knowledge is power!”

Urika’s Story In Overcoming Systemic Barriers: “Before starting my chemo treatments, my doctor at the time was having issues with my insurance to get my treatment started. She was beginning to get frustrated with my health insurance company because she wasn’t able to begin my treatments without approval. I received a call one day from my doctor saying, “Ms. Fraser. you are young and you have three kids to live for. I can no longer wait for your insurance to be approved. So my next step is to have you come into the emergency room and be admitted into the hospital.” At this point, I had no other choice but to believe in my doctor and do as I was told. I was checked in and admitted. I was mighty scared. My doctor came in and explained to me my chemo plan. She informed me the only way for me to begin treatment was for her to keep me in the hospital and bill my insurance later. After talking to me about my treatments, she brought in the doctor who would be doing my radiation treatments and he informed me he would be doing my radiation treatments for free. I stayed in the hospital for over a month and a half. I even celebrated my birthday in the hospital all while doing chemo and radiation. Eventually, I was released from the hospital and able to go home – not to my kids but instead to a family member’s house because my house was over an hour away from the hospital. I continued my treatments and eventually the tumor was no longer there. However, the cancer had spread to my lungs. I had to have a small piece of my lung removed and started chemo all over again – and this time I lost my hair.”

Felicia Fe Fea’s Advocacy: Empowering Through Education: “I had been experiencing heavier periods for numerous years, but thought nothing of it until in 2017 when the bleeding turned into flowing out like a water fountain and giant blood clots that would randomly fall out. I had gotten to the point of having to wear Depends. I was pale and weak. I kept advocating for myself by asking questions to my OBGYN and my advocating and questioning were ignored and minimized. I was told it may be hormonal and I might be going through menopause. Even though I had been with the same OBGYN for over ten years, who knew my history of abnormal paps and who had performed two LEEPs on me which supposedly burned off the precancerous cells, had never checked for cervical cancer. Instead, they told me to eat rare steak and liver to raise my iron levels, shot me up with hormones, and conducted an ablation on me going straight through my cervix. During my ablation, the OBGYN talked about how she had not seen anyone bleed so much during this procedure but when I questioned her she stated how much experience she had and how she had done 100’s of these. As I bleed I was sent home with no answers. I continued to basically hemorrhage for months. I couldn’t work because large blood clots would just fall out randomly and the Depends could not even hold them. The doctor kept trying to force me back to work and kept suggesting a hysterectomy with no real diagnosis other than the heavy bleeding. I was so weak and tired of wearing Depends so I decided to go along with the hysterectomy. I had labs done and my numbers were so low I had to have a blood transfusion before I could have surgery. Not once did my OBGYN say “Let’s check for cancer”; even knowing my history, as if I were an experiment (much like the Mothers of Gynecology Anarcha, Lucy, and Betsey). I had my transfusion and was off to surgery in March 2018. The surgeon contacted me and stated she would be sending my cervix and uterus to pathology because it was “torn up”. After that, I got the ‘you have cancer’ call. My entire cervix was a tumor and I had stage 2B cervical cancer that had moved into my uterus.”

Moving Forward

Understanding the impact of cervical cancer on Black women requires a holistic approach that addresses cultural, social, and systemic factors. It’s crucial to amplify these stories, cultivate open dialogue, and promote education within communities. By acknowledging the unique challenges faced by Black women, we can work towards creating a healthcare landscape that is inclusive, equitable, and supportive for all. We can break the barriers and ensure that no one is left behind in the fight against cervical cancer.

Are you a cervical cancer patient, survivor, or thriver that identifies as Black? Share your story at Cervivor.org! Then join our private group, Cervivor Noir to gain support and learn how your story can create change.

Black Women Take On Cervical Cancer

Teolita and her mom, Dr. Nina Rickenbacker Edwards

Teolita repeatedly told other women, “Do not let stigmas, lack of knowledge, or shame, prevent you from taking care of yourself. What I want all women to know is make sure you listen to your body and seek medical attention if something isn’t right.” She was a staunch believer that being assertive and advocating for yourself was half the battle around cervical cancer. Her mother, Nina, now carries on Teolita’s message. Teolita passed away in August 2019, after a five-year fight with stage 4 cervical cancer. 

Despite the fact that cervical cancer is preventable and treatable, the National Cancer Institute (NCI) estimated that 4,290 women would die of cervical cancer in the United States in 2021. As the country observes Black History Month, it is especially poignant to recognize the fact that Black women throughout the U.S. are dying from cervical cancer at a disproportionate rate, according to a January Human Rights Watch report entitled We Need Access.

Courtesy:

Getting to the root of health disparity 

This difference, linked with social, economical or environmental disadvantage, or health disparity, is posing a major concern for Black women in the state of Georgia, like Teolita who was never screened for cervical cancer, diagnosed at a later stage, and had a lower than five-year survival rate. 

While we at Cervivor are hellbent on focusing on surviving cervical cancer and thriving, we must look at the barriers, challenges and be laser-focused on the points that make some of us uncomfortable. Yes, we’re talking about economic, historic, and structural or institutional racism.

Here’s the breakdown of how Black women are impacted, disenfranchised, and disproportionately impacted: 

  • Healthcare affordability and access
  • Lack of comprehensive sexual health education
  • Historic mistreatment of people of color, particularly Black people, by the healthcare community

HRW women’s rights researcher Annerieke Daniel, said, “We really have to look at the result of racism and discrimination in the health care field and especially looking at gynecological care, which we know is rooted in abuse and exploitation of Black people, of Black women, of Black bodies.”

How can we make a meaningful difference?

  1. Help increase screening rates. Increasing screening rates could greatly reduce deaths from cervical cancer among Black women, Hispanic women, and other underrepresented communities. This requires the delivery of interventions directly to underserved women such as screenings based at accessible locations closer to their places of residence – such as via mobile vans and/or screening locations at local community centers instead of medical clinics. This can substantially lower cervical cancer mortality rates through early detection.
  2. Encourage HPV vaccination. (Watch and Share Chellese’s Video: https://youtu.be/2ORHPF6lcBk).
  3. Encourage clinical trial participation.A lack of racial and ethnic diversity in both cancer research and the healthcare workforce is one of the major factors contributing to cancer health disparities, according to the American Association of Cancer Research. Clinical trials lead to the development of new interventions and new drugs. They are used to make better clinical decisions, but there is often a significant underrepresentation in clinical trials by non-White races and ethnicities. With a focus on targeted therapies and precision medicine, representation in clinical trials is increasingly important so that research includes and reflects all groups. Where to start? Share links to www.clinicaltrials.gov – where clinical trials are listed and searchable by location, disease, medicine, etc.

Gladys knows all too well the struggle of health care challenges as a Black woman. Before she was diagnosed with stage one squamous cell carcinoma in 2013, she had to demand medical attention, she said.

“I went to have my annual physical exam and requested to have a Pap smear. The physician did not want to give me one, according to the guidelines, stating that I was not required to have a Pap smear,” said Gladys. “I insisted that I have one and reluctantly, he gave me one. A few days later, the physician called to tell me that I needed to see a gynecologist. My test came back abnormal. I made an appointment to see my gynecologist. He did an exam and told me I needed to see an oncologist. The oncologist said I had stage I cervical cancer.”

The advocacy and support required is the very reason Cervivor exists. It also exists to educate everyone – whether they are diagnosed or not, whether they know someone with cancer, or not, and no matter how they identify – about cervical cancer and its prevention.

Black women helping to change the course and legacy of cervical cancer

One of those lessons includes the impact of Henrietta Lacks whose cells were used in groundbreaking cancer research. Lacks, a Black woman, was 31 when she lost her battle with cervical cancer in 1951. Despite her passing, she posthumously helped advance cancer research. Her cells, referred to in the medical field after Lacks as “HeLa” cells were cultured from her tumors, survived and multiplied outside her body thus contributing to medical breakthroughs including the development of several treatments and vaccines, including the HPV vaccines. Despite the fact that doctors did not tell Lacks’ family that her cells were being cultured, the groundbreaking effort is a notable moment in Black history. 

Chellesse Parker, was diagnosed at 29 and years later is thriving. One thing she made sure of during her own journey, was to ensure her daughter is armed against cervical cancer despite the challenges facing Black women. 

“There are a lot of things I can’t protect her against but this is something that I can prevent,” she said.

Research tells us that when cervical cancer is detected and treated early enough, women have a 93 percent five-year survival rate. We like these numbers and must rid ourselves of the disparate stats harshly impacting Black women. Every woman deserves to be screened, to receive equitable treatment, and to know they have a fighting chance at being a Cervivor! Let’s fight collectively to protect, prevent and prevail!

Read more about Black women cervical cancer survivors who we honor, celebrate and appreciate. For more resources on cervical cancer, awareness, and representation connect with us on our social media platforms and Cervivor.org.

Cervivor Founder: A Voice for Cervical Cancer Survivors and Health Equity This Black Philanthropy Month

When Tamika Felder founded Cervivor, Inc., in 2005, she wasn’t trying to build a national nonprofit with global reach. She was simply navigating her own cervical cancer diagnosis and determined that no woman should feel as alone as she once did.

Today, as Founder and Chief Visionary of Cervivor, Tamika leads an international movement to eliminate cervical cancer and confront health disparities—especially those affecting women of color.

During Black Philanthropy Month—and on Give 8/28, a national day dedicated to uplifting Black-led and Black-benefiting nonprofits—Tamika’s story is a powerful reminder of how Black leaders are driving change in health equity and advocacy. For her, the day is rooted in pride and visibility. “I’ve always been a part of community service,” she says, reflecting on the example set by her parents. “There are so many Black organizations doing incredible work, but they don’t always get the recognition they deserve. Give 8/28 is a day to say we’re proud to lead these organizations.”

Here, Tamika shares her wisdom and advice for others—whether you’re launching a nonprofit or fighting for access to quality healthcare for all.

Finding Her ‘Why’ and Reclaiming Her Voice

One of Tamika’s guiding messages as a leader and survivor is the importance of finding your “why”—the driving force behind your advocacy work and passion. For her, that “why” was born during cancer treatment and its aftermath, as she grieved the sudden end of her career as an up-and-coming broadcast journalist in Washington, D.C., and the loss of her fertility. “Little by little, the trauma had less of a hold on my life, and I began to embrace the possibilities that life beyond cancer could hold,” she says.

A pivotal moment came when she was asked to testify in support of a Maryland law to safeguard parenthood for young adult cancer patients. “Through tears and shaky hands, I shared my story with legislators, and it made a difference,” she recalls. The Protect Parenthood law was ultimately passed in 2018. Since then, Tamika has continued to use her powerful voice—speaking on Presidential Panels and global stages, serving on national roundtables, and appearing in award-winning documentaries and major publications.

“Black Philanthropy Month is about increasing visibility for Black-led nonprofits,” she says. “Some people might look at Cervivor and think, ‘Well, it already has great visibility.’ But until cervical cancer is eliminated, it will always need more.”

Centering Health Equity

Tamika has always been clear: While the mission of Cervivor is universal—cervical cancer prevention and elimination—the path forward must address inequities that disproportionately affect Black and brown women. And she doesn’t mince words about why health equity is central to her work. “We know that there are disparity gaps in this space, and that people of color, especially Black and brown women, are falling through those gaps at a higher incidence,” she explains.

Cervical cancer is one of the most preventable cancers. With the HPV vaccine, Pap tests, HPV testing, and now self-collection options, the prevention tools exist to save lives. Yet Black women continue to face higher rates of diagnosis and death. Tamika believes part of the solution lies in representation: survivors telling their own stories and trusted messengers bringing information to their communities.

The image is a graphic featuring a quote and a photograph. The quote, displayed on the left side of the image, reads: "MY LEGACY WOULDN'T BE THE LIVES I BROUGHT INTO THE WORLD. IT WAS GOING TO BE THE LIVES THAT I SAVED." The text is presented in a large, bold font, with the words "MY LEGACY," "WAS GOING TO BE THE," and "LIVES THAT I SAVED" in teal, and "WOULDN'T BE THE," "LIVES I BROUGHT," and "IT" in red and orange. To the right of the quote is a photograph of a group of eight women, all wearing white or light-colored shirts with the word "cervivor" printed on them. They are seated on two white couches, arranged in a conversational manner. The background of the photograph features a wood-paneled wall adorned with a large piece of artwork. At the bottom-right corner of the image, three logos are visible. The first logo, situated closest to the photograph, reads "cervivor" in teal text, accompanied by the tagline "informed. empowered. alive." in smaller text below. The second logo, positioned to the right of the first, displays the name "Tamika Felder" in orange text. The overall design of the image suggests that it may be related to a campaign or organization focused on cervical cancer awareness or support.
Cervivor Noir community members at last year’s Cervical Cancer Patient Advocacy Retreat For Communities of Color in Cleveland, OH.

“When I first started sharing my story, I didn’t see anyone who looked like me,” she says. “Every time I see a Black woman sharing their story and sharing the correct scientific information behind cervical cancer, it makes me feel really, really proud.”

The Power of Patient Stories

Tamika has built Cervivor around the conviction that data alone is not enough. “We gave the data, but we didn’t tell the story,” a researcher once told her. That insight reshaped her advocacy.

“You hear all the time that patient stories are important, but I uniquely got it,” Tamika reflects. “My story makes a difference. The hard parts of my story that I may not want to talk about can make a difference. ”From Cleveland to Rwanda, Cervivor has seen an impact by uplifting patient voices. At a Cleveland Clinic event, Cervivor ensured that “no one was left out of the screening” by providing culturally specific support through Cervivor Español and Cervivor Noir.

The image shows four people standing together in a restaurant or cafe. The man on the left is wearing a light blue shirt and jeans, with a black cap. The man next to him is wearing a light blue button-down shirt and jeans, holding a brown leather bag. The woman beside him has curly hair and is wearing a colorful patterned top with black pants and red sneakers. The woman on the right is wearing a light blue t-shirt with a black cardigan and khaki pants. The background features a brick wall adorned with various paintings and decorations, including a large abstract piece behind the group. The atmosphere appears to be casual and friendly, suggesting that the individuals are friends or acquaintances gathered for a social occasion.
Tamika Felder and group in Rwanda (2017)
The image depicts a group of women gathered behind a table, with a prominent blue tablecloth featuring the word "cervivor" and the tagline "informed. empowered. alive." The women are all wearing white t-shirts with the same logo, and they appear to be standing outside a building. The table is adorned with various items, including brochures, cups, and other promotional materials. One woman is holding a baby, adding a personal touch to the scene. The overall atmosphere suggests that the group is participating in an event or campaign related to cervical cancer awareness, as indicated by the "cervivor" branding. The image conveys a sense of community and solidarity among the women, who are likely survivors or advocates for cervical cancer research and support.
The full group known as the “Ladies in White” in Cleveland

These stories matter because they reveal the lived reality of surviving cervical cancer—the hysterectomies, infertility, ostomies, and lifelong side effects often invisible to the public. “If we just let the general population tell it, well, you survived it, you’re doing fine. But I don’t look like what I’ve been through,” Tamika says.

Building Trust and Representation

Trust is everything in underserved communities, and Tamika insists on meeting people where they are. “I go to those communities. If I don’t go myself, someone from my organization goes. We talk to them. We build trust,” she says.

The image is a collage of photographs and text, with the title "OUR STORIES MATTER" in large blue letters at the top. The collage is divided into 13 sections, each containing a different image or graphic. The images depict various individuals and groups, some of whom are wearing matching white shirts with the logo "cervivor" on them. Some of the images appear to be from events or gatherings, while others show people posing for photos or holding signs. In addition to the images, there are several text elements throughout the collage. Some of these include quotes, headlines, and article snippets. One notable text element is a newspaper clipping with the headline "Cancer survivor advocates for others fighting for life." Another section features a quote from a woman who says, "I am proud every year that I celebrate a birthday, because of what I've gone through." The background of the image is white, with orange dots scattered around the edges of the collage. In the bottom-right corner, there is a logo that reads "Tamika Felder" in orange and blue text, accompanied by a stylized graphic of a person. Overall, the image appears to be promoting a message of resilience and advocacy, particularly in the context of cancer survivorship. The use of bright colors and uplifting imagery suggests a positive and empowering tone.
A small glimpse of the Cervivor community’s global advocacy footprint

Representation plays a central role in Cervivor’s impact. Tamika works to ensure that photos, videos, and programs reflect diverse survivors. “I never want anyone not to see themselves,” she explains. “There’s something special to be said by connecting with people who’ve gone through what you’ve gone through.”

Resilience and Self-Care in Leadership

Running a nonprofit rooted in lived trauma is deeply personal work, and Tamika is candid about the toll. “There are points where it’s going to be really hard, but when you’re really committed to this work, you’ll find a way to keep going,” she says.

The image is a collage of 84 headshots of women, arranged in six rows, with a light blue background that gradually darkens towards the top. The headshots are presented in white-bordered boxes, each containing a photo of a woman and her name, along with her birth and death years. The women depicted are diverse in terms of age, ethnicity, and attire. At the bottom of the image, the text "WITH CERVIVOR, THEY LIVE ON #ENDCERVICALCANCER" is displayed in white, accompanied by the Cervivor logo in the bottom-right corner. The overall tone of the image is somber, as it appears to be a tribute to women who have passed away from cervical cancer.

Tamika with Lisa Simms Booth, Executive Director of the Smith Center for Healing and the Arts

As a survivor herself, every death in the community is another wound. “It’s another person who’s died from a preventable disease, and so I have to really practice self-care around that,” she shares. Surrounding herself with other Black women nonprofit leaders helps her carry the weight. “It’s a very hard time, not only for nonprofits, but nonprofits run by Black women. Knowing that you’re not alone helps it be manageable.”

Standing Firm on Equity

Even as some organizations shy away from terms like “DEI” or “health equity” in response to political pressures, Tamika refuses to dilute Cervivor’s mission. “Just because we change and don’t call a thing a thing doesn’t mean that we don’t experience it,” she says. “We’ve already had a funder not fund us because of our Communities of Color retreat. And I’m not going to change the name of it. No one is going to die from cervical cancer on my watch.”

Her vision is clear: to leave behind a legacy of courage, visibility, and unrelenting advocacy.

A Legacy of Hope and Action

What began as one woman’s way to not feel alone has become a global movement of survivors, advocates, and educators. Tamika is proud of how Cervivor has connected patients, clinicians, community workers, and researchers. “We’ve inspired patients, educated clinicians, and shifted the narrative around cervical cancer,” she says.

A group of 15 women stand together, smiling and holding certificates in front of a wall with a pattern of large gray circles on a white background. The women are dressed in casual attire, with some wearing jeans and others wearing dresses or skirts. They are all facing the camera, with some looking directly at it and others gazing slightly off to the side. The certificates they hold feature a blue silhouette of a woman, although the text on the certificates is not legible. The overall atmosphere of the image is one of celebration and achievement, as the women proudly display their certificates.
The inaugural Cervivor School class (2014)
The image depicts a large group of people gathered in a conference room, posing for a photograph. The majority of the individuals are women, with a few men present. They are all dressed in business casual attire and wear blue lanyards around their necks. The group is arranged in rows, with some seated on chairs in the front and others standing behind them. In the background, a large screen displays a video conference with several people visible on it. The room's decor features wood paneling on the walls and ceiling, complemented by white curtains on either side of the screen. A cluster of balloons in shades of yellow, orange, and teal is visible to the left of the image. At the bottom right corner, a logo reads "Cervical Cancer Summit" accompanied by the tagline "informed. empowered. alive." alongside the word "cervivor."
Attendees at the 2025 Cervical Cancer Summit Powered By Cervivor, Inc.

On Black Philanthropy Day, her journey reminds us that philanthropy is not just about giving money—it’s about giving voice, visibility, and leadership. Tamika embodies all three, leading with resilience and purpose to ensure that no one falls through the gaps in the fight against cervical cancer.

Support the Mission

This Black Philanthropy Month, we invite you to support Tamika’s vision and Cervivor’s mission to end cervical cancer through advocacy, education, and community. Here’s how you can take action:  

  • Give $20 on 8/28: As part of Cervivor’s year-long Tell 20, Give 20 campaign, your $20 donation will directly support a Black-led nonprofit committed to health equity for all. 
  • Engage with Cervivor: Follow us on social media, share our posts, and help amplify the voices of cervical cancer survivors and advocates. Your engagement builds awareness, strengthens our community, and inspires action.
  • Attend Cervivor Events: From Cervivor School and monthly virtual meetups to the next Cervical Cancer Summit—your presence makes a difference. Show up, speak out, and stand with us.

Preventing HPV-Related Cancers: Cervivor’s Urgent Call for Action This Women’s Health Month

At Cervivor, Inc., every month is Women’s Health Month. But this May, we’re taking the opportunity to spotlight a critical public health issue that disproportionately impacts women: HPV-related cancers. 

HPV, or human papillomavirus, is an extremely common virus. According to the Centers for Disease Control and Prevention (CDC), approximately 85% of people will be exposed to the virus at some point in their lives. While many HPV strains are essentially harmless, high-risk strains are responsible for more than 37,000 new cancer cases each year in the U.S., including about 21,800 cases in women and 16,000 in men. 

These cancers include vaginal, vulvar, anal, oropharyngeal, penile, and cervical cancer—what Cervivor is dedicated to eliminating. Cervical cancer remains the most common HPV-related cancer in women, with more than 11,000 new cases diagnosed annually.

The good news? Nearly all HPV-related cancers are preventable with tools like vaccination, regular checkups, and early treatment. Just last month, National Cancer Institute researchers reported “phenomenal” new data that a single dose of the HPV vaccine is just as effective as the two doses currently recommended for people aged 9 to 25!

This recent CDC infographic illustrates how effective the HPV vaccine can be in preventing over 90% of related cancers including cervical cancer.

“Knowledge is power—but it’s only the start,” says Tamika Felder, Cervivor’s Founder and Chief Visionary. “Preventable cancers like cervical cancer are on the rise because of complacency, stigma, and misinformation. Up-to-date cervical screenings have dropped over the past two decades, and HPV vaccine uptake was ‘flat’ from 2021 to 2023,” she says, citing an alarming recent report from the American Cancer Society. “The time to prevent suffering—and save lives from cervical and other HPV-related cancers—is now.”

The National HPV Conference: A Gathering of the Minds

Fortunately, Tamika and Cervivor aren’t the only ones prioritizing women’s health and tackling the ongoing challenges of HPV-related diseases. Over 400 attendees gathered with the same mission at the recent National HPV Conference in Indianapolis from April 15 to 17, 2025. Bringing together leading experts, healthcare professionals, researchers, policymakers, and survivors, the conference aimed to facilitate networking, collaboration, and resource sharing like “never done before” in the U.S. 

The National HPV Conference unites leaders toward their shared mission.

Representing Cervivor, Tamika took part in a panel discussion moderated by Dr. Rachel Katzenellenbogen and included other HPV cancer and disease survivors, including recurrent respiratory papillomatosis survivor, Kim McClellan, anal cancer survivor Lillian Kreppel and tonsil cancer survivor Jason Mendelsohn, that underscored the human impact of HPV-related cancers. Later, she and Community Engagement Liaison, Morgan Newman, MSW—a metastatic and recurrent cervical cancer survivor—co-presented with leading global expert and author Dr. Linda Eckert in a session titled “Beyond the Data,” highlighting the power of personal narratives in advocacy.

Cervivor’s founder, Tamika, shared her experience and expertise alongside other HPV cancer survivors, emphasizing the importance of the patient voice.

A few other program highlights from the National HPV Conference: 

  • Keynote Addresses: Dr. Susan Vadaparampil, Associate Center Director of Community Outreach, Engagement, and Equity at Moffitt Cancer Center, delivered a keynote about the importance of advocacy and gave a special shoutout to the Cervivor community. Dr. Michelle Fiscus, Chief Medical Officer for the Association of Immunization Managers and Co-Chair of the National HPV Vaccination Roundtable, also gave a dynamic presentation on the current state of vaccination.
  • Policy and Advocacy Discussions: Dr. Heather Brandt, Director of the St. Jude HPV Cancer Prevention Program, alongside Martha Nolan, Senior Policy Advisor at HealthyWomen, highlighted the critical role of legislative action and community engagement in HPV prevention efforts.
  • Storytelling Session: Sally Perkins, a professional storyteller and cancer survivor, demonstrated the transformative power of storytelling in advocacy.

What’s Next: Challenges and Opportunities

“HPV-related cancers are still a greater threat in the developing world, but it’s alarming that preventable cancers are increasing here in the U.S.—especially as funding from the National Institutes of Health (NIH) and other public and private sources shrinks,” shares Morgan. 

Cervivor Morgan Newman at National HPV Conference
Cervivor’s Community Engagement Liaison Morgan explained how personal narratives can change minds.

Fresh from the National HPV Conference, Morgan outlines several pressing challenges facing the HPV prevention movement:

Vaccine Hesitancy: Despite strong scientific evidence that the HPV vaccine is both safe and effective—and promising news that a single dose may be enough in the future—misinformation and mistrust persist. Disinformation campaigns and cultural stigmas around vaccines continue to suppress vaccination rates, particularly in vulnerable communities. 

Policy and Funding: Sustained progress in HPV prevention relies heavily on legislative support and adequate funding. Cuts to public health budgets and shifting policy priorities threaten access to the HPV vaccine, routine screenings, and treatment services—especially in underserved areas. 

Healthcare Access: Longstanding disparities in healthcare access, insurance coverage, and provider availability mean that too many people—especially in rural, low-income, and marginalized communities—still face barriers to prevention and early detection. Expanding equitable access to care remains a critical need. 

Cervivor’s Response: Advocacy in Action

These challenges fuel our ongoing commitment to protect every person with a cervix from HPV-related cancers. Here’s how Cervivor is responding:

Cervivor School 2024 Graduates and Team Cervivor
Cervivor’s commitment to HPV prevention advocacy includes organizing the annual Cervivor School, where patients and survivors are equipped with the knowledge and tools to advocate for better women’s health care. Shown here is the graduating class of the 2024 school.
  • Enhanced Education Campaigns: Cervivor is tackling vaccine hesitancy through culturally relevant messaging and resources via initiatives such as the Cervical Cancer Summit and Cervivor School, which aims to equip participants with the knowledge and confidence to advocate for HPV prevention within their communities.
  • Empowering Survivors: Through our growing collection of Cervivor Stories, we amplify the lived experiences of patients and survivors to raise awareness, break stigma, and drive meaningful change.
  • Advocacy and Policy Engagement: Members of Cervivor’s team and community proudly contribute to national coalitions including the National HPV Roundtable, National Roundtable on Cervical Cancer, HealthyWomen HPV Coalition, HPV Cancers Alliance, and the St. Jude HPV Cancer Prevention Program, helping shape policies that support prevention, access, and care.
  • Addressing Disparities: Through grassroots, community-led conversations like DEI MeetUps, Black Cervix Chat, Cervivor Español, and international groups like Cervivor Africa and Cervivor Caribbean, we’re ensuring underrepresented voices are heard. (Visit our Events to see if there is a meetup or group that you’d like to join.) We also serve on advisory boards and research committees, championing patient advocacy in clinical trials, screening, and vaccination efforts. 

This Women’s Health Month, we urge our Cervivor community and its allies to recommit to action. Preventable HPV-related cancers shouldn’t still be claiming lives. While cancer doesn’t discriminate, the systems surrounding it often do. It’s time to break down the barriers that stand in the way of prevention, early detection, and treatment.

If you believe in Cervivor’s mission to end cervical cancer and ensure that no one has to face it alone, please consider making a tax-deductible contribution today. Your support helps us continue our lifesaving work.

Black Communities and Cervical Cancer: Breaking the Silence for a Healthier Future

Cervical cancer affects thousands of women in the United States each year, hitting Black communities particularly hard. Of the estimated 13,360 new cases in 2025, the American Cancer Society projects 2,180 will be in Black women, with 610 deaths – a higher incidence rate than their share of the general population. Black women are 19% more likely to develop cervical cancer and nearly 65% more likely to die from it than white women. Systemic health disparities, medical mistrust, and cultural barriers both create and widen this gap. 

While other groups – such as Indigenous women, Latinas, and LGBTQ+ individuals – face similar challenges, Black women experience them at disproportionately higher rates. Kimberly Williams knows this firsthand. 

Kimberly’s Story

A headshot of Kimberly Williams, who has long black hair and is wearing a teal turtleneck sweater. She looks directly at the camera with a slight smile.
Kimberly Williams

“I had never heard of cervical cancer before. I thought I was the only person in the world with it,” recalls the Houston mother of two, who was diagnosed with cervical cancer in February 2018 after visiting a doctor for irregular menstrual cycles in late 2017. She felt blindsided, like many who receive a late-stage diagnosis – a trend that is on the rise, with Black women having the highest number of these cases.

Kimberly was taught to keep family matters private, especially health issues. “Growing up, my mother would say, ‘What goes on in the house stays in the house.'” But staying silent only made her feel more isolated.

After a radical hysterectomy in March, her surgeon informed her that all of the cancer wasn’t gone and she would need radiation and chemotherapy. When her insurance repeatedly denied PET scan authorization – an imaging test crucial for assessing her condition – she became discouraged.  “After a couple of months, I thought, ‘Forget it. I’m fine. I’m healed,’” she shares in this new CervivorTV video.


But she wasn’t fine. A recurrence in 2019 forced Kimberly to undergo treatment. Her oncologist’s dismissive approach almost made her walk away again.

“She just said, ‘You’re starting chemo tomorrow,’ without explaining anything. I had to say, ‘Talk to me like I’ve never had cancer before,’” says Kimberly, who holds a master’s degree and has been a social services worker for over 20 years. “Some people would stop their treatment right there. Not being respected enough to have things explained properly is a major barrier to care.” 

Fortunately, Kimberly’s story has a happy ending. Now cancer-free, she is committed to speaking out to help others avoid the struggles she faced.

“As a Black woman, I realized that other Black people listen to other Black people. That’s just how it is,” says Kimberly, who now serves as the Chief Diversity, Equity, and Inclusion (D.E.I.) Officer at Cervivor, Inc. and was recently named to the Steering Committee of the American Cancer Society National Roundtable on Cervical Cancer. “I had to make the hard decision to share my story.” 

‘Holes’ in the Healthcare System

Kimberly’s experience underscores the need for shared stories to drive change in cervical cancer outcomes. Yet, significant healthcare disparities and barriers to care persist. 

Despite recent reports that some public health officials are being discouraged from using terms like “health equity” and “disparities,” Cervivor Founder and Chief Visionary Tamika Felder warns against brushing aside the research fueling life-saving progress. “Health equity is more important than ever. Ignoring the reasons behind disparities only makes the gaps wider,” says Tamika, a member of the National Cancer Advisory Board (NCAB) and co-chair of the National HPV Vaccination Roundtable. “We know where the inequities exist and why. Trying to erase or undermine the incredible work being done to close these gaps is deeply troubling. If we continue down this path, it will be even harder to repair.”

Tamika Felder, Founder and Chief Visionary of Cervivor, welcomes attendees at the 2025 Cervical Cancer Summit during her annual State of Cervical Cancer speech. She wears a long-sleeve, colorful striped dress, glasses, and a long braided ponytail while speaking at the lectern.
Cervivor Founder Tamika Felder gives her annual State of Cervical Cancer speech at the Summit.
Dr. Lynn Richards McDonald, Clinical Program Director for cervical cancer screening at Johns Hopkins Hospital, speaks at the 2025 Cervical Cancer Summit, wearing a black suit jacket. The Summit logo is visible on the lectern as she addresses the audience through a microphone.
Dr. Lynn Richards McDonald of Johns Hopkins Hospital shares her expertise with attendees.


Dr. Lynn Richards McDonald, Clinical Program Director for cervical cancer screening at Johns Hopkins Hospital, is a leading expert on health equity. She has dedicated her career to advancing it through advocacy, collaboration, and community outreach. Dr. McDonald identifies critical “holes” in the healthcare system that contribute to higher cervical cancer mortality rates in the Black community: “These ‘holes’ – cost, lack of knowledge, embarrassment, clinical bias, cultural differences, and fear – prevent timely screenings and treatment,” explains Dr. McDonald, who spoke about strategies for inclusive cervical cancer care at last month’s Cervical Cancer Summit Powered by Cervivor, Inc.

Key Disparities in Diagnosis and Treatment

One striking paradox: Although Black women have higher rates of initial Pap testing (64% in the past two years compared to 59% of white women, 60% of Hispanic women, and 57% of Asian women), they still face disproportionately high cervical cancer rates. This disparity is largely due to lower follow-up rates after abnormal Pap results and later-stage diagnoses. A 2020 systematic review of 34 studies involving over 1.2 million patients found that even a three-week delay in cancer treatment, including cervical cancer, significantly impacts survival rates.

Dr. Andrea Stubbs, Administrative Director for the St. Jude HPV Cancer Prevention Program, emphasizes how poor communication by medical professionals can affect follow-up after an abnormal Pap or positive HPV test: “Patients of color often receive vague explanations, like ‘dirty cells’ or ‘a little virus,’ which downplay the urgency of follow-up. For many, missing work for appointments means losing money, adding another layer of difficulty.” 

Julia Brown, MPH, and Andrea Stubbs, MPA, of St. Jude accept the Cervivor Champion Award for their dedication and contributions to ending cervical cancer.
St. Jude Children’s Research Hospital recently received the Cervivor Champion Award for its dedication to ending cervical cancer. Dr. Andrea Stubbs (on the right) and Julia Brown accept the award on behalf of the organization at the 2025 Summit.

Where people live and insurance coverage affect outcomes, too. In 2022, Human Rights Watch reported that rural Black women face a cervical cancer rate nearly 50% higher than rural white women and are more likely to be diagnosed at later stages with lower survival rates. A 2023 study also confirmed that Black women have 18% higher odds of receiving a advanced-stage diagnosis compared to white women, largely due to health insurance access. 

When it comes to enrollment in cutting-edge clinical trials, the gap is even wider – less than 5% of participants are Black, limiting how applicable the results are to diverse populations. Barriers such as travel distance to research centers and a lack of transparency in trial processes add to this underrepresentation.

“Many Black women hesitate to participate in clinical trials due to distrust of the medical community,” explains Tiffany Drummond, a clinical research expert who spoke on the topic at the recent Summit. “Patients are smart, but they don’t know what they don’t know until the research and data are shared with them. Why can’t that information be shared?”

Tiffany Drummond of Opinionated STEM speaks during the "Empowering Informed Decisions: Navigating Clinical Trials for Cervical Cancer" panel at the 2024 Cervical Cancer Summit, alongside Lynda Ryan, a cervical cancer survivor and patient advocate.
Tiffany Drummond (right) highlights the importance of informed decision-making in clinical trials with survivor and advocate Lynda Ryan.
Gwen Jackson, wearing a black and white plaid sweater and a Summit lanyard, holds a microphone while asking a question from the audience at the 2025 Cervical Cancer Summit.
Clinical-trial participant Gwen Jackson takes part in a Q&A session at the Summit.


Cervivor Ambassador Gwendolyn “Gwen” Jackson, who was diagnosed with Stage 4 cervical cancer in 2020, credits clinical trials for extending her life. “I’m still alive because of clinical trials,” says the Texas grandmother of three. However, she initially had concerns about participating: “In the African-American community, there’s a deep-rooted distrust of clinical trials,” she shared with The Patient Story last December. “It goes back to when they were using African Americans for experiments and really being the ‘guinea pigs.’”

Medical Mistrust: A Barrier Rooted in History

Gwen’s insight on the roots of medical mistrust in the Black community is spot-on. As Dr. Wendy Kline shares in the latest Cervivor Podcast about her new book Exposed: The Hidden History of the Pelvic Exam, the gynecological abuse of Black women in America dates back over 200 years. It began with James Marion Sims, often called the “father of modern gynecology,” and has persisted through generations.

“The origins of gynecology date back to the 19th century with the invention of the speculum,” Dr. Kline, a Historian of Medicine at Purdue University, explains, referring to the familiar tool used for pelvic exams. “Sims built gynecology on the bodies of enslaved women, three of whom underwent multiple procedures without anesthesia. These non-consensual experiments perfected techniques that defined the field, raising ongoing questions about consent and ethical treatment.” She adds, “Although not every gynecologist is abusive, the history is inherently problematic.” (Read more about the three enslaved women – Anarcha, Betsy, and Lucy – and what they endured in the name of “science” in this powerful retelling by Women & the American Story.)


Another example is Henrietta Lacks, a now-celebrated Black woman who sought treatment at Johns Hopkins in 1951 for abnormal vaginal bleeding. A tobacco farmer and mother of five, she was admitted to the “colored ward,” as a recent St. Jude Research article recounts. After eight months of radiation treatment, Henrietta died at 31, but her cancer cells were taken without consent, leading to the development of HeLa cells that advanced cervical cancer research. (To learn more about Henrietta’s impact on medical ethics, check out last month’s Cervivor Podcast with her great-granddaughter, Veronica Robinson, and Johns Hopkins’ Dr. McDonald.)

The article summarizes, “The medical mistrust generated by historical mistreatments has been passed down over time. Avoiding regular gynecological care makes Black women more likely to be diagnosed with advanced cervical cancer, decreasing survival.”

Breaking the Cycle: How Awareness Can Save Lives

St. Jude highlights another critical factor contributing to higher cervical cancer mortality rates among Black women: lack of awareness about the human papillomavirus (HPV) and the HPV vaccine, in particular. Data from the Office of Minority Health (OMH) indicates that in 2022, non-Hispanic Black females aged 19 to 26 were 20% less likely to have ever received an HPV vaccine than non-Hispanic white females in the same age group.

The Centers for Disease Control and Prevention (CDC) reports that vaccine uptake among all children is still quite low, with only 38.6% of children aged 9 to 17 receiving at least one dose in 2022. While there is no significant statistical difference between Black and white children, health insurance status is a key factor. A February 2024 CDC report found that children with private health insurance (41.5%) were most likely to have received one or more HPV vaccine doses, compared with children with Medicaid coverage (37.0%), other government coverage (30.2%), and those without insurance (20.7%). Despite initial gains in coverage from the Affordable Care Act (ACA), Black people remain 1.5 times more likely to be uninsured than white people, according to a February 2025 report looking at health coverage by race and ethnicity between 2010 and 2023.


But awareness and access aren’t the only barriers. As with avoiding gynecological check-ups or low participation in clinical trials, medical mistrust contributes to some Black parents’ hesitancy or refusal to vaccinate their children against HPV. A 2023 Journal of Pediatric Health Care study led by Ariel Washington, Ph.D., MSSW, of the Barbara Ann Karmanos Cancer Institute found that concerns ranged from vaccine safety to the recommended age, noting that, “Some believed their children were being offered the vaccine at a younger age than most because the health care provider believed the child would become sexually active earlier.” 

In an article about the study on the cancer institute’s website, Dr. Washington shared, “One recurring theme was that parents often felt unheard and unable to ask questions about HPV vaccination.” The study reinforces St. Jude’s recommendation that clear, direct communication from healthcare providers is key to increasing vaccination rates in Black communities.

For Black cervical cancer survivors like Kimberly, who remembers not knowing anything about HPV or cervical cancer when she was diagnosed, spreading awareness in the Black community is imperative. “I realized I had to make sure others knew about the resources out there to prevent cervical cancer: screening and vaccination. By keeping quiet, we risk lives.”

If you feel unheard by your medical providers, Gwen offers this advice: “When you go to the doctor’s office, they are working for you. You are not working for them. So, it’s okay to use your voice. If something feels wrong, speak up. If there’s a treatment you don’t want, say that.”

Find Your Community and Take Action

Most importantly, you don’t have to go through this alone. For many, finding community is life-changing. Kimberly describes discovering Cervivor as a turning point in her recovery. Gwen was surprised by the sense of solidarity she found: “I thought it was just Black women who went through this. But now, being in the teal-and-white community, the Cervivor community, we chat with each other. It’s all of us, as women.”

Cancer survivor Bikira Radcliffe, who founded United Colors of Cancer in 2020 to ensure optimal cancer care for Black, Indigenous, and People of Color (BIPOC), also highlights the growing role of faith-based organizations in supporting mental health and cancer care in communities of color. “In Black and Brown communities, mental health is only now becoming a common discussion,” she shared during a panel at the Summit. “Many people turn to churches and similar institutions for support, and we’re seeing these organizations begin integrating cancer care and mental health resources into their missions.”

Esra Urkmez Uzel, Lilly Stairs, and Bikira Radcliffe speak on a panel about patient advocacy and cancer burnout prevention at the 2025 Cervical Cancer Summit. Bikira, wearing a bright pink shirt and matching head wrap, is seated on the left.
From left, Esra Urkmez Uzel, Lilly Stairs, and Bikira Radcliffe discuss patient advocacy and preventing cancer burnout at the 2025 Summit.

Ultimately, the story of cervical cancer in the Black community isn’t just about statistics – it’s about lived experiences that highlight the urgent need for change. At Cervivor, we are committed to ending cervical cancer through:

  • Education: Providing accurate, accessible information on HPV, cervical cancer risks, and the importance of regular screenings.
  • Advocacy: Amplifying voices to break the stigma and silence surrounding these issues.
  • Empowerment: Encouraging individuals to take charge of their health by advocating for themselves, asking questions, and demanding timely, respectful care.

Consider these ways to connect with other Black cervical cancer patients and survivors through Cervivor:

Cervivor community members of color, wearing Cervivor Cares shirts, smile together at the 2024 Communities of Color Retreat in Cleveland, OH. Tamika Felder has her arm around Gwen Jackson.
Participants at Cervivor’s 2024 Communities of Color Retreat in Cleveland, OH.
  • Communities of Color Retreat – A training to support and empower individuals from diverse communities who have been impacted by cervical cancer, the retreat aims to provide a platform for sharing experiences, connecting with others, and promoting health equity and awareness about cervical cancer. Learn more about the most recent retreat.
  • Cervivor Noir – A private group reserved for cervical cancer patients and survivors who identify as African American or Black. Join today and connect with others in the community!
  • Black Cervix Chat – An event that aims to bridge gaps in healthcare access and provide a supportive space for discussions related to cervical health, screenings, and general well-being for those in the Black community. Watch now on CervivorTV!
  • Cervivor Stories – Visit the Cervivor website to read the testimonies of others impacted by cervical cancer and share your story with an easy-to-follow template. 

By advocating for awareness, equitable healthcare, and open conversations, the Black community can break the silence and move toward a healthier cervical-cancer-free future.

Black History Month and the Disparities Still To Overcome

As we discussed in an earlier post, advancements in the understanding of cervical cancer and the invention of the HPV vaccine are inextricably intertwined with Black History Month (February). Why? Because the “HeLa cells” used in groundbreaking scientific research were from the cells of Henrietta Lacks, a young Black woman who lost her life to cervical cancer in 1951 and whose cell lines have transformed modern medicine.

While HeLa cells were critical to the science that led to the HPV vaccines that have the power to prevent cervical cancer, today Black women in the U.S. bear a disproportionate burden of cervical cancer. Although  cervical cancer occurs most often in Hispanic women, Black women have lower 5-year survival rates and die more often than any other race.  In fact, they have nearly twice the cervical cancer mortality rate compared to white women. 

Why?

Interestingly, while most women with cervical cancer were probably exposed to cancer-causing HPV types years before, on average, Black women do not receive a diagnosis until 51 years of age. That compares to white women who have a median age of cervical cancer diagnosis at 48. Those three crucial years could make the difference between a treatable versus terminal cancer.

Why?

Researchers have reported that due to social and economic disparities, many Black women do not have access to regular screenings. Screening programs often fail to reach women living in an inner city or rural areas because of lack of transportation, education, health insurance, primary care providers who can perform cervical cancer screenings, or availability of nearby specialists for follow-on care.

How can we make a meaningful difference? 

The underlying causes of health disparities are complex and are multi-layers with lifestyle factors (obesity, cigarette smoking, etc.), socioeconomic factors (access to health insurance, access to healthcare providers), representation in research (clinical trials), and much much more. Yet there are still meaningful ways to make a difference.

Help increase screening rates.

Increasing screening rates could greatly reduce deaths from cervical cancer among Black women, Hispanic women and other underrepresented communities. This requires the delivery of interventions directly to underserved women such as screenings based at accessible locations closer to their places of residence – such as via mobile vans and/or screening locations at local community centers instead of medical clinics. This can substantially lower cervical cancer mortality rates through early detection.

The National Breast and Cervical Cancer Early Detection Program (NBCCEDP) has programs – and importantly, partnerships – in place across states, territories and tribal lands.

For example, in South Carolina, NBCCEDP has brought screening to underserved communities in collaboration with nonprofits and faith-based groups including The Best Chance Network and Catawba Indian Nation. In Nevada, programs with Women’s Health Connection increased screening numbers by 30%. Connect with your state’s screening programs. Share info about local screening programs and events. 

Encourage HPV vaccination

Encourage clinical trial participation

A lack of racial and ethnic diversity in both cancer research and the healthcare workforce is one of the major factors contributing to cancer health disparities, according to the American Association of Cancer Research. Clinical trials lead to the development of new interventions and new drugs. They are used to make better clinical decisions, but there is often a significant underrepresentation in clinical trials by non-White races and ethnicities. With a focus on targeted therapies and precision medicine, representation in clinical trials is increasingly important so that research includes and reflects all groups. Where to start? Share links to www.clinicaltrials.gov – where clinical trials are listed and searchable by location, disease, medicine, etc. 

During this year’s Black History Month, let’s work together to change the history of cervical cancer.

What Do Black History Month and World Cancer Day (Feb. 4) Have In Common?

Advancements in the understanding and treatment of cervical cancer are inextricably intertwined with Black History Month. Why? Because the “HeLa cells” used in the scientific research that generated the HPV vaccines were from the cells of Henrietta Lacks, a Black woman who lost her life to cervical cancer in 1951, at age 31.

Physicians at Johns Hopkins University, where Lacks was treated, cultured cells from her tumors for medical research (notably, without her or her family’s knowledge or consent). Her cells survived, thrived, and multiplied outside her body, so much so that they have been in continual use in labs around the world. HeLa cells have helped change the course of modern medicine, contributing to medical breakthroughs including the development of the polio vaccine, and treatments for cancer, HIV/AIDS, leukemia, and Parkinson’s disease. HeLa cells were also of course instrumental to the development of the HPV vaccines.

Today in America, Blacks face the highest death rate and lowest survival rate of any racial or ethnic group for most cancers. This is certainly true for cervical cancer. Although in the U.S. cervical cancer occurs most often in Hispanic women, Black women tend to have lower 5-year survival rates and die from the disease more often than any other race.  In fact, they have twice the cervical cancer mortality rate compared to white women, according to the American Cancer Society. Henrietta Lacks, through her children and grandchildren, is continuing to have impact and address disparities. 

The Henrietta Lacks Enhancing Cancer Research Act

A person standing in front of a brick wall Description automatically generated with medium confidence

Federal legislation focused on closing health gaps and improving access to clinical trials for people of color was signed into law in January 2021: the “Henrietta Lacks Enhancing Cancer Research Act” now mandates the government to reduce barriers to enrollment for underrepresented populations in federally-funded cancer clinical trials.

“While cancer impacts everyone, it does not affect everyone equally,” says Lisa Lacasse, president of the American Cancer Society Cancer Action Network. “The Henrietta Lacks Enhancing Cancer Research Act is critical to changing this reality, improving cancer outcomes and reducing health disparities in this country.” The newly enacted law builds upon Henrietta Lacks’ legacy by ensuring equitable access to advancements in cancer treatment for all people.

Learn More About Henrietta Lacks on World Cancer Day (Feb. 4)

In recognition of Black History Month (February) and World Cancer Day (Feb. 4) is a special virtual event: Henrietta Lacks’ great-granddaughter Veronica Robinson will host a conversation with the American Cancer Society Cancer Action Network’s VP of Federal Advocacy & Strategic Alliances, Keysha Brooks-Coley to discuss the new legislation, its importance and its intended impact on addressing some of the cancer disparities in our country. The event will be held Thursday, Feb. 4 at 1:00 PM ET on Zoom and Facebook Live.  Learn more and register.

What Is Patient Advocacy? And Why It’s Critical in Cervical Cancer Care

By Kyle Minnis, Cervivor Communications Assistant

Peer-led advocacy isn’t just powerful—it’s transformative. According to the National Library of Medicine, programs like Cervivor School—Cervivor’s highly regarded ambassador training program—have quadrupled cervical cancer screening rates in some underserved communities.

Peer and patient advocates provide support to those undergoing treatment, help reduce the stigma of cervical cancer and other conditions, and educate people about prevention and early detection. Perhaps most importantly, they improve survival outcomes. Their work ensures patients are seen and heard while also making the healthcare system more effective and equitable.

To mark National Patient Advocacy Day (August 19), we’re diving into what patient advocacy is, its various forms, and how it has shaped cancer care since the 1950s, when patients and families first began speaking out.

We’ll also celebrate the impact of advocates in our Cervivor community—from everyday actions to global initiatives—and share ways you can get involved in this life-saving work. 

The image is a collage of four photos of women, with a logo in the middle. The logo is white with a teal border and says "NATIONAL PATIENT ADVOCACY DAY" in teal letters. Below that, it says "cervivor" in bigger teal letters, and "informed. empowered. alive." in smaller black letters. Here's what's in the image: Top Left Photo: A woman with long black hair and glasses is shown from the chest up. She's wearing a green jacket over a white shirt and has a name tag on her left lapel. The background is a brick wall. Top Right Photo: A woman with short pink hair is shown from the chest up. She's wearing a dark blue shirt and a thin gold necklace. The background is blurry, but it looks like she's outside. Bottom Left Photo: A woman with medium-length brown hair and red glasses is shown from the chest up. She's wearing a black and white patterned top and has a colorful lei around her neck. The background is a gray wall. Bottom Right Photo: A woman with curly black hair is shown from the chest up. She's wearing a maroon shirt and a silver necklace. The background is white. The image is likely promoting National Patient Advocacy Day, which might be related to cervical cancer awareness because of the "cervivor" logo.

What Is Patient Advocacy in Cancer Care?

First, let’s define what patient advocates do. 

Clinical patient advocates—also called navigators or representatives—help patients understand their diagnosis and options, schedule and keep appointments, navigate insurance, secure resources like transportation or childcare, and coordinate care among multiple providers. Their core principle is to listen to, inform, and empower patients to actively participate in their care.

“A patient navigator is the person who makes the healthcare system accessible,” explains certified navigator Nancy Peña, OPN-CG, CMI, BA, who spent more than a decade in gynecologic oncology clinics at Dana-Farber Cancer Institute (DFCI) and Brigham and Women’s Hospital (BWH). “We keep the care plan on track, the information clear, and the patient’s goals at the center. The navigator is the bridge between the patient and the medical team.”

The image shows a woman standing in front of a large sign that reads "RADIO DABANG 99.5 FM." Here's what's in the image: The woman is wearing: A black graphic t-shirt with a colorful design and the word "HOPE" in teal letters White pants Teal sneakers Her hair is styled in a short, curly updo with red highlights She's smiling and has her left hand on her hip The sign behind her features: A cityscape at night with many lit-up buildings The words "RADIO DABANG 99.5 FM" in large letters, with "RADIO" in red and the rest in white and gray The floor is made of gray carpeting with a striped pattern The image appears to be a promotional photo for a radio station, possibly taken in a studio or office. The woman may be a DJ, host, or representative of the station.
Sharica at the cervical cancer walk she organized with local radio support.

Meanwhile, nonclinical advocates—often survivors themselves—focus on building trust, hope, and community connection. Cervivor community member Sharica Lewis, diagnosed with Stage IB2 cervical cancer at age 35 in 2015, shares her journey publicly on Facebook to inspire others.

“Advocacy gives me the opportunity to share my story and support someone who may be struggling to ask questions or speak up,” says Sharica, who graduated from Cervivor School Minneapolis last year and launched her advocacy work by organizing a local cervical cancer awareness walk in her Texas town.

Nancy, who is also the Founder and Director of Navegación de Pacientes Internacional (NPI)—which trains clinical and nonclinical patient advocates in Spanish across the U.S. and Latin America—says the two types of advocates complement each other. Their goal: helping patients navigate the healthcare system while addressing emotional, cultural, and financial barriers to ensure high-quality care for all.

How Patient Advocacy Improves Cervical Cancer Outcomes

Recent studies and national summits have shown that peer and patient advocates significantly increase cervical cancer awareness and prevention—as noted above, sometimes increasing screening rates by up to four times. 

Why does this matter? Regular cervical cancer screenings have cut incidence and mortality by more than 50% over the past several decades, largely thanks to the Pap test, according to the American Cancer Society Cancer Action Network (ACSCAN). Yet diagnoses in women aged 30 to 44 rose about 1.7% annually from 2012 to 2019, likely due to lower screening rates and gaps in prevention outreach, reports the American Cancer Society (ACS). These numbers make one thing clear: Screening saves lives—and advocates are essential to keeping it top of mind.

Effective hospital patient navigation programs can also have a measurable impact. “At DFCI/BWH, we reduced the no-show rate [for appointments] from 49% to 29% in the first five years,” says Nancy. “This success was possible through staff collaboration, consistent patient education, and multi-lingual resources that ensure every woman knows her next step.”

How Patient Advocacy Helps Close Healthcare Disparities

Here are some sobering facts: In the U.S., Black women are twice as likely—and women living in poverty four times as likely—to die from cervical cancer compared to white women. American Indian and Alaska Native women face two to three times higher mortality, while rural women are more likely to be diagnosed late and die from the disease. 

These disparities underscore the vital role patient advocates play in closing gaps in care and ensuring prevention and treatment reach those who need it most.

Patient advocacy organizations like Cervivor and Nancy’s multilingual, multinational NPI respond to these challenges by offering localized, culturally competent support, adapted education, and strong policy engagement. They earn trust by meeting women where they are and truly listening to their needs—something clinics alone can’t always do.

The image depicts a woman standing at a podium on a stage, addressing an audience. The stage is set with a large screen behind her, displaying a presentation slide titled "Speaker Spotlight" in blue text. Below the title, a circular photo of the speaker, Nancy Peña, is accompanied by her name and credentials in blue text, as well as her title and organization in smaller blue text. The slide's subtitle, "Rising Above Cultural Stigmas and Health Equity," is written in red text.
Certified patient advocate Nancy speaks to the audience at the 2024 Cervical Cancer Summit Powered by Cervivor, Inc.

Both clinical and nonclinical are irreplaceable for designing inclusive cancer care. As Nancy explains: “Native-language navigation improves informed consent, adherence, and satisfaction; reduces errors and no-shows; and honors dignity. When a woman can understand her options and feel supported, outcomes improve—and families and communities feel the difference.”

Advocacy in Action: Sharing Cervical Cancer Survivor Stories

Honduran native Karla Chavez—a Cervivor Ambassador and co-leader of the Cervivor Español community—was diagnosed with Stage II cervical cancer at age 34 in 2017. After completing treatment, she says Cervivor was a “lifeline.”

“Attending Cervivor School in 2019 gave me the knowledge, confidence, and community I needed to take my advocacy to another level,” says Karla. “They provided training, resources, and a network of incredible survivors who inspire me daily.”

Since then, the award-winning advocate has participated in outreach through the 2024 Communities of Color Advocacy Training Retreat and delivered remarks during last year’s Cervical Cancer Elimination Day of Action (November 17) at a World Health Organization–hosted webinar.

The image depicts a group of people gathered outside a storefront, with one woman prominently wearing a white t-shirt featuring the text "cervivor Cares" in blue and red. The scene appears to be a promotional or awareness event, possibly related to cervical cancer or women's health. Key Elements: A woman in the center of the image is wearing a white t-shirt with the text "cervivor Cares" printed on it. She is holding a pamphlet and engaging in conversation with another woman. The surrounding individuals are also dressed casually, suggesting an informal gathering. The storefront behind them features a sign reading "SALLY Beauty," indicating that the event is taking place outside a beauty supply store.
Karla in action during community outreach in Cleveland, OH, at last year’s Communities of Color Advocacy Training Retreat.

Similarly, Cervivor Ambassador Emily Hoffman—diagnosed with Stage II cervical cancer and treated in 2013—has made advocacy a central part of her life. Her “airplane advocacy”—simple, one-on-one conversations, often sparked by the HPV button she wears—can be just as impactful as speaking at larger events, like her home state’s Iowa Vaccination Summit, where she presented last September.

Emily also champions cancer registries, which are essential for improving patient outcomes and securing public health funding. In 2020, she became a certified cancer registrar, sharing, “Knowing my work could impact cancer advocacy, policy, and research—that’s the fulfillment I was looking for.”

The image depicts a group of women seated in a conference room, with five women prominently featured on the right side of the frame. They are all wearing name tags and appear to be engaged in a discussion or presentation. The women are dressed in casual attire, with some wearing blazers or cardigans over their shirts. The woman on the far left has short gray hair and is wearing a black blazer over a white blouse with a floral pattern. The second woman from the left has short blonde hair and is wearing a black blazer over a white t-shirt with blue and red writing. The third woman from the left has short blonde hair with multicolored highlights and is wearing a gray cardigan over a dark blue shirt. The fourth woman from the left has dark hair pulled back and is wearing a gray cardigan over a gray t-shirt with red writing that reads "IOWA NEEDS VACCINES." The woman on the far right has dark hair pulled back and is wearing a black hoodie over a gray shirt. In the foreground, several other women are seated at tables, facing the five women on the right. The background of the image features large windows that allow natural light to enter the room and provide a view of the outside environment. The overall atmosphere of the image suggests a professional or educational setting, possibly a conference or workshop.
Emily (center) shared her lived experience and advocacy insights at the 2024 Iowa Immunization Summit alongside Cervivor’s Community Engagement Liaison, fellow Iowan Morgan Newman (second from left).

How to Get Involved in Patient Advocacy

Patient advocacy is more important than ever. Public health initiatives—including the CDC’s National Program of Cancer Registries (NPCR), which has helped reduce U.S. cancer death rates by 34% since 1991—face increasing threats.

If getting into patient or survivor advocacy feels overwhelming, take inspiration and advice from these Cervivor community members. 

“Start small and start from the heart,” says Karla. “At first, I didn’t know how to share my story—I was still processing everything I had gone through. What motivated me was the feeling of isolation. I didn’t know anyone else who had experienced what I had. I wanted to talk to someone and not feel alone.”

Sharica takes a similar approach: “My tag line is, ‘Let’s start the conversation!’” she says. “Cervivor has empowered me by giving me a community that understands me and everything that I’ve been through. Any opportunity I get to advocate, I’m grateful for it. I get excited when I post on social media and a parent comments that they had their child vaccinated.”

The image depicts a group of five women standing together, posing for a photograph in front of a vibrant balloon backdrop. The women are dressed in various outfits, with the central figure holding a certificate. The woman on the far left is attired in a black cardigan and blue jeans. The second woman from the left wears a white dress. The third woman, positioned centrally, holds a certificate and is dressed in a patterned dress. The fourth woman from the left is wearing a black top and patterned pants. The woman on the far right is dressed in a teal dress. The background features a wall adorned with balloons in shades of white, blue, and silver, accompanied by white flowers. A projector screen is visible on the right side of the image, displaying a logo and the text "IT'S GRADUATION TIME!" in blue letters. The floor is composed of dark tiles arranged in a geometric pattern. The overall atmosphere of the image suggests that the women are celebrating a special occasion or achievement, as indicated by the certificate being held by the central figure.
Sharica proudly displays her 2024 Cervivor School certificate of completion, surrounded by Team Cervivor, including Founder and Chief Visionary Tamika Felder (far right).

Ready to get involved? Here’s how: 

  • Join a support group or peer network like Cervivor, which hosts monthly virtual meetups and other opportunities to connect with fellow survivors.
  • Attend advocacy trainings through programs like Cervivor School. (Applications sign up Friday, August 22, so sign up now for next month’s Kansas City training!)
  • Share your Cervivor Story—on social media, in your community, or at local events.
  • Volunteer for patient- or survivor-led initiatives.
  • Donate to organizations like Cervivor that empower patient advocates. (Our Tell 20, Give 20 fundraising campaign is ongoing—learn how to join and help save lives!)
  • Contact policymakers and lend your voice to legislative efforts that expand access to prevention, treatment, and care.

As patient navigation and advocacy continue to grow—with expanded training, certification programs, multilingual initiatives, and recognition by hospitals and public agencies—there’s hope that equitable care will become the norm, not the exception.

Nancy sums up the work well: “Navigation is a practical expression of equity.”

Together—by sharing stories, showing up for each other, and pushing for change—patient advocates are leading the way toward ending cervical cancer and building a future defined by equity, support, and survivor strength.

Honor National Patient Advocacy Day by sharing this post and joining the mission to end cervical cancer!

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera. The man has dark skin and short, curly black hair. His hair is cut close to his head, with a slight fade at the sides. His eyebrows are thick and well-groomed. He is wearing a blue collared shirt. The shirt is a medium blue color and appears to be made of a lightweight material. It has a relaxed fit and is buttoned up to the top. He is also wearing black-framed glasses. The frames are rectangular in shape and have a subtle curve at the temples. The lenses are clear and do not appear to have any tint or coating. The man is smiling at the camera. His smile is wide and genuine, showing off his white teeth. His eyes are crinkled at the corners, giving him a friendly and approachable appearance. The background of the image is a plain gray color. The gray is a medium tone, neither too light nor too dark. It provides a neutral backdrop that allows the subject to stand out. Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a senior studying Strategic Communications at the University of Kansas. He is currently serving as Cervivor’s Communications Assistant.

AANHPI Communities and Cervical Cancer: Breaking Cultural Silence to Save Lives

In the first of two blog posts for AANHPI Heritage Month, cervical cancer survivors and experts highlight the dangers of staying silent when a disproportionate number of lives are at risk.

Asian American and Native Hawaiian/Pacific Islander (AANHPI) communities are the fastest-growing racial group in the U.S., now totaling over 24 million people—about 8% of the population. This diverse group includes millions of Chinese, Filipino, Vietnamese, Japanese, and others, and is projected by the U.S. Census Bureau to double by 2060.

While “AANHPI” may be a useful acronym for these distinct communities, it’s not the only thing they have in common. They also share a serious health concern: Cancer is the leading cause of death among Asian Americans and the second-leading cause for Native Hawaiians and Pacific Islanders, according to the American Cancer Society (ACS).

Cervical cancer, in particular, demands urgent attention. At first glance, non-Hispanic Asian American and Pacific Islander women appear to have lower cervical cancer rates than other racial and ethnic groups: 6 cases per 100,000, compared to 10 for Hispanic women, 8.4 for non-Hispanic Black women, and 6.9 for non-Hispanic white women, according to the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program.

But a closer look at the numbers reveals stark disparities. Vietnamese women, for example, have a cervical cancer incidence rate of 18.9 per 100,000, while Laotian women face an even higher rate of 20.7 per 100,000—more than triple the overall AANHPI average.

[source: National Cancer Institute Division of Cancer Epidemiology & Genetics]

Mortality disparities are just as alarming. Native Hawaiian and Pacific Islander women experience death rates up to 3.3 times higher from cervical, stomach, and uterine cancers than white women—even though their overall cancer mortality is 7% lower.

These disproportionately high rates are often fueled by a mix of cultural beliefs and stigma about “below the belt” cancers, language barriers, lower general awareness of the human papillomavirus (HPV) and cervical cancer risks, and other factors. As a result, HPV vaccination and screening rates are lower—key tools in Cervivor, Inc.’s mission to eliminate cervical cancer

“Despite their growing number, Asian Americans have long been overlooked in health disparities research,” says Dr. Ha Ngan “Milkie” Vu, Assistant Professor at Northwestern University’s Feinberg School of Medicine. A Vietnamese immigrant, Dr. Vu leads Project HERO, which tests culturally tailored digital tools to increase HPV vaccination among Vietnamese Americans. She elaborates: “The ‘model minority’ stereotype (i.e., overemphasis on Asians’ ability to overcome hardship and succeed in America) masks real gaps in health equity, especially when it comes to issues like cervical cancer.” 

To understand the personal toll of cervical cancer on the AANHPI community—and what is needed to break the “culture of silence” many experience—let’s start with the story of Filipina-American survivor Arlene Simpson.

Arlene’s Story

Arlene and her father, who worked in the medical field like many in their family.

Arlene, a financial services professional and church leader in Bothell, Washington, grew up in a family of healthcare professionals—yet no one ever talked to her about HPV. “I didn’t even get my first Pap test until after I gave birth at 22,” she recalls.

Her crash course in cervical cancer began in August 2021. “During the pandemic, I missed all my annual exams and waited to see my doctors again,” she explains. At her eventual Pap and HPV test, her gynecologist discovered hemorrhaging and immediately performed a biopsy and ultrasound. Although she had a history of abnormal Pap results, her symptoms—chronic endometriosis, dysmenorrhea, heavy bleeding, and pelvic pain—had always been dismissed as “normal.” A week later, the doctor called with the diagnosis. Arlene was stunned. “I never thought I’d get cancer,” she says.

She underwent chemotherapy, radiation, and brachytherapy at Seattle Cancer Care Alliance (now Fred Hutch) and the University of Washington Medical Center. Now, three years in remission, she continues follow-up visits every six months.

For Arlene, surviving cancer wasn’t just a physical battle—it was emotional, too.

“In our Filipino community, especially among the older generation, anything ‘below the belt’ isn’t discussed—especially sex or reproductive health,” she says. And when it is discussed, there’s often a lack of understanding about the causes of disease. After her diagnosis, she recalls one of her aunts saying, “How did you get that cancer? You were so wild and rebellious growing up.” The comment only deepened the shame Arlene was already feeling.

Overcoming Stigma in AANHPI Populations

Arlene’s experience resonates with others in the Cervivor community, including Joslyn Chaiprasert-Paguio, who is of Chinese and Thai descent, and Anna Ogo, who is Japanese.

Joslyn, a medical journal publisher and mom from Menifee, CA, says, “The pressure to stay silent about reproductive health made it even harder to find my voice. Cervical cancer became even more taboo because it’s ‘below the belt.’”

Anna Ogo (Left) and Joslyn Paguio (Right)

Anna, who lives in Kent, WA, with her husband and their “Cervivor Baby,” 18-month-old Eito, adds, “Sharing my story became a source of healing. As an Asian woman, breaking the silence around reproductive health helped me process grief, connect with others, and inspire hope.”

Dr. Zhengchun Lu, a cancer pathologist and resident physician at Oregon Health & Science University, says stigma and misinformation about HPV remain common in many AANHPI communities. She recalls one Asian American patient’s reaction to an HPV diagnosis: “It must be my husband.” For Dr. Lu, this reinforced how shame and blame still surround HPV—a challenge she actively addresses in patient care and community outreach, where she emphasizes that HPV is extremely common and not a reflection of a person’s behavior or character. 

“By fostering open, judgment-free conversations, we can help people feel safe, informed, and empowered to take charge of their health,” she says. As part of her work, Dr. Lu introduces cervical cancer screening in relatable terms—comparing Pap and HPV tests to routine checks like blood pressure or cholesterol screenings.

Anh Le with her parents on her medical school graduation day.

While stigma is widespread, it is not universal across AANHPI communities. Anh Le, born in Vietnam and now living in Phoenix, Arizona, shares a different experience. Diagnosed at age 30 in 2018 while attending medical school in Chicago, she didn’t face judgment from her family—but she did hesitate to tell them.

“When it came to fertility goals, the hopeful anticipation of having grandchildren was a topic that my mother often talked about,” shares Anh, who is an only child. “I was afraid of disappointing them.”

To her relief, Anh received nothing but “immense love and support.” And she credits her parents’ self-sacrifice during her two-month recovery from a total pelvic exenteration—a major surgery removing all pelvic organs, as described in a recent Memorial Sloan Kettering Cancer Center article—and especially her mother’s cooking, which “single-handedly nourished me back to health.”

How Cervivor is Empowering AANHPI Survivors

Today, survivors like Arlene, Joslyn, and Anna are powerful Cervivor Ambassadors for change. Arlene and Anna recently represented Cervivor at the 2025 Society of Gynecologic Oncology (SGO) meeting, where Arlene was a panelist. Joslyn serves on the ACS National Roundtable on Cervical Cancer and hosts the Cervivor Podcast.

Anna (center) and Arlene (right) were joined by fellow Cervivor Mechal Haas at the recent SGO conference.

Soon-to-be surgeon Anh reflects: “Being part of Cervivor helped me understand what it means to be both a patient and a future doctor. As a young AAPI adult with cervical cancer, it was lonely.” Her advice: “Don’t blame yourself. Be proactive. Make sure your care team aligns with your goals. And remember—there’s a community here to support you.”

Arlene credits Cervivor founder and Chief Visionary Tamika Felder for helping her find her voice. “When Tamika encouraged me to share my story, I saw its impact. Someone in Bulgaria heard it and got help. My Filipino cousins—some of them doctors—are now talking about the HPV vaccine. Cervivor gave me a platform and a purpose.”

Join the Cervivor Movement

Stories like Arlene’s, Anh’s, Joslyn’s, and Anna’s remind us that silence can be deadly—but sharing our voices can be lifesaving. If you’re ready to break the stigma, build community, and be part of the movement to end cervical cancer, sign up for updates about our next Cervivor School or join our next virtual Creating Connections meetup this upcoming June 10. Your story matters, and together, we can save lives—one conversation at a time.

From Awareness to Action: Empowering Voices to End HPV-Related Cancers

Every year, over 600,000 people worldwide are diagnosed with HPV-related cancers, including cervical, anal, oropharyngeal, penile, vulvar, and vaginal cancers. In the United States alone, more than 14,000 women are diagnosed with cervical cancer annually. These statistics highlight the urgent need for awareness, education, and collective action—especially on HPV Awareness Day (March 4). The good news? Many of these cases and deaths are preventable.

The Facts About HPV

Human papillomavirus (HPV) is extremely common, with 80% of people contracting it at some point in their lives. Despite its prevalence, many people mistakenly believe that HPV only affects women. However, HPV can affect anyone, regardless of gender. One of the challenges with HPV is that it often has no visible symptoms, making it difficult to know if you have it.

While cervical cancer accounts for most HPV-related cancer diagnoses, cases of head and neck and anal cancers in both men and women are increasing. In fact, HPV is responsible for 60,000 cancer diagnoses in men each year. 

Although there is no approved screening test for other HPV-related cancers, for individuals with a cervix, cervical cancer screening can detect abnormal cells in the cervix that could develop into cervical cancer, while an HPV test indicates that the virus is present in the cervix. If you notice genital warts or have concerns about HPV, it’s essential to speak with your healthcare provider to detect and treat HPV early.

Expert Insights with Dr. Shobha S. Krishnan

Dr. Shobha S Krishnan is a renowned board-certified family physician and gynecologist with over 30 years of experience in primary care and women’s health. As the Founder and President of the Global Initiative Against HPV and Cervical Cancer (GIAHC), she has dedicated her career to combating cervical cancer and HPV-related diseases globally. Her work has taken her to various parts of the world, including rural India, where she has implemented innovative screening and treatment methods, such as visual inspection with acetic acid (VIA) and cryotherapy.

“Cervical cancer is something that we can almost completely eliminate by vaccination and screening. However, we should not even have one death, because we have the tools to prevent it.”

– Dr. Shobha S Krishnan, Future Science OA

Through GIAHC, Dr. Krishnan aims to educate providers, parents, and the public about the importance of HPV vaccination, screening, and early treatment. Despite the challenges faced in both developed and developing countries, Dr. Krishnan remains committed to making the HPV vaccine affordable, accessible, and acceptable to all. Her organization has partnered with various groups, including the American Medical Women’s Association, to raise awareness and promote education about HPV and cervical cancer. Her book, “The HPV Vaccine Controversy,” is a valuable resource for anyone seeking to understand the disease and the importance of vaccination.

Meet Morgan Newman: A Young Adult’s Journey with Cervical Cancer

At just 24 years old, Morgan Newman received the devastating news that she had stage III cervical cancer. Despite undergoing intense treatments, including chemotherapy, radiation, and a metastatic recurrence to her lungs. “I’ll admit, when I was a teenager, I was very hesitant to get the HPV vaccine. My mom begged me to get it, but I told her no because I was skeptical, and I told her it would never happen to me.”

Soon after Morgan entered the survivorship phase, she found her voice through the Cervivor community by attending a patient advocacy training. Now, 10 years later, she’s on a mission to raise awareness and empower others. Morgan proudly serves as Cervivor’s Community Engagement Liaison. “I’m lucky because I went in for a routine screening, and that’s how my cancer was detected. I’m lucky because my body responded to two journeys with cervical cancer.”

HPV-Related Cancer Survivors Share Their Stories

Quinn Billie Jo was diagnosed with stage III anal cancer, which severely impacted her quality of life. The tumor destroyed her sphincter muscle, causing severe issues like incontinence, and she is now scheduled for surgery, which will result in two colostomy bags, one for urine and one for fecal matter. Despite their resilience, Quinn faces the added burden of stigma surrounding anal cancer, often receiving uncomfortable reactions when sharing their diagnosis. Quinn would like to change that narrative.

Patrick, a penile cancer survivor, is advocating for increased awareness and conversation about human papillomavirus (HPV) and its link to male cancers. After being diagnosed with penile cancer in 2020, Patrick underwent life-altering surgery and treatment. He is now urging young people to get vaccinated against HPV and encouraging older men to speak openly about male cancers, emphasizing that conversations about penile cancer should be as normalized as those about breast cancer.

Ada, a 62-year-old single mother of two, was diagnosed with HPV-positive squamous cell carcinoma after discovering a lump on her neck, which she initially thought was a reaction to a bee sting. Following a series of medical appointments, biopsies, and surgeries, Ada underwent 33 radiation sessions and six rounds of chemotherapy. She credits the bee sting with saving her life, as it led her to discover the cancer. With the support of her loved ones, Ada successfully completed her treatment and rang the bell, symbolizing her triumph over cancer.

Teresa, a 40-year-old Black woman, was diagnosed with vulvar cancer after visiting her doctor about a persistent bump on her vulva. Despite her initial calm demeanor, Teresa’s world was turned upside down when her doctor revealed that the cancer was more aggressive than anticipated. After undergoing two surgeries, including a node dissection, Teresa was relieved to learn that the cancer had not spread to her lymph nodes. Now cancer-free, Teresa advocates for HPV vaccination, particularly among young Black women, who she believes are more vulnerable to the virus. She emphasizes the importance of early detection and encourages open conversations about vulvar cancer to combat shame and stigma.

A Call to Action: Eliminating HPV-Related Cancers

So, what can you do to help eliminate HPV-related cancers? The answer is simple: Every action counts, every voice matters, and every choice can make a difference. By taking control of our own health, sharing our stories, and supporting others, we can create a ripple effect that spreads far and wide. Here are some ways you can join the movement:

  1. Get Informed: Learn about HPV, its risks, and the importance of vaccination and screening. Share this knowledge with others to help spread awareness.
  2. Get vaccinated: The HPV vaccine is available for both males and females and can protect against certain types of HPV that can cause cancer.
  3. Get screened: Regular cervical cancer screening can help detect abnormal cell changes early, when they’re easier to treat.
  4. Share your story: If you or someone you know has been affected by HPV-related cancer, share your story to help raise awareness and support others.

The statistics are staggering, the stories are heart-wrenching, but the message is clear: We have the power to eliminate HPV-related cancers. By sharing our stories, educating ourselves and others, getting vaccinated, and getting screened, we can create a world where no one has to suffer from these preventable diseases.

“Our stories are powerful, but they’re so much more impactful as a collective voice.” – Morgan Newman

Let’s continue to break the silence, let’s shatter the stigma, and let’s unite in our quest for an HPV cancer-free future. Join the movement, share your voice, and together, we can make a difference.

Pioneering Moments in Cervical Cancer with Tamika Felder

Cervical cancer is a global health problem that disproportionately affects Black women. Statistics reveal that Black women are twice as likely to be diagnosed with and die from cervical cancer than White women. This disparity underscores the urgent need to address the systemic issues that contribute to unequal access to care and preventive screening that is necessary to eliminate cervical cancer.

In honor of Black History Month, we celebrate Cervivor Founder and Chief Visionary, Tamika Felder’s pioneering moments in cervical cancer awareness and advocacy. As a long-time cervical cancer survivor and internationally recognized patient advocate for cervical cancer prevention, Tamika has been a driving force in the fight against this disease. Her journey and advocacy have left an indelible mark on the cervical cancer community, inspiring change, health equity, access to care, and the creation of a community of patients and survivors sharing their lived experiences with others. 

Tamika’s tireless efforts have significantly contributed to the mission of ending cervical cancer once and for all. Founding Cervivor 19 years ago has not only brought survivors together but has also played a pivotal role in spreading awareness, providing education, and offering support to those impacted by this disease. Through her advocacy, she has amplified the voices of survivors and thrivers, ensuring that their stories are heard and their needs are addressed.

The recent Cervical Cancer Summit powered by Cervivor, where Tamika’s presence was felt, served as a testament to the impact of her advocacy. The summit brought together experts, researchers, healthcare professionals, family members, and patient advocate voices to discuss the latest advancements, challenges, and strategies in the cervical cancer space. The discussions and initiatives that emerged from this event have the potential to shape the future of cervical cancer awareness and prevention.

Tamika’s advocacy has also been instrumental in addressing the disparities in cervical cancer education, treatment, and prevention among Black women. Her commitment to empowering individuals with knowledge and resources, promoting early detection, and reducing the burden of cervical cancer in Black communities won’t stop.

Tamika’s story is a part of cervical cancer history. Her advocacy has not only raised awareness but has also paved the way for a future where cervical cancer is eradicated. As we share our stories we stand in solidarity with Tamika and work towards this shared mission.

Her story, your story, and our stories matter. Together, we can make a difference and create a world free from cervical cancer as we know it.

Empowering Change for Cervical Cancer Survivors

Give 8/28 is a national giving day dedicated to supporting Black-led nonprofits. Cervivor is sharing the incredible impact of your support on our mission to eradicate cervical cancer and improve the health outcomes of Black women and marginalized communities. 

At Cervivor, we are committed to addressing the disparities in cervical cancer education, treatment, and prevention among Black women. Our mission is to empower individuals with knowledge and resources so they have access to care, promoting early detection, and ultimately, reducing the burden of cervical cancer in our communities.

1. Diversity, Equity, and Inclusion: As Cervivior continues its longstanding commitment to diversity work with the addition of Kimberly William’s role as the Chief DEI Officer, Cervivor has expanded and developed four diverse private groups to provide a safe, relatable space for members to express how cervical cancer impacts their lives and their communities.

2. Advocacy and Education: Along with our premiere educational patient advocacy program, Cervivor School, and the Cervical Cancer Advocacy Retreat for Communities of Color, our team and dedicated volunteers have been working tirelessly to raise awareness about the importance of regular screenings and HPV vaccinations. By participating in community events, health fairs, and online campaigns, we aim to normalize conversations around all things cervical cancer.

3. Support for Cervical Cancer Patients, Survivors, and Thrivers: We offer emotional and practical support to those diagnosed with cervical cancer. From connecting patients with our support group, Creating Connections, to providing educational resources, we strive to create a strong network of empathy and care during their journey no matter where they are located.

Give 8/28 is a pivotal opportunity for us to expand our reach and amplify our impact even more. Your generous contribution on this day will directly enable us to:

  • Expand our educational initiatives to reach more communities.
  • Provide increased access to diverse, equitable, and inclusive spaces for those impacted by cervical cancer.
  • Strengthen our advocacy efforts to eliminate disparities in cervical cancer outcomes.

How can you help?

1. Donate: Visit our donation page on August 28th to contribute towards our Give 8/28 campaign. Your support, no matter the amount, will make a significant difference in the lives of those we serve.

2. Spread the Word: Share our mission and the importance of Give 8/28 with your friends, family, and colleagues across all social media platforms. Together, we can create a ripple effect of positive change.

3. Volunteer: If you’re passionate about cervical cancer and health equity, consider joining our team of volunteers. Your skills and time can contribute to making a lasting impact.

By supporting Cervivor on Give 8/28, you are directly contributing to our efforts to eliminate cervical cancer disparities within our communities. Together, we can achieve better cervical cancer outcomes for Black women and marginalized populations.

We thank you for your unwavering support. We look forward to standing beside you on Give 8/28 and beyond.

My Legacy, My Cervivor Footprint…In my Community

Cervivor is committed to closing the disparity gaps that have plagued communities of color for decades. In an effort to close those gaps, Cervivor invited cervical cancer patients and survivors from around the United States to participate in the Cervical Cancer Patient Advocacy Retreat for Communities of Color in our nation’s capitol, Washington D.C.

Why is this so important to our mission?
Research shows that while the rate of cervical cancer has been declining for decades in the U.S., health disparities persist. Hispanic women have the highest incidence rate of cervical cancer, followed by non-Hispanic Black women. Additionally, Black women are more likely to die from the disease than women of any other race or ethnicity. 

So, what is the consistent theme with these health disparities?
The consistent theme for these health disparities are health literacy and trust within the communities of color. As we navigated these themes, Cervivor ensured that each attendee:

  • Had a safe place to share their struggles, hurdles, and concerns in reference to their community and cervical cancer.
  • Was provided with information concerning cervical cancer, treatments, and screening. 
  • Understood their role as a trustworthy change agent in their community.
  • Embraced the opportunity to learn from various speakers and their fellow survivors about how they could utilize their voices to end cervical cancer in their community.
  • Developed a strategic plan to impact their communities specifically.
  • Made a commitment to assist in closing the cervical cancer disparity gap in their community.

It’s imperative that those impacted by cervical cancer have the knowledge and empowerment to lead the charge in changing the narrative for communities of color. Read the personal testimonies from a few of the attendees and the progress they have made since the retreat below.

Gwendolyn shares her thoughts on what this retreat meant to her:

“The Community of Color Retreat had great impact on my life and I have not been the same since. The moment I arrived at the retreat, I noticed everything was planned with so much love and hope, and personalized for us as a collective but also individually as well. We cried, we laughed, we learned, we inspired each other, we listened, and we gained confidence and much knowledge to not only advocate for ourselves but for others as well – within our families, jobs, and communities.“

Since the retreat, Gwendolyn has been instrumental in planning the National Patient Advocacy Awareness Day event with other Houston Cervivors and in co-leading an upcoming health fair for cervical cancer awareness.

Rosalinda shares her insights:

“For many of us, conversations easily continued into dinner, late evening, and early morning coffee meet-ups! We were clearly vibing and opening up to be vulnerable, witnessing and holding space for each other. Native American, African American, Asian, and Latina cervical cancer survivor’s coming together to listen, share, teach, and support each other was a powerful experience! My heart is filled with gratitude for how effortlessly this all unfolded. My most precious take away? Tamika’s loving challenge that following the retreat we step up and use our talents, abilities, gifts, unique perspectives to Do Something small or big, to end cervical cancer.“

After her retreat experience, Rosalinda has jumped in on National Patient Advocacy Day planning, joined as a Cervivor Español Outreach Committee Member, and continues to set goals for reaching low-income populations to ensure they have access to education, screening, and cancer prevention resources.

Janice gave us her thoughts too:

“Hope – grounds for believing that something good will happen. This retreat provided a breadth of information about studies on cervical cancer, as well as how to raise awareness in our communities. Discussing the health disparities across the nation opened my eyes that more needs to be done and that we need to be able to have open, sometimes uncomfortable dialogue to inform others so that they do not have to go through the same things that we did.”

Following the retreat, Janice has been spreading awareness about HPV and cervical cancer through various tabling events at her local college campus and by helping Cervivor raise funds during an early 2023 Kendra Scott Gives Back event.

Although the retreat has ended, the work does not stop. Each attendee made the commitment as a Cervivor Patient Advocate to assist in closing the cervical cancer disparity gap; by creating a culture of diversity, equity, and inclusion which includes supporting, educating, and motivating their communities that have been affected by cervical cancer.

It’s a great reminder that each day we all have an opportunity to provoke change by elevating our voices. We hold the power to save lives for generations to come. Help us continue to shine a light on these disparities by sharing our content with your networks.

Cervivor, as an organization, authentically embraces diversity, equity, and inclusion across all aspects, ensuring that individuals from various backgrounds feel valued, respected, and represented. The organization recognizes that diversity encompasses a wide range of identities and experiences, including persons with disabilities, religious or ethnic minorities, people of color, native/Indigenous peoples, women, gender identity, and sexual orientation.

Interested in learning more about future Cervical Cancer Patient Advocacy Retreats for Communities of Color? Connect with us at [email protected]!

Hello, My Name Is Kimberly!

Hey there Cervivor community!

My name is Kimberly Williams, I’m a recurrent cervical cancer survivor and Cervivor Patient Advocate that resides in the great state of Texas! I’m elated to join Team Cervivor as the Chief Diversity Equity and Inclusion (D.E.I.) Officer. 

When I was diagnosed with cervical cancer in February 2018, it made me realize that being a mom to my two children, a double Master’s recipient in Management and Healthcare Management, and devoting 20-plus years to social services did not lessen my chance to get this diagnosis. The moment that I found out I had cervical cancer my focus shifted to desiring information concerning this disease that invaded my body.

I was introduced to Cervivor by a Cervivor Ambassador in March 2018 after my radical hysterectomy. During this time I listened, watched, and learned from other Cervivors. I faced a recurrence of cervical cancer in 2019 which led me to advocate even more! I began to share my story with those within my reach (my community, my family, and my friends). That’s when I realized that my story as a Black cervical cancer survivor mattered. There was a diverse population who were not insured or underinsured, and not receiving cervical cancer screenings, but who were listening to my story and taking action. It became a mission for me to help these communities by providing support and knowledge, and also sharing my story.

In 2021, while participating in a Cervivor event, I found my voice and drive even more. I learned how to frame my message for different audiences. This brightened my light to make a difference in the underserved communities by sharing Cervivor’s mission through my story. In January 2022, I was in shock to be given the Cervivor Rising Star award. As I accepted the award I understood there were still grassroots efforts that needed to occur to reach those aforementioned communities.

In January 2022, I participated in the Cervical Cancer Summit powered by Cervivor. During this summit participants were encouraged to join the American Cancer Society Cancer Action Network (ACSCAN) to work to impact our local communities and share our cancer stories. Based on this encouragement, I joined the American Cancer Society Cancer Action Network of Texas as a volunteer, which opened doors for me to share my story during HPV awareness events at underserved elementary schools to parents inquiring about the HPV vaccine. I also was afforded the opportunity to share my story during an HPV Roundtable event hosted by the American Cancer Society. Throughout 2022, I continued to share my story at events because I truly understood that my story mattered.

In the summer of 2022, I was chosen as a patient advocate for NRG Oncology’s Cervix and Vulva committee that reviews concepts for clinical trials, which includes ensuring a diverse population participate in the clinical trials. In September 2022, Cervivor hosted their Cervivor School in Nashville, Tennessee and I was awarded the Cervivor Champion award. What a humbling moment in my cancer journey to be viewed as a “champion”.

As I pondered the word champion I found this definition, “a person who fights or argues for a cause” and I silently agreed. Yes, that’s me. That’s what this community stands for and Cervivor helped me locate that champion inside of me! 

This revelation reminded me that this cause is larger than me! No one should die of cervical cancer, however, they still do. Black women are statistically more probable to die from cervical cancer and Hispanic women have the highest rate to develop cervical cancer. I’ve made it my mission to touch all diverse groups, regardless of race, creed, color, or gender to ensure they understand the importance of their gynecological health and cervical cancer screenings.

This community was built and founded by a Black woman that understands the struggles that Cervivor’s diverse community members face. There is a common theme that you may hear from any Cervivor which is “no one fights alone.” As a Black woman that has watched a community of Black women not able to address their gynecological health due to lack of insurance, child care, money, or understanding; I understand that my voice matters and holds weight within diverse populations. I intend to amplify my voice through this position to aid in decreasing the cervical cancer inequality gap that statistics show us. How you may ask? By ensuring that the Cervivor community members and any cervical cancer patient, survivor and/or thriver is supported and armed with knowledge to assist in this effort.

Connect with me on LinkedIn!

If social media is not your thing, no worries I’ve got you covered! Email me at [email protected]. I would love to connect with you as we work together to end cervical cancer. Don’t be shy, tell me how we can help close this inequality gap. You are a part of the Cervivor footprint, your thoughts, involvement, and voice matter!

Let’s Talk About Below-the-Belt Cancers

When the calendar turns to September, it’s a good reason for anyone touched by gynecological cancer to share their story because September is Gynecological Cancer Awareness Month (GCAM).

For those of us in the Cervivor community, September is a significant opportunity to pull out our advocacy boots (and dust them off if they haven’t been used in a while), put below-the-belt cancers in the spotlight, and pick up our momentum to carry us through the remainder of the year. 

Why is GCAM so important?

  • Late-stage cervical cancer is being diagnosed at higher rates in the United States. Historically, cervical cancer has disproportionately impacted Black and Hispanic women. In this study, the overall prevalence of the disease was higher in Black women and there is a large increase in diagnoses for Non-Hispanic White women (CNN).
  • Uterine cancers are on the rise, especially in Black women. It is quickly making its way to becoming the third most common type of cancer among women (NY Times).
  • Fertility and quality of life are still impacting those diagnosed with gynecologic cancers (Oncology Nurse Advisor).
  • Intersectionalities in sexual orientation as well as race and ethnicity show significantly lower odds of undergoing routine cervical cancer screenings (Health Day).
  • Reducing social detriments can improve quality of life, increase survival rates, and close the gap in racial disparities (ASCO Post).

We know there are so many more to list which is why Cervivor continues to be actively engaged in gynecologic cancer awareness. We’re committed to sharing our stories, spreading awareness, and showing the people impacted by gynecologic cancers. We’re facing these disparities head-on!

How can you get involved this GCAM?

  • Share Cervivor content during GCAM. We will have plenty of graphics, articles, and other resources to share with your social media network, across all platforms. Make sure to follow us on Facebook, Twitter, Instagram, TikTok, and Pinterest.
  • Wear Teal and White on #TealandWhiteTuesday. Don’t forget to tag us on Instagram and post your photos in the comment of our Facebook posts!

  • Share your Cervivor Story. Have you shared your story with us on Cervivor.org? Sharing your story on our site is a powerful tool for getting your story out there. Our template guides you with questions, to help you share your cervical cancer story in a way that is personal to you. You can share as little or as much as you like. Once you have submitted your story and it is published, you will be able to share the link with others. Need help getting started? Send us an email at [email protected]!

  • Contact local media to share your Cervivor story. Many times, local news stations, newspapers, and neighborhood publications are looking for content. Reach out to them and share your story. If your story is on Cervivor.org, share the link with them when you reach out.

  • Host a Cervivor Meet-Up. Meet-Ups are local gatherings of Cervivors, networking and sharing in a social environment. You can hold a Cervivor Meet-Up in a coffee shop, restaurant, bar, or anywhere you feel is a welcoming and relaxed place for Cervivors to talk and share. If you’re interested in hosting a Cervivor Meet-Up in your area, contact us at [email protected]. *Cervivor recommends following the latest CDC recommendations for any gatherings.*

  • Become a Partner in Purpose. From care team to community member, your role in cervical cancer awareness, treatment, support, and prevention is of the utmost importance to us. Interested? Sign up here.

  • Donate to Cervivor or host a fundraiser on behalf of Cervivor.

We look forward to a successful GCAM and can’t wait to see how our Cervivor Community comes together to bring awareness to gynecologic cancers!

End Cervical Cancer Disparities in Communities of Color

August is Black Philanthropy Month! Join us today to give back to Black-led nonprofits. We’ll be highlighting the important work we’re doing in the cervical cancer space, members of our community, and ways we’re trying to eliminate disparities for Black women and cervical cancer.

Black women are impacted, disenfranchised, and disproportionately impacted by healthcare affordability and access, by lack of comprehensive sexual health education, and by historic mistreatment of people of color, particularly Black people, by the healthcare community.

“You know, we talk about breast cancer. So, we have to talk about below-the-belt cancers like cervical cancer, too. We have to show the faces of people who have cervical cancer.” – Tamika Felder, Founder & Chief Visionary, Cervivor, Inc.

We are addressing the disparities in sharing our stories, increasing screening rates, encouraging vaccinations, and participation in clinical trials. Research tells us that when cervical cancer is detected and treated early enough, women have a 93 percent five-year survival rate. 

We like these numbers and must rid ourselves of the disparate stats harshly impacting Black women. Every woman deserves to be screened, to receive equitable treatment, and to know they have a fighting chance at being a Cervivor! Let’s fight collectively to protect, prevent and prevail!

Start by donating to Cervivor today! Without generous donors and sponsors like you, none of this crucial work would be possible.

Redefining Patient Advocacy in 2022

When I was originally diagnosed in 2018, I decided that I wanted to recover from surgery and move on with my life. I didn’t want to hear the word “cancer” anymore. But in April 2019, my life changed as I was informed I had a reoccurrence of cervical cancer and I decided I wanted to be a change agent.

I started with my community by sharing my story with those connected to me via social media but in 2021 I felt like it just wasn’t enough. After speaking with the Cervivor community, I decided to redefine my patient advocacy in 2022. 

Here’s a snapshot of how my 2022 has gone so far:

January 2022 I participated in an interview with NPR (National Public Radio) in reference to cervical cancer among Black women that was aired in Georgia and via their social media handles. I also joined the Texas HPV Coalition to raise awareness as it relates to the HPV vaccine. 

February 2022 I was a panelist for the Black Women and Cervical Cancer Webinar hosted by Cervivor. My children and I were also a part of a PSA for HPV Awareness Day through the National HPV Vaccination Roundtable and Association of Immunization Managers that was featured on television and in physician’s offices in Tennessee and also via their social media handles.

March 2022 I completed volunteer training with the American Cancer Society which allows me to share my story locally through ACS CAN. I also completed a radio interview with Zakiya Jenkins who is based in Iowa in reference to cervical cancer in the African American communities. This interview was aired in Iowa and on Ms. Jenkins’ social media handles.

April 2022 I spoke at the Women of Color, Inc. brunch as it relates to cervical cancer among Black women, prevention, and early detection. I also spoke at YES Prep secondary school through the American Cancer Society where I shared my story and encouraged families to research the HPV vaccine.

May 2022 I spoke at Green Valley Elementary school through the American Cancer Society where I shared my story and encouraged families to research the HPV vaccine for their children. I was also chosen to be a Cervix committee Patient Advocate through NRG Oncology.

June 2022 I spoke at the HPV forum with the American Cancer Society, shared my story at a National Cancer Survivor’s Day event in Charleston, SC, and was a panelist for the Tigerlily Listening Summit powered by Labcorb, in which I shared my story and shared my experience as a patient including the disparities among African American women.

As a result, the last six months have blown my mind and have shown me just how much our stories have the power to create change. I encourage all of you to share your story. Be a change agent for this community and get active because you can redefine your advocacy in 2022!

Kimberly is the 2022 Cervivor Rising Star recipient, a joy-sparking, active member of the Cervivor community who is moving mountains. Thank you for all you are doing to end cervical cancer!

Observing Asian American and Pacific Islander Heritage Month

Happy Asian American and Pacific Islander Heritage Month! This month, we pay tribute to the generations of Asian Americans and Pacific Islanders who have shaped America’s history. Asian American and Pacific Islander Heritage Month originated with Congress in the late 1970s and is recognized and celebrated worldwide today!

We are celebrating by honoring some of our resilient Cervivors and continuing to spread awareness to reduce health disparities within the community but first, let’s take a look at some of the glaring statistics.

In 2022, the American Cancer Society released their Cancer Facts & Figures report stating the rates of new cancer cases and the rates of cancer deaths among Asian Americans, Native Hawaiians, and Pacific Islanders varied widely, mostly because of significant differences in exposure to cancer risk factors.

Of these findings, they found that:

  • Cancer is the leading cause of death in the Asian and Pacific Islander population in the US.
  • In 2022, an estimated 14,100 cases of invasive cervical cancer will be diagnosed and about 4,280 deaths will occur in the US.
  • Large variations in cancer occurrence within the API population reflect diversity in terms of geographic origin, language, acculturation, and socioeconomic status.
  • According to the US Census Bureau, in 2020, 20% of Black and 17% of Hispanic/ Latino populations lived below the poverty line, compared to 8% of non-Hispanic White (White) and Asian populations.
  • In addition, in 2019, 10% of Black and 19% of Hispanic/Latino populations were uninsured, compared to 6% of White and 7% of Asian populations.
  • Cervical cancer incidence rates among Cambodian, Vietnamese, and Laotian women decreased dramatically from 1990 to 2008, a change that has been attributed to increases in screening and treatment in these groups.
  • The use of the Pap test within the past 3 years is highest among Filipino women (83%, the same rate as in non-Hispanic whites), and lowest among Chinese women (66%).
  • The 5-year relative survival rate for cervical cancer is 66% overall, but ranges from 39% for Black women 65 years of age and older to 79% for White women under 50, and from 92% for localized-stage disease to 18% for distant-stage.

Meet some of the Asian Americans and Pacific Islanders in our Cervivor community who want to change these statistics!

Meet Arlene, a Washington state Cervivor who recently shared her story to help make a difference in her community. She says, “In honor of Asian American and Pacific Islander Heritage Month and Mental Health Awareness Month, I am humbled to share Part 1 of my cervical cancer journey! It’s time to RISE UP and be a voice! I am no longer ashamed!”

Meet Gina, a cervical cancer patient residing in Maryland. She just learned a year ago about her cancer diagnosis less than a week after turning 32, and 13 weeks after learning she was pregnant. Hear directly from Gina as she shares her story in our CervivorTV video below – We know you will appreciate, empathize with, and want to share with your networks.

We are also super excited to highlight California Cervivor, Joslyn Chaiprasert-Paguio. We love Joslyn because of her energy and advocacy, and if you’ve listened to the first episode of Season 2 of the Cervivor Podcast, you know we are happy to announce that she will be taking over as the host of the podcast! Joslyn will be bringing a new perspective as a Gen Z-er and as a recurrent cervical cancer survivor. Join us in wishing Joslyn success in this new role and get ready for a new season of robust conversations to help us cope, heal, learn and thrive. Don’t forget to visit the Cervivor Podcast on your preferred listening platform and subscribe to get alerts about new episodes!

The Asian culture rarely discusses below-the-belt talk, awareness of, and the knowledge of how important their checkups with their healthcare providers are and they are highly underrepresented in our public health data, however, storytelling has made a difference in the population by increasing the awareness of HPV, cervical cancer prevention screenings, and vaccination. Studies have shown an increase in a more positive outcomes in health data.

Beyond Arlene, Gina, and Joslyn’s stories, visit Cervivor.org to meet other cervical cancer survivors repping the Asian and Pacific Islander communities and share their stories this month with your networks!

What’s your story? Are you a cervical cancer survivor? Your story matters. Share your cervical cancer story and make a difference. Click this link to follow our easy-to-use template.

Hispanic Heritage Month

Did you know that Hispanic/Latina women have the highest incidence rate of cervical cancer in the U.S.? They undergo significantly fewer Pap tests than non-Hispanic white and black women and are less likely than women of other races/ethnicities to return for recommended follow-up after an abnormal Pap test.

These statistics from the American Cancer Society and Centers from Disease Control (CDC) are instructive to us at Cervivor to guide some of our educational efforts.

National Hispanic Heritage Month (celebrated Sept. 15 – Oct. 15 to correspond with the independence of many countries in Central America) honors Hispanic history, culture and contributions. Communities across the country mark the month with festivals and educational activities.

We want to halt cervical cancer in its tracks, in America and around the world. To do that most effectively, we need to be aware of the disparities in cervical cancer incidence and mortality among populations of women. 

For example, in the U.S., black women (followed by Hispanic women) have the highest death rate from cervical cancer. Mortality (death) rates of cervical cancer among Hispanic women are 50 percent higher than those of non-Hispanic women, and incidence rates among Hispanics are twice the rates of non-Hispanic women. Different populations bear different burdens of this disease, for different reasons.

Data from the American Cancer Society show that Hispanic women are less likely to get regular Pap tests. Hispanic and Latino Americans amount to an estimated 17.8% of the total U.S. population, making up the largest ethnic minority. This makes it a focus for our educational messages about cervical cancer prevention with Pap testing, HPV testing and HPV vaccination. This makes it a focus for our advocacy, education and personal Cervivor stories. 

What can we do as Cervivors?

  1. Familiarize yourself with Spanish-language educational resources and share them as part of your education and advocacy work. There is a downloadable Spanish-language “foto-novela” from the American Sexual Health Association, for example, fact sheets from the National Cancer Institute and cervical cancer screening patient information sheets from the American College of Obstetricians & Gynecologists. (These and many more Spanish language resources are available here.)
  2. Join Cervivor Español: Private Facebook Group For Latina Cervical Cancer Patients & Survivors.
  3. Support local and national cancer control and prevention programs and policies aimed at decreasing disparities in cervical cancer mortality. For example: health reform efforts to reduce discriminatory practices against cancer patients and survivors; policies to include no-cost cervical cancer screenings and HPV vaccination as a mandated part of insurance coverage, and initiatives to expand HPV vaccination. 
  4. Support the National Breast and Cervical Cancer Early Detection Program (NBCCEDP): The CDC’s NBCCEDP provides uninsured and underinsured women access to no-cost screening and diagnostic services, as well as a pathway to cancer treatment. Support federal and state funding for this program. Advocate for more funding to expand the reach of this lifesaving program. 
  5. Share your story. We’d love to have more representation from Latina Cervivors on our site. Submit your story here and come to one of our Cervivor Schools to learn more about bringing education and advocacy to your community. 
  6. Share Cervivor content on your social media platforms. You never know who might need this information.

We are all bonded by this disease. We are all motivated to ensure that no one else has to go through what we’ve gone through. Let’s be aware of the racial disparities in cervical cancer, address them head on, and put our support, stories and voices behind programs that can change cervical cancer statistics and save lives. 

Let’s celebrate National Hispanic Heritage Month by recognizing the power and strength of the Latino community and to doing what we can to expand education about cervical cancer screening and prevention. 

A Call for Action & Education During National Hispanic Heritage Month

Did you know that Hispanic/Latina women have the highest incidence rate of cervical cancer in the U.S.? They undergo significantly fewer Pap tests than non-Hispanic white and black women and are less likely than women of other races/ethnicities to return for recommended follow-up after an abnormal Pap test.

These statistics from the American Cancer Society and Centers from Disease Control (CDC) are instructive to us at Cervivor to guide some of our educational efforts.

National Hispanic Heritage Month (celebrated Sept. 15 – Oct. 15 to correspond with the independence of many countries in Central America) honors Hispanic history, culture and contributions. Communities across the country mark the month with festivals and educational activities.

Educational activities? That sounds right up our alley as Cervivors!

Festivals? Preventing cervical cancer and saving lives feels like something to celebrate to me!

We want to halt cervical cancer in its tracks, in America and around the world. To do that most effectively, we need to be aware of the disparities in cervical cancer incidence and mortality among populations of women.

For example, in the U.S., black women (followed by Hispanic women) have the highest death rate from cervical cancer. Mortality (death) rates of cervical cancer among Hispanic women are 50 percent higher than those of non-Hispanic women, and incidence rates among Hispanics are twice the rates of non-Hispanic women. Different populations bear different burdens of this disease, for different reasons.
“I was diagnosed with Cervical Cancer stage IIB in 2008. I had not visited my GYN or had a Pap test for over 3 years. My mission now is to share my story to every woman especially Latinas, who are the most affected by this disease, and convey the message that my journey does not have to be theirs”. 
Patti Murillo-Casa

Data from the American Cancer Society show that Hispanic women are less likely to get regular Pap tests. Hispanic and Latino Americans amount to an estimated 17.8% of the total U.S. population, making up the largest ethnic minority. This makes it a focus for our educational messages about cervical cancer prevention with Pap testing, HPV testing and HPV vaccination. This makes it a focus for our advocacy, education and personal Cervivor stories. 

What can we do as Cervivors?

  • Familiarize yourself with Spanish-language educational resources and share them as part of your education and advocacy work. There is a downloadable Spanish-language “foto-novela” from the American Sexual Health Association, for example, fact sheets from the National Cancer Institute and cervical cancer screening patient information sheets from the American College of Obstetricians & Gynecologists. (These and many more Spanish language resources are available here.)


Join Cervivor Español: Private Facebook Group For Latina Cervical Cancer Patients & Survivors

  • Support local and national cancer control and prevention programs and policies aimed at decreasing disparities in cervical cancer mortality. For example: health reform efforts to reduce discriminatory practices against cancer patients and survivors (amen to that!); policies to include no-cost cervical cancer screenings and HPV vaccination as a mandated part of insurance coverage (hallelujah!), initiatives to expand HVP vaccination (yes!). 
  • Support the National Breast and Cervical Cancer Early Detection Program (NBCCEDP): The CDC’s NBCCEDP provides uninsured and underinsured women access to no-cost screening and diagnostic services, as well as a pathway to cancer treatment. Support federal and state funding for this program. Advocate for more funding to expand the reach of this lifesaving program. 
  • Share your story. We’d love to have more representation from Latina Cervivors on our site. Submit your story here and come to one of our Cervivor Schools to learn more about bringing education and advocacy to your community. 

Cervical cancer is preventable. Cervical cancer is colorblind. So are we at Cervivor. We are all bonded by this disease. We are all motivated to ensure that no one else has to go through what we’ve gone through. Let’s be aware of the racial disparities in cervical cancer, address them head on, and put our support, stories and voices behind programs that can change cervical cancer statistics and save lives. 

Let’s celebrate National Hispanic Heritage Month by recognizing the power and strength of the Latino community and to doing what we can to expand education about cervical cancer screening and prevention. 

From Crushed to Empowered: One Woman’s Story of Slow Recovery

Did you know that Black women have a higher incidence of cervical cancer and HPV? The road to recovery can be rocky, as Alegra found out. Read her story here to find out how she came to embrace survivorhood. – Tamika 

“At age 36 I was diagnosed with stage 1 cervical cancer. For treatment I underwent surgery and embarked on a slow and lengthy road to recovery.

The life-saving surgery eradicated the cancer but the radical procedure also launched me into full menopause at the age of 36. The relationships with my husband and daughter were altered immediately; I was no longer the same.

Alegra VirginaLearning about the diagnosis crushed me. The idea that I may not have a chance to see my teenage daughter graduate from high school and losing the essence of a woman was shocking. A dark cloud covered my family and took over our existence; for many years I felt paralyzed and unable to understand what was going on. Unaware of what to do and convinced that I could push through on my own, I chose silence and renunciation.

What I want other women to know is that recuperating from the physical aspects of the surgery wasn’t as dramatic as the emotional, psychological, and spiritual uphill battle. Outwardly all seemed the same but the inward devastation turned my world upside down. Nothing prepared our family for the immediate and long lasting effects of a radical hysterectomy.

Today I have a sense of empowerment to tell my story, recognize that I’ve been in denial for many years and I can acknowledge that I am a cervical cancer survivor! I am armed with the determination and the desire to assist other women, family members, and caregivers battle the personal issues related to cervical cancer.”
– Alegra

Marking a Milestone: Q&A on the First World Cervical Cancer Elimination Day

Is it really possible to eliminate cervical cancer—not just reduce it or manage it, but wipe it off the map for good? The World Health Organization (WHO) says yes, and has set ambitious global targets to get there by 2030.

The WHO’s 90‑70‑90 cervical cancer elimination strategy calls for:

  • 90% of girls vaccinated against HPV by age 15
  • 70% of women screened by age 35 and again at 45
  • 90% of those diagnosed receiving timely treatment

But meeting this deadline will take more than aspiration—it will take collective action. And today is a major step forward.

November 17, 2025, is the first-ever World Cervical Cancer Elimination Day, designated earlier this year by the World Health Assembly. Think of it like World AIDS Day or World Polio Day—global observances that didn’t just raise awareness, but helped spark the vaccines, screenings, and policies that pushed those diseases to the brink of eradication.

Cervivor, Inc. Founder and Chief Visionary Tamika Felder and Nigeria’s First Lady and healthcare pioneer, Dr. Zainab Shinkafi-Bagudu, were among the leaders who advocated for the day’s creation, including co-authoring a global call to action via the World Economic Forum to support it and elevate its importance on the world stage.

“I started Cervivor 20 years ago to support those affected by cervical cancer, hoping one day it wouldn’t be needed,” Tamika reflected at the time. “But too many communities are still suffering and dying from this preventable disease. A global day of recognition sends a powerful message: Awareness isn’t enough—the time for education, action, and elimination is now.”

Tamika delivers her annual “State of Cervical Cancer” address at the 2025 Cervical Cancer Summit—rallying survivors, advocates, and health leaders toward a future free from cervical cancer.

Below, we bring you an exclusive Q&A with Tamika and Dr. Bagudu, who is also Founder and CEO of the Medicaid Cancer Foundation and President-elect of the Union for International Cancer Control (UICC), answering the same questions from Maryland, USA, and Kebbi State, Nigeria, respectively. Their voices—one from the frontlines of African health equity and the other from the heart of patient advocacy—remind us: Elimination isn’t a solo act. It’s a chorus.

Q: Why does World Cervical Cancer Elimination Day matter?

Tamika: As a cervical cancer survivor, this day feels deeply personal. It represents something I once couldn’t imagine: hope for a world where no one else has to hear the words “you have cervical cancer.” When the World Health Organization declared that eliminating cervical cancer is within reach, it turned our fight from awareness into action.

For survivors, this first official World Cervical Cancer Elimination Day is a milestone that honors every story, every loss, and every victory along the way. It reminds us that our voices matter and that lived experience can guide smarter policies, stronger outreach, and more compassionate care.

Dr. Bagudu: World Cervical Cancer Elimination Day is symbolic—a rallying point for action. The WHO’s declaration that elimination is within reach shows this is an achievable reality if we commit to the right strategies.

  • Globally, it unites countries around a common goal: HPV vaccination, wider screening, and timely treatment. As President-elect of the UICC, I see this observance as a vital tool to keep cervical cancer high on the agenda, especially for low- and middle-income countries.
  • Nationally in Nigeria, it validates years of advocacy by First Ladies Against Cancer (FLAC), which I co-founded. The FLAC Screening Clinic in Kebbi is one example of how global commitments can translate into local action.
  • Personally, it is deeply meaningful. As a physician, mother, and advocate, I have seen both the devastation of late diagnosis and the hope that comes with early screening or HPV vaccination.

Ultimately, this day transforms aspiration into accountability. It tells the world: We can, and we must, eliminate this disease in our lifetime.

Dr. Bagudu, presenting a diagram of the female reproductive system to women in a rural community in Kuje, Abuja, aims to empower people in her country—and around the world—with life-saving information on cervical cancer prevention and the importance of early screening.

Q: How can a global day like this drive real change?

Tamika: We’ve seen the power of global observances before. Days like World AIDS Day and World Polio Day didn’t just raise awareness; they mobilized action, funding, and accountability. World Cervical Cancer Elimination Day can do the same.

In the United States, it can shine a light on the inequities that persist in prevention and care while inspiring innovation and collaboration. When survivors, clinicians, policymakers, and advocates unite around a shared message, we can accelerate progress toward eliminating this preventable cancer.

Dr. Bagudu: Nigeria has made important strides. The government’s rollout of the HPV vaccination program is a landmark step, protecting millions of young girls. Screening services are also expanding, with initiatives like the FLAC Screening Clinic in Kebbi showing how early detection can be brought closer to communities.

Civil society has been central. Through First Ladies Against Cancer (FLAC), we’ve sustained awareness campaigns, mobilized resources, and ensured continuity of programs. Partnerships with groups like Roche and the Clinton Health Access Initiative have strengthened diagnostics and treatment pathways. And of course, the Medicaid Cancer Foundation is at the heart of it all.

Still, challenges remain. Many rural women face barriers of distance, cost, and stigma. Shortages of trained health workers delay follow-up and treatment. And while HPV vaccines are now part of the national program, consistent supply and uptake across all states will require sustained political will and funding.

For me, this progress proves that change is possible when government, civil society, and partners work together. But it also reminds us that elimination will not happen automatically—it demands accountability, innovation, and persistence.

Q: Why is cervical cancer elimination especially urgent in low-resource regions?

Tamika: The U.S. has the knowledge and tools to prevent nearly all cervical cancers, yet persistent inequities mean prevention isn’t reaching everyone. Communities of color, people in rural areas, immigrants, people without reliable insurance, and those with language or transportation barriers face higher risks and lower access to vaccination, screening, and timely treatment. As a survivor, I know how much access, awareness, and advocacy can determine outcomes.

Elimination in the U.S. must start with equity. That means expanding vaccination access in schools and clinics, funding community-led education, and supporting policies that make screening and treatment affordable and available for everyone. Until every community is reached, we have not truly achieved elimination.

At the recent Patient Advocacy Retreat for Communities of Color in New Orleans, Tamika Felder (far right) leads survivors and advocates in grassroots outreach—bringing life-saving cervical cancer education directly into underserved communities.

Dr. Bagudu: Cervical cancer is a stark example of global health inequity. While it is increasingly rare in high-income countries, including the U.S., it remains a leading cause of cancer deaths in Africa, where women are more likely to be diagnosed late, less likely to access treatment, and more likely to die from a preventable disease.

In Nigeria, the challenges are clear:

  • Access is uneven; urban women may find screening in tertiary hospitals, but rural women face long distances, high costs, and limited awareness.
  • Stigma and cultural barriers discourage care until symptoms are advanced.
  • Health system gaps include shortages of trained personnel, diagnostic tools, and reliable vaccine supply chains.

Yet there are real opportunities. The national HPV vaccination rollout can protect millions of girls. Screening is expanding through models like the FLAC Clinic in Kebbi, which shows how state leadership can drive change. Through the Medicaid Cancer Foundation and First Ladies Against Cancer, we’ve raised awareness, supported patients, and built partnerships that strengthen care.

As President-elect of UICC, I can amplify Africa’s voice globally, while at the grassroots, we continue training health workers and engaging communities. Cervical cancer elimination is urgent because every delay costs lives—but with political will, investment, and collaboration, it is achievable, and African women must not be left behind.

Q: What progress have you seen—and what gaps remain?

Dr. Bagudu: We are at a turning point. In Nigeria and across Africa, real progress has been made against cervical cancer.

The national HPV vaccination rollout is a landmark milestone, protecting millions of girls. Screening services are expanding, with clinics like the FLAC Screening Clinic in Kebbi, and awareness campaigns are beginning to shift cultural attitudes. Treatment capacity is also improving, with more cancer centers equipped for radiotherapy and chemotherapy, while education efforts keep cancer high on the agenda.

Still, the gaps are stark. Too many women are diagnosed late, rural and low-income communities face barriers of distance, cost, and stigma, and health systems struggle with workforce shortages, supply chain issues, and limited palliative care.

This is why innovation is critical. Self-collection for HPV testing, digital health tools, mobile outreach, and task-shifting to community health workers can expand access dramatically.

The Medicaid Cancer Foundation (MCF) is helping bridge these gaps by running awareness campaigns, supporting screening in urban and rural areas, providing financial and psychosocial support through our PACE program, and advocating for sustainable funding and best practices. Beyond Nigeria, we collaborate with regional and global partners to strengthen advocacy and ensure Africa’s challenges are reflected in international strategies.

In short, progress is real, but urgency remains. With innovation, collaboration, and sustained commitment, we can close the gaps and move decisively toward eliminating cervical cancer across the continent.

Dr. Bagudu speaks at the just-concluded Medicaid Cancer Foundation disbursement of roughly $70,000 to cancer patients in Abuja, highlighting the Foundation’s commitment to patient-centered care and financial support.

Tamika: From where I stand, what’s changing most is momentum. More people are learning that HPV causes cervical cancer, vaccination rates are improving in some regions, and new technologies like HPV self-collection are showing incredible promise. Survivors are stepping into leadership roles and helping shape the national conversation about prevention and equity.

But there is still work to do. Too many people remain unaware of their risk or lack access to timely screening and treatment. Stigma and fear continue to silence conversations about cervical health. Organizations like Cervivor are helping bridge those gaps by elevating survivor voices, promoting education, and partnering with health systems to ensure innovations reach those who need them most.

Q: What message would you share on this inaugural day?

Tamika: A future without HPV-related cancers looks like prevention in every community, equity in every policy, and hope in every story. It looks like the next generation growing up protected and informed. A world without cervical cancer means no more stories like mine—and that’s the legacy I want to leave behind.

Elimination is possible, but it will take continued investment, accountability, and survivor leadership. Those of us who have lived through cervical cancer know what’s at stake, and we’re committed to making sure no one else has to.

This collage features Cervivor community members from the U.S. and around the world, showcasing powerful patient advocacy and demonstrating what survivor leadership looks like in the fight to eliminate cervical cancer.

Dr. Bagudu: On this inaugural World Cervical Cancer Elimination Day, my message is one of hope and urgency. Hope—because for the first time, we have the tools to end a cancer. Urgency—because every year of delay costs thousands of women’s lives, especially in Africa.

A future without HPV-related cancers is one where girls are routinely vaccinated, women have access to simple, affordable screening close to home, and treatment is available without stigma or financial hardship. It is a future where communities celebrate survivorship rather than mourn preventable loss.

To get there, governments must prioritize vaccination, screening, and treatment; global partners must ensure equitable access; and civil society—including the Medicaid Cancer Foundation—must continue raising awareness, supporting patients, and holding leaders accountable. Innovation, from self-collection for HPV testing to digital health tools, will also be key. 

If you found this blog post helpful, please share it with friends and family. Knowledge is power—and you may just save a life. Questions? Contact us at [email protected].

Latina Cervivor Stories: Changing the Narrative about Cervical Cancer in Hispanic Communities This Hispanic Heritage Month

By Kyle Minnis, Cervivor Communications Assistant

Each year, Hispanic Heritage Month (September 15 to October 15) honors the contributions and resilience of the more than 65 million Hispanic Americans who shape our nation’s culture, economy, and communities. It’s also an important opportunity to highlight persistent health disparities—particularly in cervical cancer prevention and treatment, which disproportionately affects Latina women.

Composite image of three Latina cervical cancer survivors with teal text: "LATINA SURVIVORS CHANGING THE NARRATIVE ON CERVICAL CANCER." The image highlights representation and advocacy for cervical cancer in Hispanic communities.

Latinas are 43% more likely to be diagnosed with cervical cancer than non-Hispanic white women, and their risk of dying from it is 25 to 50% higher, according to the American Cancer Society (ACS). They receive significantly fewer Pap tests and are less likely to follow up on abnormal results, reports the Centers for Disease Control and Prevention (CDC). Barriers to care include stigma and silence around “below-the-belt” cancers, language differences, insurance gaps, transportation challenges, and inflexible work schedules, all of which delay diagnosis and limit access to lifesaving interventions.

Patient navigators like Nancy Peña—Founder and Director of Navegación de Pacientes Internacional (NPI), which trains Spanish-speaking clinical advocates across the U.S. and Latin America—champion bilingual education and culturally competent care, explaining, “Native-language navigation improves informed consent, adherence, and satisfaction; reduces errors and no-shows; and honors dignity.”

Bilingual clinical patient navigator Nancy Peña spoke to attendees at the 2024 Cervical Cancer Summit.

HPV vaccine uptake among Hispanic youth and young adults also remains low. While 63% of U.S. adolescents ages 13 to 17 are up to date on the full series, Hispanic adults ages 18 to 26 lag behind: According to the latest National Health Interview Survey, only 36% had received at least one dose, and just 21.5% had completed the full series—far below the national goal of 80% two-dose completion by age 15.

As Cervivor has reported, in many traditional households—Hispanic or otherwise—the vaccine is still seen to promote promiscuity. “It’s so important to speak openly with our children about cervical cancer and the HPV vaccine,” says cervical cancer survivor Maritza Manjarrez, a Cervivor Español member who was raised in a Mexican family. “Vaccinating our youth doesn’t mean we’re giving them permission to have sex—it means we’re protecting them from a cancer that can develop later in life.”

Cervivor’s mission is to help eliminate cervical cancer while also lifting survivors from isolation, providing community and education, and empowering those affected to become advocates. This Hispanic Heritage Month, we celebrate our Latina community members—including Maritza, Dulcely Tavarez, Yvette Torres, and many more—by amplifying their stories and strength. Their voices demonstrate what it means to live beyond cervical cancer while advocating for health equity and compassion.

Maritza Manjarrez: Breaking the Silence

Maritza recently graduated from Cervivor School 2025.

“My cervical cancer journey has been especially difficult as a Latina. The stigma surrounding HPV and cervical cancer in our community has played a huge role in that,” says Maritza, who was diagnosed with metastatic squamous cell carcinoma at age 34. “Growing up Mexican meant you didn’t talk openly about topics like this. Keeping what was considered ‘private information’ to myself made it very hard to find help, support groups, or even basic information.”

That silence meant it took Maritza years to find Cervivor and feel comfortable sharing her story. “When asked what type of cancer I had, I felt a sense of shame and embarrassment to answer cervical cancer,” she recalls. “I believe this stigma plays a big role in the statistics. It makes me sad and worried, because if we don’t increase advocacy, these numbers are not going to change. Too many of our women are dying from this preventable disease.”

Dulcely Tavarez: Shattered Dreams, Renewed Fire

Dulcely Tavarez

Dulcely describes being in her early twenties, putting her own health last while caring for others, a struggle familiar to many Latinas. In April 2015, she finally saw a doctor about her irregular menstrual cycles, but was bounced between providers before receiving a cervical cancer diagnosis. “‘Later’ almost cost me everything. By the time I was diagnosed, the treatment I needed was life-saving but meant I could never carry a child.”

Dulcely’s family surrounded her with care and love, but it sometimes intensified her grief and isolation. “In our community, family and children are seen as such a natural part of life that it’s hard to explain the emptiness when that dream is taken away. Even when they were trying to comfort me, sometimes I felt alone in those emotions.”

She found healing in Cervivor. “When I looked for stories that reflected my own—young, Latina, facing cancer and fertility loss—I couldn’t find them. And that loneliness can be crushing. We need to see ourselves in these campaigns, in our own language, in ways that reflect our values and struggles. Representation is not just about visibility—it’s about saving lives and healing hearts.”

Thanks to her involvement with Cervivor, Dulcely became the first-ever recipient of the Cervivor Baby Gift Fund at this January’s 2025 Cervical Cancer Summit. The award supports cervical cancer survivors pursuing alternative paths to motherhood and accepts donations from $10 to $50,000.

Dulcely gets a hug—after receiving the first-ever Cervivor Baby Gift Fund—from Cervivor Founder and Chief Visionary Tamika Felder at the 2025 Cervical Cancer Summit.

Yvette Torres: From Shame to Advocacy

Yvette Torres

Yvette’s cancer journey began with an unsympathetic, unprofessional diagnosis. “The doctor asked, ‘Why did I wait so long?’ Still in shock, I did not answer that callous question,” she recalls. At 42, she and her husband had been hoping for another child so their youngest son could have a closer-in-age sibling—but that hope ended with a biopsy, performed on her son’s 4th birthday, that confirmed cervical cancer in 2013. She remembers the OB/GYN telling her it “didn’t look good,” that it was most likely cancer, and later saying it was a “good thing I already had two children,” since treatment would likely take away her chance to have more.

This cold medical treatment reinforced how stigma and cultural silence can delay women from seeking care. Yvette shares, “I hid. I felt ashamed. I didn’t want to talk about it because that’s what I learned growing up—we didn’t talk about below-the-belt issues. My mother did teach me the importance of going to the gynecologist. However, I did not feel comfortable talking about details, differences, or changes in my body.” Her experience echoes what many Cervivor Español members describe: how misconceptions about HPV, reluctance to discuss gynecologic cancers, and language barriers all contribute to lower screening and vaccination rates.

For Yvette, community was the turning point. “I found Cervivor during COVID, when isolation made everything feel even worse.” Through Cervivor Español, she gained the confidence to speak out in Spanish, even though she hadn’t grown up fluent, and now distributes bilingual prevention materials. “Now, I celebrate and embrace my Black and Hispanic identity by advocating for these communities and helping women not feel ashamed by sharing my story,” says Yvette, a 2023 Cervivor Champion and recent top Tell 20, Give 20 fundraiser, who also mobilized her students through a school workplace drive to spread awareness.

Yvette at work, where her story inspired colleagues to donate thousands to Cervivor’s Tell 20, Give 20 campaign.
Dulcely at last year’s Communities of Color Patient Advocacy Retreat, where she did outreach through Cervivor Cares.

Join the Movement to End Cervical Cancer Disparities in Hispanic Communities

Latinas make up 20% of the U.S. population, and their stories of surviving cancer, overcoming setbacks, and celebrating successes deserve to be heard—not just during Hispanic Heritage Month. Whether navigating care in a new language, confronting cultural silence around cancer, or redefining family and identity after treatment, Latina Cervivors show that community and compassion can transform what’s possible.

To help reduce cervical cancer diagnoses and improve outcomes for Hispanic individuals with a cervix, take action today by:

  • Sharing your Cervivor Story to put a face on a cancer that is too often hidden or hushed.

  • Supporting Cervivor’s 20th-year Tell 20, Give 20 campaign to fund culturally relevant programming and Cervivor Español support group (and sign up for next month’s event).

  • Advocating for bilingual programs—like Nancy Peña’s NPI patient navigators—that help create more equitable care pathways.

  • Championing advocacy groups such as the ACSí Se Puede Hispanic/Latino Advocacy Alliance, which amplify voices and expand access for Spanish-speaking communities.

  • Using your voice. If you speak Spanish—whether fluently or conversationally—you can support those facing language barriers. Talk with them about the life-saving benefits of HPV vaccination, regular screenings, and timely follow-ups.

Lastly, honor the voices of Maritza, Dulcely, and Yvette—and so many others—by making this Hispanic Heritage Month a catalyst for lasting change. As Dulcely reminds us:

“Please don’t wait. Don’t push your health to the bottom of the list the way I did… To the mothers—protect your children with the HPV vaccine. It’s an act of love. To my fellow women—know your worth, use your voice, and never stop fighting for answers.”

If you found this blog post helpful, please share it with friends or family members. You may just save a life. Questions? Contact us at [email protected].

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera. The man has dark skin and short, curly black hair. His hair is cut close to his head, with a slight fade at the sides. His eyebrows are thick and well-groomed. He is wearing a blue collared shirt. The shirt is a medium blue color and appears to be made of a lightweight material. It has a relaxed fit and is buttoned up to the top. He is also wearing black-framed glasses. The frames are rectangular in shape and have a subtle curve at the temples. The lenses are clear and do not appear to have any tint or coating. The man is smiling at the camera. His smile is wide and genuine, showing off his white teeth. His eyes are crinkled at the corners, giving him a friendly and approachable appearance. The background of the image is a plain gray color. The gray is a medium tone, neither too light nor too dark. It provides a neutral backdrop that allows the subject to stand out. Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a senior studying Strategic Communications at the University of Kansas. He is currently serving as Cervivor’s Communications Assistant.

Gynecologic Cancer Awareness: A Guide to Risk Factors, Symptoms, Survivorship, and Prevention

By Kyle Minnis, Cervivor Communications Assistant

September is more than just Gynecologic Cancer Awareness Month (GCAM)—it’s a call to action for anyone affected by the five “below-the-belt” cancers—cervical, ovarian, uterine, vaginal, and vulvar. Patients, survivors, caregivers, advocates, experts, and others come together to share this critical, life-saving knowledge: Greater awareness of risk factors, prevention, and early symptoms could mean fewer diagnoses and more birthdays for thousands of people each year. In 2025, the American Cancer Society (ACS) estimates that more than 119,000 Americans will be diagnosed with gynecological cancer, and roughly 34,630 will die from these diseases. 

Dr. Allison E. Garda

“Gynecologic cancers can impact people of all ages and ethnicities, and there is incredible need for awareness,” says Mayo Clinic radiation oncologist Dr. Allison E. Garda, M.D., who lists the cancers in decreasing order of incidence, according to the national Surveillance, Epidemiology, and End Results (SEER) Program‘s 2025 estimates: uterine (69,120), ovarian (20,890), cervical (13,360), vulvar (7,480), and vaginal (5,550).

Collectively, these cancers are a growing public health challenge—one that Cervivor is committed to reversing year-round, not just during GCAM. Consider these facts about gynecologic cancers:

  • HPV vaccination could prevent almost all cervical and many vaginal and vulvar cancers. Regular screening—such as Pap tests to detect precancerous cell changes and HPV tests to identify the virus responsible—has been proven to significantly reduce fatalities through early intervention. However, childhood vaccination rates are declining nationwide, and too many barriers to preventive care still exist.

  • Uterine cancer incidence and mortality are climbing in the U.S., with age-adjusted death rates rising by around 1.6% per year between 2014 and 2023, according SEER. This increase is fueled by rising rates of obesity and metabolic conditions—known risk factors that can be monitored and managed through preventative care. 

  • Despite recent advances, ovarian cancer’s prognosis remains poor, especially when diagnosed at later stages. SEER reports that the relative five-year survival rate is just 51.6%—compared to 91.7% for breast cancer and 68% for cervical cancer. Early symptoms are subtle, and too few cases are detected at an early stage.

  • Even after survival, many live with long-term pelvic health issues and quality-of-life challenges that too often go untreated.

For all these reasons and more, it’s vital to break the silence, raise awareness, and advocate for those affected by gynecologic cancers—while also listening to survivors as they share their lived experiences. Understanding your gynecologic health is the first step toward prevention, so let’s start with the basics. 

Gynecologic Cancer Awareness: Understanding Types, Risk Factors, Symptoms, and Treatments

Gynecologic cancers are united by their location—the female reproductive system—but are unique in their behavior. While some symptoms may overlap, every type presents its own challenges. Here’s an overview of gynecologic cancer facts to help you understand the barriers to prevention, early detection, and better outcomes—because knowledge is power when it comes to your health.

Where Different Types of Gynecologic Cancers Form 

  • Uterine (Endometrial) Cancer begins in the endometrium, the inner lining of the uterus. This tissue is highly responsive to hormonal changes, which is why uterine cancer is closely linked to factors that affect hormone levels, like obesity and metabolic conditions.

  • Ovarian Cancer starts in the ovaries, with most cases thought to originate in the cells on the ovary’s outer surface.

  • Cervical Cancer arises in the cervix, linked directly to HPV infection, and can be detected early through screening.

  • Vaginal Cancer begins in the tissues of the vagina and is strongly associated with HPV infection.

  • Vulvar Cancer develops on the outer surface of the female genitalia, often affecting the labia. It is also linked to HPV as well as lichen sclerosus and other chronic vulvar conditions.

Key Risk Factors for Gynecologic Cancers

Different gynecologic cancers have unique drivers, yet several key risk factors overlap. Here are the most common:

  • HPV Infection: Human papillomavirus (HPV) is one of the world’s most common viruses and causes multiple gynecologic cancers—cervical, vaginal, and vulvar—and others like anal, throat, and penile cancers. Persistent infection with high-risk strains can trigger precancerous changes and, if untreated, develop into cancer. “We are seeing more HPV-driven vulvar cancers affecting younger patients,” notes Dr. Garda. Hear from this vulvar cancer survivor.

  • Family History of Cancer: Genetics also plays a role. Roughly 10 to 15% of ovarian cancers and 5% of endometrial cancers are hereditary, often tied to BRCA1/2 or Lynch syndrome, reports OncoLink. 

  • Aging: According to the National Cancer Institute (NCI), getting older is the single greatest risk factor for cancer overall—and especially for some gynecologic cancers: The median age of diagnosis is 64 for uterine cancer and 63 for ovarian cancer, reports SEER.

  • Obesity: The Centers for Disease Control and Prevention (CDC) includes both uterine and ovarian cancers among the 13 cancers linked to obesity, which now affects more than 40% of Americans. The ACS notes that about 57% of endometrial cancers are tied to excess weight, and severe obesity (BMI ≥ 40) can raise risk by up to sevenfold compared with a healthy weight.

  • Metabolic Conditions: Diabetes and metabolic syndrome can increase the risk of uterine and ovarian cancers. Having three or more metabolic syndrome components (e.g., high blood sugar, hypertension, obesity) increases uterine cancer risk by more than three times, according to the ACS’s Cancer journal last year. Diabetes alone raises ovarian cancer risk by about 17%, according to 2023 research.
Mechal Haas

Even if you have risk factors, don’t feel discouraged or hopeless—or internalize shame or blame. Cervivor supporter Mechal Haas, who was diagnosed in 2022 at 45 with both endometrial and ovarian cancer, reflects: “At first I blamed my weight and not prioritizing self-care, but I’ve learned that women at healthier weights who exercise regularly are also diagnosed with these cancers. Since there’s no early detection test for ovarian cancer, know the symptoms, find a doctor you trust, get regular check ups, and advocate for yourself.”    

Common Gynecologic Cancer Symptoms 

“Symptoms may sometimes be obvious—such as vaginal bleeding or discharge—or more subtle, like pelvic or abdominal pain, bloating, nausea, appetite changes, or shifts in bowel or bladder habits,” explains Dr. Garda. Too often, these signs are dismissed as “normal aging” or mistaken for conditions such as fibroids, Polycystic Ovary Syndrome (PCOS), or endometriosis.

Early detection saves lives—especially for cervical and uterine cancers, which are often highly treatable when caught early. Being aware of these symptoms is crucial for maintaining your gynecologic health. Here are ones to watch for: 

  • Abnormal vaginal bleeding or discharge — cervical, uterine, ovarian, and vaginal cancers

  • Pelvic pain or pressure — uterine and ovarian cancers

  • Pain or bleeding during intercourse — cervical and vaginal cancers

  • Feeling full quickly, bloating, or abdominal/back pain — ovarian cancer

  • Changes in urination or bowel habits — ovarian and vaginal cancers

  • Vulvar itching, burning, pain, or skin changes — vulvar cancer

For Cervivor community member Erica Lopez, a history of gynecologic issues led her to dismiss what were actually cancer symptoms. “I always bled heavily and with clots, but over time, my clots started getting bigger, and bleeding got worse. I thought it was my PCOS… I was fatigued, but I’ve always had anemia,” recalls the Bronx mother, who was diagnosed in 2022 at 34 with stage 3 cervical cancer. “When the pain during intercourse and heavy clots started, I knew something was wrong, but I waited. If I’d listened to my body, maybe I wouldn’t have been on such a high stage.” Today, she urges, “Ladies, always check yourselves for symptoms, even if you’re afraid of the outcome.”

Others may delay seeking care for different reasons, including past trauma. Cervivor community member MaShell Moore-Felks shares how being molested as a teen, experiencing years of irregular bleeding, and enduring two miscarriages—including one just a week before her son’s due date—made it difficult to understand her confusing symptoms or recognize their urgency.

“In 2012, I was treated for PCOS. The following year, I was diagnosed with endometriosis and tried various hormonal medications, including pills and the Mirena IUD. In 2015, I had it replaced; in 2017, I had it removed completely. After bleeding for another whole year, I was diagnosed with cervical cancer in 2018,” recalls the Mississippi mother, adding, “Looking back, I believe I was misdiagnosed at several points along the way, and there is more than one responsible party.”

MaShell Moore-Felks
Erica Lopez

Types of Treatments for Gynecologic Cancers

Treatment for gynecologic cancers depends on the cancer type, stage, location, and the patient’s overall health, and fertility goals. They generally fall into three main categories—surgery, radiation therapy, and chemotherapy—and patients often receive a combination of these approaches.

  • Surgery: Surgery, the most common treatment for gynecologic cancers, involves removing cancerous tissue. Options range from fertility-sparing procedures to extensive operations, including:

    • Hysterectomy: The most common non-obstetric surgery in the U.S., with roughly 600,000 performed annually, it can remove the uterus alone or also the cervix, ovaries, and fallopian tubes. While most are done for benign conditions, hysterectomies can be life-saving for uterine cancer and certain cervical cancers.

    • Oophorectomy: A common treatment for ovarian cancer, this surgery removes one or both ovaries and is often performed alongside the removal of the fallopian tubes.

    • Trachelectomy: This fertility-sparing surgery removes the cervix and surrounding tissue while leaving the uterus intact, typically for early-stage cervical cancer.

    • LEEP or Cone Biopsy: For very early-stage cervical cancer, LEEP (Loop Electrosurgical Excision Procedure) and cone biopsy remove precancerous or early cancer cells from the cervix.

    • Debulking Surgery: Common in ovarian cancer, this surgery removes as much tumor as possible before chemotherapy, improving treatment effectiveness.

  • Radiation Therapy: This treatment uses high-energy rays to destroy cancer cells, and can be delivered externally or internally (brachytherapy), placing radioactive sources directly near or inside the tumor. Internal radiation can be intensive—MaShell recalls the “brutal” treatments involving hot “irons” placed inside her pelvis. 

  • Chemotherapy: “Chemo” involves powerful drugs that target cancer cells throughout the body. These drugs may be administered alone or alongside surgery and/or radiation. It can be given before surgery to shrink tumors, after surgery to eliminate remaining cells, or in advanced cancers to control progression.

Shared Health Challenges for Gynecologic Cancer Survivors

Undergoing treatment for gynecologic cancers can be life-saving—but for many survivors, “ringing the bell” after finishing that last treatment marks the beginning of a new chapter filled with lasting physical, emotional, and sexual health challenges. Common concerns include:

  • Surgical Menopause: Hysterectomies can trigger sudden surgical menopause, bringing hot flashes, mood changes, and long-term hormonal effects. Later, many survivors experience natural menopause on top of these changes, which can amplify physical and emotional challenges.
  • Pelvic Health Issues: “Surgery, radiation, and hormone therapy can cause vaginal shortening, tissue tightening, and other pelvic floor issues, which can significantly impact quality of life,” says Dr. Trisha McCulloch, DPT, a pelvic rehabilitation expert with The University of Kansas Health System. Survivors often face:

    • Incontinence and Bowel Changes: Up to 76% of gynecologic cancer survivors experience urinary incontinence, and bowel changes are common—all far higher than in the general population. “Even seven years later, my bladder issues persist,” shares MaShell.

    • Painful Intercourse and Intimacy Difficulties: Nearly 60% of survivors report painful intercourse after treatment. These challenges often compound emotional and relational stress. Read about gynecologic cancer survivors’ setbacks and successes navigating intimacy. 

  • Infertility: Depending on the treatment, fertility can be significantly affected, particularly after hysterectomies, ovarian removal, or aggressive cervical procedures. Learn more about the infertility struggles faced by gynecological cancer survivors who’ve become powerful advocates. 

  • Mental Health Struggles: Depression, anxiety, brain fog, and post-traumatic stress are common among all cancer survivors. Because “below-the-belt” cancers are often stigmatized or kept private, gynecologic cancer survivors may experience intensified isolation, shame, and stress.

    MaShell is candid about her ongoing challenges: “My mental status fluctuates throughout every single day.” For Mechal, who says she’d always wanted children, infertility can trigger difficult emotions during community and family milestones. “Birthdays, graduations, first day of school, and other celebrations can be hard because I don’t have kids,” she shares. Find out how other survivors deal with similar mental health challenges.

Support for Gynecologic Cancer Survivors 

Gynecologic cancers share many similarities—from risk factors and symptoms to treatments and survivorship struggles. The healing journey requires a holistic approach that supports physical, emotional, and social well-being. Strong support networks and resources are vital, and survivors often find ways to reclaim their life, identity, gynecologic health, and vitality through strategies such as:

Finding Your Community

Support networks like Cervivor provide understanding and connection that extend beyond the clinical setting—and that “we get it” experience can make all the difference.

As Erica shares, “Being a part of the Cervivor community helped me understand I wasn’t going through this alone.” For Mechal, engaging with Cervivor and other advocacy groups has been an important part of her healing. “Through the Foundation for Women’s Cancer, Cervivor conferences, HPV awareness events, and Society of Gynecologic Oncology (SGO) patient meetings, I’ve connected with incredible gynecologic cancer survivors whose advocacy inspires me every day.”

To keep the community support, inspiration, and advocacy going, Cervivor is hosting a free webinar—GCAM 2025 Power Hour: Stories, Science & Action—on September 25, 2025, at 7 p.m. EST. Register now to join this unique opportunity to hear personal survivor stories, learn the latest science, and discover ways to take action.

Pelvic Health Therapy 

Dr. Trisha McCulloch

Recovery looks different for every survivor, yet pelvic floor therapy—a type of rehabilitation that strengthens and restores the muscles of the pelvic region—is often overlooked in follow-up care. It can reduce pain and anxiety, improve sexual health, and help survivors regain confidence, fostering greater independence and overall life satisfaction. 

The pace of recovery depends on the aggressiveness of the cancer and the treatments received. Pelvic rehab expert Dr. McCulloch encourages survivors to share their symptoms openly. “Being grateful for survival doesn’t mean you should ignore ongoing challenges or compare yourself to others,” says Dr. McCulloch, who will be part of the expert panel for Cervivor’s upcoming webinar. “Feel empowered to ask questions, communicate your symptoms, and advocate for yourself—not just to survive, but to truly thrive.”

Sharing Your Story 

Telling your gynecologic cancer survivor story creates purpose, connection, and helps break the stigma and silence around these cancers. By speaking up, survivors empower others to seek care, recognize symptoms, and know they’re not alone. Mechal has experienced these benefits firsthand: “As a patient advocate, I’ve seen how powerful personal stories can be in raising awareness, shaping policy, and motivating action.” Submit your Cervivor Story to make an indelible impact—like hundreds already have—and share it with your community. 

Ultimately, a gynecologic cancer diagnosis and treatment don’t have to be faced in silence. By talking openly about symptoms, sharing survivorship experiences, and advocating for comprehensive care—this Gynecologic Cancer Awareness Month and every month—we can protect lives and support the mothers, grandmothers, aunties, sisters, daughters, and friends in our communities.

If you found this blog post helpful, please share it with friends or family members. You may just save a life. Questions? Contact us at [email protected].

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera. The man has dark skin and short, curly black hair. His hair is cut close to his head, with a slight fade at the sides. His eyebrows are thick and well-groomed. He is wearing a blue collared shirt. The shirt is a medium blue color and appears to be made of a lightweight material. It has a relaxed fit and is buttoned up to the top. He is also wearing black-framed glasses. The frames are rectangular in shape and have a subtle curve at the temples. The lenses are clear and do not appear to have any tint or coating. The man is smiling at the camera. His smile is wide and genuine, showing off his white teeth. His eyes are crinkled at the corners, giving him a friendly and approachable appearance. The background of the image is a plain gray color. The gray is a medium tone, neither too light nor too dark. It provides a neutral backdrop that allows the subject to stand out. Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a senior studying Strategic Communications at the University of Kansas. He is currently serving as Cervivor’s Communications Assistant.

Silent No More: Voices Rising for Gynecologic Cancer Awareness Month 2025

This year, over 100,000 people in the U.S. will hear the words: “You have cancer.” For more than 30,000, it will end their life. Gynecologic Cancer Awareness Month (GCAM) 2025 is not just about awareness — it’s about survival, equity, and the power of every story to change what comes next.

September is Gynecologic Cancer Awareness Month. The image highlights the importance of "Below the Belt Cancers" with the phrase "SILENT NO MORE: Below the Belt Cancers Matter!" accompanied by a purple awareness ribbon. Colorful flowers and leaves decorate the corners against a purple background. The image is associated with cervivor, an organization focused on supporting those affected by cervical cancer and other gynecologic cancers.
Join in the movement “Silent No More: Below the Belt Cancers Matter!”

In 2025, this awareness comes at a critical crossroads. Recent policy shifts — including restrictions on sexual and reproductive healthcare — are compounding the barriers people already face in accessing screenings, HPV vaccinations, and lifesaving treatment. Medicaid users, rural populations, and those without robust insurance are being pushed further into the margins, where late-stage diagnoses are more likely. Meanwhile, promising research and innovation in maternal health, contraception, and gynecologic care could change outcomes — but without equity in funding and delivery, many will never see those advances in time.

A Black woman with long, dark hair and highlights is pictured on the left side of the image, wearing a blue sweater and smiling slightly. To the right of the woman is a lavender text box containing a quote about healthcare access. The quote reads: "I was told coverage didn't apply to the test my doctor ordered. If I hadn't pushed, I might not be here today. Access isn't a privilege — it's survival." In the bottom-right corner of the image, there is a logo for "cervivor" with the tagline "informed. empowered. alive."
Kimberly Williams, Chief DEI Officer, Cervivor, Inc.

GCAM 2025 matters now more than ever. Silence is deadly. Stories save lives. And we are united in one mission: to spread awareness about gynecologic cancers so that no voice goes unheard, no symptom goes ignored, and no life is cut short.

Breaking the Silence: The Power of Story

Cancer disrupts lives in profound and lasting ways. Yet every time a survivor shares their experience, they create ripples of hope, comfort, and education for someone else. Stories aren’t just personal — they are community tools for change.

Three people are standing together in front of a wall with blue and white diagonal stripes. The person on the left is Caucasian and has long brown hair and is wearing a white "cervivor" shirt and blue jeans. The middle person is also Caucasian and has short blonde hair, is wearing a teal "cervivor" shirt and blue jeans, and has her arms around the other two. The person on the right is a Black woman who is bald, wearing a black shirt with a graphic that says "MAKING CANCER PAY!" and black pants. An orange text box on the left contains a quote: "When I shared my story, it wasn't just about me. It gave someone else the courage to ask their doctor questions — and that conversation identified pre-cancerous cells that were treated." The cervivor logo with the tagline "informed. empowered. alive." is at the bottom left.
Cervivor School Graduates, Julianna Ferrone, Cindy Trice, and Chanel Cooper

Cervivor’s mission is to amplify these voices so that no person faces gynecologic cancer alone and no warning sign is overlooked.

What You Need to Know: Symptoms & Cancers

Awareness begins with knowledge. Here are the five primary types of gynecologic cancers and their warning signs:

An orange background features a quote in white text that reads: "I dismissed bloating and pain for months. Looking back, I wish I had trusted my instincts sooner. Now I remind everyone: Listen to your body, even if it feels small." Below the quote is the logo for "cervivor" with the tagline "informed. empowered. alive."
  • Cervical Cancer → Abnormal bleeding, pelvic pain. Screened via Pap/HPV test.
  • Ovarian Cancer → Often called the “silent killer” for vague symptoms like bloating, abdominal pain, and urinary issues. No routine screening.
  • Uterine (Endometrial) Cancer → Unusual vaginal bleeding; linked to obesity and hormone factors.
  • Vulvar & Vaginal Cancers → Symptoms may include persistent itching, lumps, or sores. HPV vaccination provides protection.

Dispelling Myths

Misinformation creates dangerous delays. Let’s set the record straight:

  • Young people are not immune. Gynecologic cancers occur at every age.
  • Family history isn’t always the cause. HPV drives many cases.
  • Symptoms aren’t always obvious. Small or subtle changes matter.
  • These cancers can be survivable. Early detection saves lives.
A Caucasian woman with blonde hair and a warm smile is shown on the right side of the image, wearing a black blazer over a cream-colored top and adorned with a necklace and a teal ribbon pin. On the left side, against a periwinkle blue background, a quote in white text reads: "I WAS TOLD I WAS TOO YOUNG FOR CANCER. THAT FALSE REASSURANCE DELAYED MY DIAGNOSIS. NOBODY SHOULD BE DISMISSED WHEN THEIR HEALTH IS AT RISK." At the bottom left, the logo for "cervivor" appears with the tagline "informed. empowered. alive."
Cervivor Community Member, Athena Porter

Health Starts with Self-Care

Health is more than surviving disease; it is thriving in body, mind, and community. This holistic approach to wellness recognizes that our overall health is influenced by a complex interplay of factors, including our physical health, mental well-being, and social connections. By focusing on nurturing these different aspects of our lives, we can cultivate a deeper sense of vitality and resilience that goes beyond just avoiding illness. These five habits can make a difference:

  1. Keep your checkups. Prevention saves lives.
  2. Eat to support your health. Balance matters.
  3. Move your body in ways that work for you.
  4. Prioritize rest and recovery.
  5. Stay hydrated — it’s simple but powerful.
Pam Akers, a cervical cancer survivor from 2016, Cervivor School graduate, and 2025 Cervivor Champion, is featured in the Cervivor Spotlight. A photo shows Pam speaking at a podium with the Cervical Cancer Summit logo during an event with an American flag in the background. A quote from Pam reads, "For years I put everyone else first. Cancer showed me my health had to matter too. Self-care isn't selfish — it's essential." The image includes the Cervivor logo with the tagline "informed. empowered. alive."

Cervivor Ambassador, Pam Akers speaking at the 2025 Cervical Cancer Summit Powered by Cervivor, Inc.

Join our private Facebook community, Survivor Slimdown, where cancer survivors support and empower each other on their journey to a healthier, happier life beyond cancer. Share your story, get motivation, and connect with others who understand the unique challenges and triumphs of survivorship.

Advocacy and Action: Your Role in GCAM 2025

Cervivor is an organization driven by a profound commitment to making a difference in the lives of those affected by cervical cancer. Grounded in a deep understanding of the complexities and challenges surrounding this disease, Cervivor’s mission is built upon a foundation of support, education, and advocacy. This foundation is crucial in fostering an environment where survivors, caregivers, and allies can find support, resources, and a community with a collective voice to push for change. Cervivor’s purpose encompasses various initiatives and efforts that blend and create a comprehensive approach to addressing cancer. This purpose is encapsulated in three core pillars:

A bi-racial woman with blue hair and glasses stands smiling against a teal background on the right side of the image. On the left side, against a purple background, is a quote in white text that reads, "I speak up because my story may be the reason someone gets screened. That's how awareness becomes action." Below the quote is the logo for "cervivor" with the tagline "informed. empowered. alive."
  • Support and Empowerment → Safe spaces for survivors, caregivers, and allies.
  • Education and Awareness → Stories, resources, and campaigns that inform.
  • Advocacy for Equity → Advancing HPV vaccination, screening, and policy change so that access is a right, not a privilege.

Cervivor Ambassador, Christy Chambers

How to Get Involved

  • Wear your cancer colors to spark conversations.
  • Share your story on social media using Cervivor’s templates.
  • Educate your circle — share graphics, host conversations.
  • Join or host a meet-up to build local connections.
  • Contact media to elevate survivor voices.
  • Partner with Cervivor — every supporter helps push awareness forward.

Breaking Stigma, Embracing Diversity

Disparities remain stark. Communities of color, rural populations, and LGBTQ+ individuals face disproportionate risk and poorer outcomes. Cervivor is committed to equity: uplifting diverse voices, offering culturally competent resources, and ensuring language access so that every person can protect their health.

Three women (a Black woman, a Caucasian woman, and an Asian woman )are seated in chairs on a stage, engaged in a discussion. The woman on the right is holding a microphone and appears to be speaking. A quote overlay reads, "Representation matters. When I saw someone like me speaking out, I knew I wasn't alone." At the bottom of the image, the logo for "cervivor" is displayed with the tagline "informed. empowered. alive." The image has an orange-brown tint.
Cervical Cancer Survivors, Kimberly Williams, Aisha McClellan, and Arlene Simpson share their stories at the 2025 Cervical Cancer Summit Powered by Cervivor, Inc.

Looking Ahead: A Healthier Future

GCAM isn’t just a month on the calendar; it’s a catalyst for lasting awareness and change. Together, by sharing knowledge, building community, and standing united in one mission, we move closer to a future where:

  • Gynecologic cancers are rare.
  • Survivors thrive.
  • Every voice is heard and valued.

This September, own your story, spread awareness, and help Cervivor lead the way to a healthier, more informed world.

Cervical Cancer Prevention Starts Here: HPV Vaccine Facts You Can Trust

By Kyle Minnis, Cervivor Communications Assistant

The United States, along with much of the world, is at a pivotal moment in cancer prevention. Various studies show that use of the human papillomavirus (HPV) vaccine—which can prevent over 90% of HPV-related cancers, including cervical cancer—is falling. If the trend continues, more children and families will face potentially life-threatening cancer diagnoses that could be avoided. 

The numbers speak for themselves: According to the Centers for Disease Control’s (CDC) most recent National Immunization Survey, only 78% of U.S. adolescents aged 13 to 17 have received at least one dose of the HPV vaccine, and fewer than 63% are up to date on the full series. This is significantly below the national Healthy People 2030 goal of 80% two-dose completion among adolescents aged 13 to 15. Recent data suggests the pandemic has widened gaps in vaccine uptake and fueled vaccine hesitancy.

Globally, approximately 31% of eligible girls have received at least one dose, though the percentage fully completing the recommended series falls well short of the World Health Organization (WHO) cervical cancer elimination target of 90% completion by age 15. The disease still claims the lives of nearly 400,000 people with a cervix worldwide each year.

As vaccine misinformation floods social media, parents and young adults encounter more conflicting messages than ever. Meanwhile, research infrastructure is under threat. In March 2025, the National Institutes of Health (NIH) terminated all funded research on vaccine hesitancy and uptake, telling scientists: “This award no longer effectuates agency priorities.” 

“Watching the headlines and talking to experts in the field, we know this is a critical time,” says cervical cancer survivor Tamika Felder, Cervivor’s Founder and Chief Visionary and co-chair of the American Cancer Society’s National HPV Vaccination Roundtable. “Respected scientists are being dismissed. Research is being defunded. ‘Vaccine’ has become an even more loaded word. And decades of hard-earned progress are at risk.” 

Cervivor Founder Tamika (center) addresses the audience at the 2025 National HPV Conference, a key gathering for leaders in HPV prevention.

For Cervivor Ambassador Zuli Garcia, who will mark her second cancer-versary this November, the issue is deeply personal. As a 2024 Cervivor School graduate and founder of Knock and Drop Iowa, she advocates for underserved families who often face barriers to timely HPV cancer prevention. “I’m living proof of what happens when access comes too late,” says Zuli, who was diagnosed at age 47. “The HPV vaccine represents hope, protection, and equity.”

To cut through the noise and offer clear, trustworthy HPV vaccine facts during National Immunization Awareness Month (NIAM), we’ve gathered insights from survivors and leading experts. What follows is a breakdown of the most essential information about the HPV vaccine—and why it’s needed to protect future generations from preventable cancers.

Why HPV Vaccination Matters More Than Ever

Every major health authority agrees: The HPV vaccine saves lives from cervical cancer and five other HPV-related cancers—including anal, throat, penile, vaginal, and vulvar cancers. Among teen girls, infections with the HPV types that cause most cancers have dropped by 88%, while infections among young women have dropped by 81%, according to a 2024 CDC report. Additionally, among vaccinated women, cervical precancers caused by high-risk HPV types have declined by 40%, with some studies showing up to 80% reductions in high-grade lesions among those vaccinated early.

In countries like Australia and Sweden—thanks to widespread vaccination and strong screening programs—HPV is close to being eliminated as a cause of cervical cancer. 

Dr. Heather Brandt

Dr. Heather Brandt, director of the HPV Cancer Prevention Program at St. Jude Children’s Research Hospital, stresses both the progress made and the work still ahead. “Here we are after almost 20 years of the vaccination being available and still working to make sure people understand how HPV vaccination protects against these diseases,” she says. She recalls feeling “such excitement” at the 2002 International Papillomavirus Conference when early trial results showed the vaccine could prevent HPV-related diseases, pre-cancers, cancers, genital warts, and even recurrent respiratory papillomatosis.

Today, after more than 15 years and over 500 million doses given worldwide, the vaccine’s safety record remains excellent. Serious side effects are extremely rare, and most reactions are mild, such as temporary soreness or fever. Real-world studies confirm that protection lasts at least 12 years—and likely much longer.

Who Should Get the HPV Vaccine and When?

Everyone—regardless of gender—should get the HPV vaccine. Here are the latest immunization guidelines: 

  • The ideal time to start is between ages 11 and 12, though it can be given as early as age 9 for maximum protection. 
  • If the first dose is given before age 15, only two doses are needed. 
  • For those starting later or who are immunocompromised, a three-dose series is recommended. 
  • Catch-up vaccination is advised through age 26, and adults up to age 45 may still benefit based on individual risk and guidance from their healthcare provider.

The following infographic provides additional information on when and why the vaccine is so important for saving lives from preventable cancers.

While insurance coverage for older teens and adults varies, several states—including Washington D.C., Virginia, Rhode Island, and Hawaii, plus Puerto Rico—have implemented school-entry requirements for the HPV vaccine. These policies significantly boost community-wide protection.

“HPV affects everyone—men and women—and the vaccine is about cancer prevention, not lifestyle choices,” says a spokesperson from Vaccinate Your Family, an organization dedicated to raising awareness about timely immunizations. Its current #FirstDayVax campaign aligns with CDC recommendations to bundle the HPV vaccine with other routine back-to-school shots, like Tdap and meningitis. 

Common HPV Vaccine Myths—and How to Address Them

Across the U.S.—especially in rural and conservative communities—misinformation and stigma are stalling progress. Rising non-medical exemptions, often fueled by online disinformation, threaten decades of gains for all vaccines, not just HPV. Without research and infrastructure support, public health programs are left without the tools they need to respond.

Kellie DeFelice

As Vaccinate Your Family warns: “Parents are increasingly exposed to false vaccine claims online, where algorithms and bots amplify misleading content and make anti-vaccine rhetoric appear as credible as scientific consensus.” 

Even parents who support vaccines can be swayed. Kellie Defelice, a Cervivor Ambassador, shares: “I was very pro-vaccine. But after reading a story online, I hesitated and turned down the HPV vaccine for my daughter. I regretted that decision when I was diagnosed with cervical cancer.” Her hope for fellow moms: “They see that I’m the real face of what HPV does—it isn’t just an STI. I risked my daughter getting a cancer that has destroyed so much for me.”

Other common myths include:

  • “The HPV vaccine is just for girls.” In fact, HPV affects everyone. Anal cancer rates in both men and women have been rising, with new cases increasing by about 2.2% per year over the past decade, according to the American Cancer Society. While men may not get cervical cancer, they can still contract and spread high-risk HPV strains.
  • “The vaccine encourages promiscuity.” Zuli explains that some parents worry the vaccine is a “permission slip for sex.” But as Vaccinate Your Family counters, “Vaccination does not change behavior—it simply protects against cancer-causing infections.”
  • “The vaccine isn’t necessary until kids are sexually active.” In reality, the vaccine works best before HPV exposure, which is why health organizations now recommend it for children as young as 9 years old.

How to Get Back on Track with HPV Vaccination Targets

Survivors and experts are pushing back against misinformation with evidence, stories, and culturally relevant outreach. Zuli says: “As a survivor, I’ll keep raising my voice until every child, every family, and every community has access to this protection.”

A review of nearly 60 studies conducted between 2006 and 2019 found that strong provider recommendations are among the most important—if not the most important—drivers of vaccine uptake, underscoring the need to equip health professionals with confidence and clarity in vaccine conversations.

Community partnerships also make a difference. In Memphis, the St. Jude HPV Cancer Prevention Program helped boost county vaccination rates by 19%, outpacing national averages. In Iowa, Zuli’s team at Knock and Drop Iowa combines bilingual education with on-site vaccinations—reaching 23 people in a single afternoon, she reports. “Meeting people where they are is what works,” Zuli explains. “Education first, vaccines immediately after, in a trusted setting.”

Cervivor Ambassador Zuli Garcia hosts an HPV vaccine outreach event in her home state of Iowa.

Vaccinate Your Family echoes this approach: “Conversations about vaccines should always start with empathy, not judgment. Questions about safety, side effects, or the need for certain vaccines are natural—and families should look to trusted, science-based sources.”

St. Jude’s Dr. Brandt highlights new “compelling” research: “Through our work…we have been discussing the implications of possible changes to the dosing schedule with partners. I know all of us are incredibly excited about the prospect of moving to a single dose in the U.S.”

She also offers caution: “We previously leaned in on the rigor of the FDA-approval processes for childhood vaccinations and then review by the Advisory Committee on Immunization Practices. Key changes to these entities may call into question the science. Changes in dosing with any gaps in evidence become fodder for purveyors of misinformation.”

Ultimately, cancer prevention shouldn’t be controversial—it should be celebrated. By recommitting to science, survivor voices, and trusted outreach, we can ensure every person has the chance to thrive, free from preventable cancers.

If you found this blog post helpful, please share it with friends or family members of recommended vaccination age. You may just save a life. 

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera. The man has dark skin and short, curly black hair. His hair is cut close to his head, with a slight fade at the sides. His eyebrows are thick and well-groomed. He is wearing a blue collared shirt. The shirt is a medium blue color and appears to be made of a lightweight material. It has a relaxed fit and is buttoned up to the top. He is also wearing black-framed glasses. The frames are rectangular in shape and have a subtle curve at the temples. The lenses are clear and do not appear to have any tint or coating. The man is smiling at the camera. His smile is wide and genuine, showing off his white teeth. His eyes are crinkled at the corners, giving him a friendly and approachable appearance. The background of the image is a plain gray color. The gray is a medium tone, neither too light nor too dark. It provides a neutral backdrop that allows the subject to stand out. Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a senior studying Strategic Communications at the University of Kansas. He is currently serving as Cervivor’s Communications Assistant.

Hot Off the Press! Cervivor and Patient Resource’s New Cervical Cancer Guide

What’s filled with practical tips, inspiring stories, and essential information for newly diagnosed cervical cancer patients—and features the Cervivor community throughout?

Drum roll, please…

It’s the brand-new Patient Resource magazine, published in partnership with Cervivor, Inc. and supported by Pfizer.

The image is a cover for a free patient resource guide about cervical cancer, published by Patient Resource in partnership with Cervivor, Inc.. It features a Black woman with long black hair, a warm and inviting smile, leaning on a railing, with a title "CERVICAL CANCER" and subtitle "A Guide for Patients and their Families". The image conveys hope and empowerment, with a blurred background and bright colors.

From the cover story spotlighting Cervivor Founder and Chief Visionary Tamika Felder to easy-to-understand infographics; useful charts on cancer staging, treatment side effects, and patient resources; and thoughtful guidance on emotional wellness, survivorship, caregiver support, and more—this edition is a must-read for anyone navigating the cervical cancer journey, as well as for loved ones walking alongside them.

Available for free in doctor’s offices, cancer centers, and clinics nationwide, the guide also features:

Can’t wait to read it? You can also download the full digital edition and read it cover to cover right now.

This collaboration underscores how vital partnerships are in expanding our reach and delivering life-saving education and support. Huge thanks to Patient Resource and their top-notch team for helping bring this vision to life!

How You Can Support Cervivor’s Mission

The image is a flyer for Cervivor, an organization dedicated to ending cervical cancer. The flyer features a group of women wearing blue shirts with the word "Cervivor" printed on them, seated on a staircase. The title "EVERY CERVIX MATTERS" is prominently displayed, along with the website cervivor.org. A blue banner in the middle section reads, "NO MORE FEAR. NO MORE SHAME. NO MORE SUFFERING. NO MORE LIVES LOST." Below this, it states "cervivor IS HERE!" followed by "We are your support. We are your advocates. We are the faces of cervical cancer." The bottom section includes a circular photo of Gwendolyn Jackson, a cervical cancer patient and Cervivor ambassador, with a quote about her experience with the organization. To the right, a section titled "About Cervivor" provides information about the organization's founding and mission. The flyer also includes social media handles and contact information at the bottom, along with the tagline "Stay in Touch With Us!" The background of the flyer is white, with blue accents throughout. Overall, the flyer effectively conveys Cervivor's mission and message through a clear and concise design.
Join the movement to end cervical cancer
  • Order Your Guide: Get your free print copy of the Patient Resource cervical cancer guide to arm yourself and your loved ones with knowledge.
  • Share Your Story: Your voice has power. Connect with us and share your experience to inspire and educate others.
  • Support Our Mission: Every contribution helps us continue our vital work in awareness, education, and support.
  • Stay Connected: Follow us on social media, sign up for our newsletter, or subscribe to our podcast to stay informed and engaged. 

United in purpose, we can make cervical cancer a thing of the past, empowering a future where everyone with a cervix can live free from this disease. 

Reprinted with permission from Patient Resource LLC. © Patient Resource LLC 2025

Every Cervix Matters: LGBTQIA+ Voices in the Fight Against Cervical Cancer

For queer and trans people facing cervical cancer, the challenges go far beyond the diagnosis. They’re compounded by systemic bias, stigma, and a long history of being overlooked or mistreated in healthcare. These barriers are only growing amid ongoing threats to LGBTQIA+ health equity. (Learn more about these challenges—and the work to overcome them—in part two of our Pride Month series. Stay tuned for Monday).

As Dr. Scout, a trans man and Executive Director of the National LGBT Cancer Network, explains, “It’s getting more dangerous to be openly queer in this country right now.” For many, staying safe means staying silent, often at the cost of their health. 

That’s why this Pride Month, Cervivor is proud to uplift the voices of Karen North, Anjelica Butcher, Gilma Pereda, and Pixie Bruner—members of our community whose experiences reveal both the challenges and courage of queer cervical cancer survivors. Their stories remind us that behind every statistic is a person who deserves to be seen, heard, and cared for.

Challenging Assumptions: Karen’s Advocacy

Karen, a former nurse from Liberty, Missouri, lives with her longtime partner, who shares the same first name, Karen “Murph” Murphy. Their relationship grew gradually after Karen’s 10-year marriage ended in 2001—a union that brought her a son, Matthew, and helped her recognize her identity as a lesbian. But fear of judgment lingered. “When I was still dealing with custody issues,” she recalls, “I’d deny my relationship with Murph in public if I had to.”

Karen North

By the time she was diagnosed with breast cancer—and then cervical cancer 18 months later in January 2016—Karen had stopped worrying about court rulings or public opinion. Instead, she leaned on her medical background to stay focused on treatment, not judgment. “I didn’t care what anyone thought. If I felt judged, I’d call it out and find another provider,” she says, adding with a laugh, “I can be a KAREN, in all caps, if I need to be.”

Karen discovered Cervivor in 2017, but it was Cervivor School in 2019 that truly “lit a fire” in her. Today, she leads the Cervivor Pride group and is a vocal advocate for inclusive language. “One of my biggest pet peeves is when people assume everyone with a cervix identifies as a woman,” says Karen.

Conversations with her transgender friend Zeke—who navigates gynecological care as a male-identifying person—have shaped her approach. Karen now avoids euphemisms like “coochie cancer,” opting instead for medical terms or inclusive phrases like “below-the-belt cancer,” which more accurately encompass HPV-related cancers, including cervical, vaginal, vulvar, penile, and anal.

And she credits her Every Cervix Matters hoodie for sparking meaningful dialogue. “A woman came up to me at a restaurant and said, ‘That’s great. Every cervix does matter.’ I got goosebumps,” Karen recalls. “It doesn’t center gender—it centers anatomy and health.”

Transforming Trauma: Gilma’s Awakening

Cervivor Ambassador Gilma, a graphic designer in California, echoes Karen’s message: “It’s called the human papillomavirus—not the women’s papillomavirus,” she emphasizes. “It doesn’t matter your sexual orientation or your gender.” 

This perspective led her to vaccinate her then-12-year-old child—now a trans woman—shortly after her cervical cancer diagnosis in 2016. “At her annual checkup, the doctor mentioned the vaccine could prevent cervical cancer,” Gilma recalls. “I said, ‘I don’t care if it’s for girls or boys—whatever it is, my child needs it.’”

Gilma Pereda

Gilma’s cervical cancer journey unfolded alongside a profound personal awakening. Raised in a traditional Catholic household in 1970s Mexico, she followed expected norms—marrying and having a child—despite always feeling “different.” After divorcing at 36 and supporting her child through gender exploration, she began to reflect on her own identity. “Cervical cancer changes your sexual life—a lot. So I stopped worrying about that,” she says. “But it gave me the freedom to express my gender differently.”

A metastatic recurrence at 47, which led her to shave her head after a lifetime of long hair, marked a turning point. “I’ve seen so many women devastated by hair loss—hair carries so much of our identity,” she says. “But for me, I was so happy.” Soon after, she came out to her parents. “I was done trying to fit a mold. Now, I feel comfortable being androgynous.”

Gilma’s advocacy stems from a deeply traumatic experience. During a painful, anesthesia-free cryotherapy procedure to remove precancerous cervical cells, a doctor’s inappropriate touch triggered memories of childhood sexual abuse, causing her to delay treatment for a year. “By that time, it was cancer,” she states.

She credits Cervivor—and years of advocacy training and witnessing other survivors doing “very, very difficult things”—with helping her transform that pain into purpose. Gilma has since shared her story in Spanish-language publications and on a bilingual panel addressing sexual abuse in medical settings, an issue that disproportionately affects her community. “I don’t like the spotlight,” she confides. “But I’ll do it again and again to help prevent this from happening to others.”

Confronting Disparities: Anjelica’s Fight

Anjelica, a small business and nonprofit owner in Baltimore, faced her cervical cancer diagnosis already carrying the weight of multiple identities: Black, queer, caregiver—and often the only one like her in the room. “My cultural background gave me strength and resilience,” she says, “but it also came with silence around topics like sexuality and cancer.”

She quickly saw how deeply healthcare disparities run. “I thought I had great insurance—until I found out it didn’t qualify as catastrophic coverage,” she recalls. Denied care for over a month, she had to pay out-of-pocket to start treatment. “It broke my heart realizing the only reason I made it through was because I could afford to. What happens to the people who can’t?”

Anjelica Butcher

For Anjelica, who’s identified as queer since age 13, her cervical cancer diagnosis also brought a realization that “hit hard.” “I was never offered the HPV vaccine—likely because of assumptions about my sexuality,” she shares, referencing persistent stigma and misinformation that overlook how HPV is transmitted: through intimate skin-to-skin contact, not just penetrative sex.

While most of her care team was respectful, certain invasive treatments—like internal radiation—left her feeling unseen and violated. Although the plan was eventually adjusted, the damage had already been done. One provider, referred by her primary doctor, made a lasting difference. “They taught me how to advocate for myself as a Black woman. Most people don’t know how, and it shouldn’t fall solely on us.”

Her support system—her mom, dad, partner, and chosen family—kept her grounded. And with help from a “phenomenal” oncological therapist, she began processing the emotional toll that surfaced after remission. “I didn’t realize how badly I needed community until then.”

Now active in Cervivor and the Ulman Foundation, supporting young adults impacted by cancer, Anjelica shows up in survivor spaces not to seek answers, but to offer hope. “Healing is possible. Remission doesn’t mean going back—it can mean becoming someone even stronger.”

Poetic Resilience: Pixie’s Voice

Pixie, a poet and Cervivor Ambassador from Snellville, Georgia, knows firsthand how gaps in care impact LGBTQIA+ communities. At 26, she was treated for cervical dysplasia, but not tested for HPV. “I wish I had known then what I know now,” she says.

Living with Ehlers-Danlos syndrome and type 1 diabetes, Pixie had always been vigilant about her health. So when she was diagnosed with cervical cancer at 50—with no symptoms—it came as a shock. “I felt numb, contaminated,” she recalls, struggling with the stigma of an STI-related cancer. She underwent a radical hysterectomy and bilateral oophorectomy. “It was basically the ‘Everything must go! Going out of business sale’ surgery,” she’s described.

Pixie Bruner

Living in rural Georgia, Pixie chose not to disclose her sexual orientation. “When I asked a nurse, ‘What do you define as sex here?’ the answer didn’t reflect my lived experience,” she says. After treatment, a conservative therapist dismissed her concerns about sexuality and body image. “I was reduced to parts—told they were irrelevant because of chemopause and their loss. That I should be grateful to be single. But I was still a sexual being, still human,” she says. “I fired that therapist.” 

Cervivor became her lifeline—offering connection, care packages, and space to heal. Her “fairy godmothers,” a married couple, delivered warm meals and encouragement. “Friends are my chosen family and were with me during the long recovery,” she says.

Today, she advocates for inclusive HPV education through Cervivor’s LGBTQIA+ community, and her award-winning poetry—including “Her Kind” and “Medusa With Cancer”—explores how illness reshapes identity. “Cervical cancer took ‘femininity’ and gender away from me in some ways,” she writes. “But my words helped give something back.” 

A Call to Action for Equitable Care

While Karen, Gilma, Anjelica, and Pixie each have unique stories, they share a common goal: a more just and inclusive future.

“I want a world where cervical cancer isn’t common,” says Pixie. “Where HPV vaccination is standard, no one is judged for having the ‘wrong’ cancer, self-care is valued, and early detection is affordable and accessible.”

At Cervivor, that vision means making space for everyone. As Community Engagement Liaison Morgan Newman, MSW, shares: “We stand with our cervical cancer community to demand protection and empowerment through prevention. As someone who’s faced this disease, I know the power of vaccines and the importance of accessible healthcare.”

Cervivor Ambassadors, Ann Marie Hartung and Kellie Defelice, tabling at a Pride event in Massachusetts.

If you or someone you know is part of the LGBTQIA+ community and impacted by cervical cancer, join the Cervivor Pride group (for more information, contact Karen), attend Creating Connections virtual meetups, or take part in local or national outreach.

Support Cervivor’s mission to end cervical cancer by contributing to the ongoing Tell 20, Give 20 awareness and fundraising campaign—honoring 20 years of advocacy, education, and survivorship.

Thriving, Not Just Surviving: Inspiring Stories from Cervical Cancer Survivors

For many cervical cancer survivors, healing goes beyond remission, often leading to advocacy that raises awareness and offers strength. Here, Cervivor community members and cervical cancer advocates Christy Basa Chambers, Athena Porter, and Lorie Wallace share personal reflections on how their journey with cervical cancer has helped them thrive — not just survive.

If you’re in need of a pick-me-up, read on!

Christy’s Story: Living Her ‘Dash’

About Christy: An 18-month Stage IV cervical cancer survivor, Christy Basa Chambers lives in Monroe, NC, with her family. She’s a Cervivor Ambassador, 2023 Cervivor School graduate, and winner of the 2024 Brittany Wagner Social Media Advocacy Award.

This image shows cervical cancer survivor, Christy, who is from North Carolina. She has teal hair and glasses with a ruffled white shirt.
Christy Basa Chambers (photo by Molly Dockery Photography)

“I was given a second chance at living.”

When I first wrote that phrase in a blog post, I paused. Was it “a second chance at life,” or did I really mean living? Are they different? I think they are. Life is the span of time we are given, but living is what we do with that time.

The distinction became clear after my diagnosis of Stage IV metastatic cervical cancer. Facing my mortality forced me to ask hard questions: How would I be remembered? What legacy would I leave? These questions didn’t just make me reflect on my past; they became a wake-up call to reevaluate my present. Survival wasn’t enough for me — I wanted to thrive.

But thriving didn’t happen overnight. It was a choice I made every day, even when it felt impossible. I had to face my fears and let go of what didn’t serve me.

Now, I’m living my “dash.” What’s a dash? It’s that little line between the dates of our birth and death. It’s small, yet so powerful, because it represents everything we do while we’re here. Cancer taught me to live my dash with intention — to focus on love, kindness, generosity, and joy.

Advocacy has been one of the most transformative ways I’ve chosen to live my dash. As a Cervivor Ambassador, I’ve found healing through helping others. Sharing my story and empowering others to share theirs has given me a sense of purpose and a way to leave an impact.

Who am I? A Cervivor, a thriver, and an opti-mystic who sees the world through the eyes of possibility. That’s the legacy I want to leave.

Athena’s Story: Overcoming Survivor’s Guilt

About Athena: Athena Porter was diagnosed with cervical cancer in 2023. She lives in Iowa with her husband and two little girls. Since her diagnosis, Athena has served on a panel at the 2024 Cervical Cancer Summit and continues to advocate for cervical cancer awareness and prevention.

Athena Porter

To call myself a “cervical cancer survivor” used to feel like a fraud. My cancer was caught early, and my treatment was a radical hysterectomy. Diagnosed after having two children, I was spared the devastation of infertility and the physical toll of chemo, radiation, or brachytherapy. I got to keep my hair.

In contrast, many of the women in the Cervivor community I’ve been blessed to meet since my diagnosis have endured grueling treatments. They’ve shaved their heads, relocated for care, lost their fertility, and dealt with the lingering effects of treatment-induced trauma. Despite facing anxiety, depression, pain, and significant physical challenges, they continue to persevere and advocate for those without a voice. I am honored to know these women. Their strength, passion, and unwavering light inspire me.

Still, survivor’s guilt is real. My experience feels minimal in comparison because I “only” needed surgery to remove my cancer. Thankfully, the incredible women I admire have reminded me that it wasn’t “just” surgery or “just” stage 1A cancer. They’ve encouraged and supported me, helping me embrace my journey as valid. Their support has been instrumental in helping me thrive, not just survive.

I’ve been given a platform to advocate not only for those impacted by cervical cancer but also for its prevention. My hysterectomy was radical and represented the best-case treatment scenario for me, but the true best-case scenario is no cancer at all. Supporting the HPV vaccine, promoting early screenings, and advocating for proper treatment is the least I can do for all the women battling cervical cancer.

Lorie’s Story: Never Giving Up

About Lorie: Lorie Wallace, a Detroit resident, was diagnosed with invasive cervical adenocarcinoma in 2017. She underwent surgery, radiation, and chemotherapy, and later developed radiation-induced lumbosacral plexopathy (RILP), a debilitating condition with no cure. Today, as a Cervivor Ambassador and 2022 Cervivor Champion, she inspires others with her resilience.

This image shows Lorie, a cervical cancer survivor from Michigan wearing a black "Making Cancer Pay" t-shirt. She has blonde hair, blue eyes, and brownish pink lipstick.
Lorie Wallace during Cervivor School 2022

Sometimes, I wait until I’m alone to scream at the injustice of it all. But I refuse to let cervical cancer or my radiation-induced lumbosacral plexopathy (RILP) define me.  

I’ve learned that while I can’t control everything, everything cannot control me. I’ve found ways to adapt and thrive, not just survive. I’ve focused on strengthening the muscles not affected by plexopathy, embraced the support of my cane, and let go of the stigma I once felt about using a disabled parking pass. Learning to give myself grace and to see these tools not as symbols of weakness but of perseverance has been a profound part of my journey.

Through advocacy, I’ve reclaimed my purpose. As a Cervivor Ambassador, a cancer support coach, and a mentor with organizations like Imerman Angels, I use my voice to help others navigate life after cancer. This work has been as healing for me as it has been impactful for others. I’ve discovered that purpose can emerge even from the darkest times.

For me, advocacy is more than action — it’s a declaration: I am still here, I am still fighting, and I will never give up.

Interested in Patient Advocacy?

Christy, Athena, and Lorie’s stories show that surviving cancer is only the beginning. By turning their experiences into cervical cancer patient advocacy, they’ve found healing, hope, and a way to thrive. You can make a difference too! 

Here’s how you can get involved with Cervivor advocacy:

  • Attend Cervivor School: Gain training to become a leader in cervical cancer advocacy. Sign up to receive the latest updates!
  • Support Through Donations: Help fund programs that empower survivors.
  • Raise Awareness: Promote cervical cancer prevention and survivorship.

Together, we can thrive, not just survive — and make a difference! 

In Loving Memory of Doris Helene White Soares

It is with profound sadness that we share the passing of Doris Helene White Soares, a devoted wife, mother, friend, and tireless advocate. Doris faced a long journey with synchronous cervical and uterine cancers with incredible determination, leaving behind a legacy of courage, resilience, and advocacy that will continue to inspire all of us.

“I had the distinct honor of interviewing Doris—whom I fondly referred to as “Miss Doris”—on an episode of the Cervivor Podcast. In that conversation, she shared her experience of being diagnosed with cancer later in life, and how she never stopped using her voice to break the stigma surrounding the disease,” shared Joslyn Chaiprasert-Paguio, Cervivor Ambassador and Podcast Host.

Doris reflected on her diagnosis during their interview, recalling how it came unexpectedly. “Who knew that my cervix would act up during the same year in which I qualified for Medicare?” she shared. “Cervical malignancies were for younger, pre-menopausal women, right?” She voiced her frustration with the stigma surrounding HPV and its connection to cervical cancer, challenging the harmful notion that cancer should be a source of shame. Doris refused to remain silent. She boldly declared in an email to Joslyn, “This middle-aged wife and Nana has absolutely no intention of shouldering the stigma, and I suggest you don’t either. Our cells may betray us, but we can find power in knowledge, support, and self-awareness.”

Doris was a passionate advocate who regularly attended support group meetings including our monthly Creating Connections and quarterly Cervivor Noir MeetUps. She candidly shared her journey and encouraged others to do the same. Though petite in stature, Doris’s presence was enormous in her dedication, kindness, and support. It’s no surprise that so many in our community often wished they could embody even a fraction of the grace and composure that Doris so effortlessly extended to everyone she met.

A gathering of the Cervivor Noir virtual support group to bring together cervical cancer patients and survivors who identify as African American and/or Black.

Her advocacy extended far beyond her own journey. Doris was steadfast in her commitment to encourage others, always urging those in the various support groups she attended to share their stories and lift one another up. Her poise, generosity, and unshakable commitment to fighting cervical cancer and dispelling stigma inspired everyone she encountered. Her legacy of advocacy and compassion will continue to guide others facing similar challenges.

Doris’s presence was a symbol of hope and encouragement, and she leaves behind a profound impact on all who knew her.

Yvette Torres reflected on Doris’s influence: “In the Creating Connections Zooms, I got to know Doris through her openness about her story and cancer journey. She inspired me with her strength and dedication to advocacy in her later years. Despite her health struggles, Doris had such a zest for life and appreciation for each day given to her. I will miss seeing her on Zoom and hearing her voice and laugh.”

A group photo captured of the Creating Connections monthly virtual support group held in early 2023.

Christy Chambers, who admired Doris’s grace, shared: “Doris was the epitome of grit and grace! She embraced her cancer journey, and under immense pressure (working, parenting, 2 different cancers, etc.) created an amazing legacy that we can all admire. We were blessed to experience the freedom she felt when she lost her hair – ‘wash and go,’ she said! We laughed at the stories she told of shocked church members who wondered how she could have a gynecological cancer. We were humbled when she cautioned us to slow down and rest. Like a pearl, her iridescent spirit will shine on through her family, her writing, and through those of us who had the opportunity to be in her world.”

Gwendolyn Jackson shared a heartfelt memory of Doris: “Though Mrs. Doris has passed, her warm greeting of ‘Good Morning, Beautiful Lady’ will forever echo in my heart. Her kindness and light will be missed, but her words will always remind me of the beauty she saw in me, and in the world.”

As we celebrate the life and legacy of Doris, we invite you to share your cherished memories of her and reflect on the ways she inspired you. Take a moment to revisit Miss Doris’s heartfelt writings, where she shared her wisdom and insights:

Pictured to the left is one of Doris’s handwritten journal entries.

These personal essays offer a glimpse into her spirit and continue to inspire us. We welcome you to read, share, and remember Doris’s impact on your life.

Introducing the Limited-Edition Cervivor Auntie Squad Tee

We are excited to announce the launch of our limited-edition Cervivor Auntie Squad T-shirts and hoodies! These stylish tops go beyond fashion — they support a meaningful mission to assist cervical cancer survivors on their journey to parenthood. Your purchase not only spreads awareness but directly contributes to the cause.

So, what is a Cervivor Auntie? Let’s go back to where it all began.

The Story of the Cervivor Baby

During an online seminar hosted by Cervivor in April 2020, founder Tamika Felder met fellow cervical cancer survivor Ginny Marable. Ginny, 36, listened as Felder spoke about “burying” her hope of having kids after undergoing cervical cancer treatment in her twenties. “I was very moved by Tamika’s story,” says Ginny, a human resources director in Oregon. “Tamika’s fertility options were limited, and she had to make a difficult decision.”

Tamika Felder and her husband, Rocky Campbell
Ginny Marable and her husband, Sean, and their twins

Three years earlier, before her cancer treatments began, Ginny and her husband Sean were determined to preserve their chances of having children and froze several embryos. When they were blessed with twin boys in March 2021 through a gestational carrier, they felt like their family was complete, but they had four embryos left. Ginny thought back on Tamika’s powerful words that day and came up with a solution: She and Sean offered the remaining embryos to Tamika and her husband Rocky, a selfless gesture that made Tamika’s dream of becoming a mother possible.

“It was the most personal and beautiful gift I’ve ever been given,” says Tamika, who was also supported by the generosity of then-strangers, including fertility specialists who provided pro-bono services. (Read more about Tamika’s fertility journey and team in People Magazine and the Business Insider.)

Inspired by this outpouring of kindness, Tamika decided to pay it forward. In early 2024, Cervivor created the Virginia “Ginny” Marable Cervivor Baby Gift Fund, which offers financial assistance and essential items to those in the Cervivor community pursuing parenthood.

Rocky, Chayton, and Tamika with Ginny, Sean, and their boys in September 2023.

And where did the nickname “Cervivor Baby” come from? It originated from the Cervivor aunties — strong, loving women who have been impacted by cervical cancer and warmly embraced Tamika and Rocky’s son, Chayton, from the get-go. Now, two years later, the term represents all the little ones born to cervical cancer survivors, symbolizing the hope and resilience fostered within the Cervivor community.

Chayton, the original Cervivor Baby, just turned 2 years old!
The Cervivor Baby Gift Fund provides critical support and hope to cervical cancer survivors who are pursuing parenthood.

Join the Cervivor Auntie Squad!

Whether you’re a cervical cancer survivor, a supporter, or someone who believes in paying it forward, these Cervivor Auntie Squad tees are for you. Available in gray, white, and black, you can choose from a hoodie ($50), long-sleeve ($30), or short-sleeve ($25) style. As the back says, “There’s just something special about being a Cervivor Auntie.”

All proceeds from these limited-edition tees — only on sale until December 11, 2024 — will directly support cervical cancer survivors on their path to parenthood and help Cervivor:

  • Raise awareness about cervical cancer and its impact on individuals and families.
  • Provide support and resources to cervical cancer survivors and their loved ones.
  • Fund advocacy efforts aimed at improving cervical cancer prevention, diagnosis, and treatment.

Buy Today, Don’t Delay!

Don’t miss your chance to show your Cervivor Auntie Squad spirit and support those impacted by cervical cancer. Click here to add one (or more) to your cart now!

Follow us on social media to stay updated on Cervivor’s mission, new fundraising efforts, and ways you can get involved. Thank you for being part of our community and helping us make a difference.

Cervivor’s Holiday Shopping Guide: Support the Mission to End Cervical Cancer and Show Off That Teal and White!

Don’t just check gifts off your list this holiday season; save lives. Support Cervivor’s mission with your purchases this Black Friday, Cyber Monday, or any other holiday shopping day, as well as for special occasions throughout the year. (Think birthdays, cancer-versaries, Cervical Cancer Awareness Month in January, and beyond.) 

Cervivor’s following holiday shopping guide offers a mix of splurges and affordable stocking stuffers, perfect for treating fellow Cervivors, caregivers, and healthcare heroes, or for sharing with loved ones who want to support your cervical cancer journey. Not shopping for others? Simply forward this list to your gift-givers to help them find the perfect items from your wish list!

Shop with purpose this year. Together, we can make a difference – one gift at a time.

Cervivor’s Holiday Shopping Guide

Cervivor Auntie Squad T-Shirts 

Celebrate the power of support with our new hoodie ($50), long-sleeve T-shirt ($30), and short-sleeve T-shirt ($25) in gray, white, or black. These items honor the “Cervivor aunties” who uplift cervical cancer patients, survivors, and their “Cervivor babies,” often born after challenging fertility journeys. Proceeds benefit the Virginia “Ginny” Marable Cervivor Baby Gift Fund.

Cervivor Teal and White Christmas Stockings

Hung above the chimney with care, these festive stockings in the cause’s signature teal and white bring holiday cheer while spreading awareness about cervical cancer and our unique Cervivor community. Also, they’re cute! Pre-order a large stocking ($25) or a mini stocking ($15) or get a few.

KickIt Pajamas Gift Cards for Cancer Patients

One of our favorite cancer-friendly brands, KickIt Pajamas was co-founded by one of our dedicated Cervivor Ambassadors. With a wide range of thoughtfully designed items – including recovery pajamas (shown in sage green, $105), hospital gowns, capes, cardigans, and eye masks – we suggest giving a gift card so your recipient can pick what they need. In amounts from $50 to $200, it’ll fit any budget.

Large Cervivor Journal

Journaling can be a lifeline for processing emotions, managing stress, or practicing mindfulness. This spacious, lined journal ($20) is ideal for navigating the challenges of cervical cancer, reflecting on daily experiences, or keeping track of your advocacy work.

Retro Cervivor Long Sleeve Shirt

With a groovy Cervivor logo, this soft, tunic-style top ($30) pairs perfectly with jeans or leggings. Use it as a conversation starter when someone asks about the word on your shirt. Tell them it’s more than a name, it’s a community with a mission!

Cervivor Mesh Totepack

Bring a touch of summer to winter days with this lightweight, easy-clean bag with a drawstring top ($50). Roomy and with a stylish striped pattern, it has handy side pockets for water bottles, phones, and whatever else you need to stash. Pre-order the bag now to ensure it arrives in time for your festive day.

End Cervical Cancer Sunnies

When your post-cancer future is so bright, you have to wear shades, reach for these chic ombré teal sunglasses ($10) that make a statement: End Cervical Cancer.

Cervivor Cable Knit Collection

Wear your teal and white with pride and in cozy comfort with this adorable knitted scarf ($40), beanie ($25), and set of gloves ($15). Nab all three for $70. Another pre-order item. Don’t delay and miss out!

Seriously, What Are You Waiting For?: 13 Actions to IGNITE Your Life & Achieve The Ultimate Comeback

If you haven’t read this powerful tome ($14.95) by Cervivor founder Tamika Felder, now’s the time. It’s a motivational guide that encourages resilience and action. Give it to someone who could use a pick-me-up and sense of purpose.

Cervivor Compression Socks

Made of thermo-regulating fibers and with breathable layers, these Cervivor-y compression socks ($20) will keep your feet dry and funk-free. They help improve blood circulation and speed up muscle recovery in your calves, feet, and ankles. Pull them on before travel, exercise, or long workdays.

Cervivor Squad Hoodie

We love shirts, squads, and gear celebrating our Cervivor Squad — and this hoodie ($45) is a standout! With a clever two-in-one design, it folds into a convenient backpack, so you won’t need to tie it around your waist or shoulders. Well-made in a soft sage green, you’ll get some use out of this one!

Cervivor Ribbon Lapel Pin

Show your survivorship with this Cervivor-customized cervical cancer ribbon lapel pin ($4). Pin it on your shirt, jacket, or bag, or purchase a few to give to special caregivers this holiday season.

Ways to Support Fellow Cervivors

As you probably know, Cervivor is a grassroots non-profit, and we rely on donations, grants, and outside contributions to fund our initiatives. We invite you to give back this holiday shopping season by sponsoring one of the following gifts or funds. Your donation can help sponsor a Cervivor School student, assist someone on their path to parenthood, or brighten a patient’s day with a care package. Below are some great tax-deductible options:

Additionally, you can visit our Amazon Wish List for Cervivor’s Comfort Care & Compassion Program, where you can purchase items for curated care packages for women with cervical cancer.

Remember, ‘tis the season for spreading joy and showing gratitude for everything we have – including the gift of a cervical cancer-free future! By supporting Cervivor through your holiday shopping (or any ol’ day of the year), you help us continue our mission to empower those impacted by cervical cancer and end this disease for good.

Hi, I’m Sara.

It is with great honor – and perhaps a little too much enthusiasm – that I introduce myself as the new Communications Director for Cervivor, Inc. [Insert air horn sound effect!]

Like all Cervivors, my journey here is deeply personal. I lost one of my best friends from high school to cervical cancer when she was just 28 years old, while we were both living in New York City. Over the seven months following her late-stage cancer diagnosis, I watched her die before my eyes, powerless to do anything but love and support her – and eventually share her story with the world (more on that in a bit).

Heather, Mindy, and Sara Lyle-Ingersoll stand together at their senior prom in the 1990s. Sara, on the right, is wearing a black gown with a large white bow on the shoulder. Mindy is in the center wearing a black dress with gold accents, and Heather is on the left in a blue dress. They pose in front of a backdrop featuring a crescent moon, stars, and decorative columns.
Heather (in blue), our friend Mindy, and I were so totally ’90s at our senior prom.
Heather Martin, who later passed away from cervical cancer in her twenties, shares a joyful moment with her best friend Sara Lyle-Ingersoll, now Communications Director for Cervivor, Inc. In this candid photo from their senior year graduation event, Heather, wearing a white t-shirt and denim shorts, laughs with Sara, who is playfully leaning on her shoulder, dressed in a sleeveless striped shirt and shorts. They are surrounded by other attendees in a festive atmosphere.
Heather (on left) was a bright light.

This heartbreaking experience, and the fire it ignited in me to spread the word about how preventable cervical cancer is, and how senseless it is for women of any age to die from it, is just one of many reasons I am thrilled to be working with the Cervivor community and its fearless leader, Founder and Chief Visionary Tamika Felder.

But let me take you back to when I first met Tamika. It was 2006, and I was a senior editor at Jane Magazine, interviewing her for a feature story (more on that in a bit, too). Even then, she was a rising force in cervical cancer advocacy, speaking at major events and addressing Congress. Her new nonprofit, then called Tamika & Friends, Inc., was organizing its first fundraising walk for cervical cancer awareness in Washington, D.C., that May.

Sara Lyle-Ingersoll, wearing an "I Hate Tumors" shirt, stands with a man and Tamika Felder at a cervical cancer awareness event in 2009. Sara is smiling and holding up her wrist, showcasing a yellow bracelet, while Tamika, dressed in a red cardigan, stands on the right, also smiling.
Tamika traveled from D.C. to New York for a cervical cancer awareness event we organized in Heather’s memory in 2009. Tamika hosted an HPV-themed trivia game and brought her general sense of positivity and purpose.

Although we hadn’t met before our phone conversation – she was in Maryland; I was in New York – we shared the same mission: to ensure that no one else would suffer or die from cervical cancer or be kept silent because of its stigma. Even though Heather was already gone by then, I knew she and Tamika would have been fast friends. Their zest for life was infectious.

Turning Pain into Power

After Heather told me about her diagnosis – over beers at a Manhattan bar, as you do in your twenties – I discussed with my editor at Jane that sharing Heather’s story might encourage other young women to get their Pap tests more regularly, since Heather’s late diagnosis was partly due to missed screenings. Like too many people, she was working multiple jobs but didn’t have health insurance.

There was also encouraging talk of a soon-to-be-FDA-approved HPV vaccine, which made the potential article especially timely. Additionally, while the first HPV test was introduced in the early 2000s, it still wasn’t widely used or covered by insurance. To my mind, this made it crucial to educate Jane’s mostly twenty- and thirty-something readers about these powerful tools for cervical cancer prevention. I just didn’t realize that Heather’s story would end the way it did when I started it.

Heather passed away in December 2005, six months before the first HPV vaccine was approved. Now, I watch HPV vaccine commercials on TV with my 9-year-old son, who asks questions about what it is and who it’s for. I tell him about Heather, Tamika, and how the vaccine can prevent cervical cancer. It’s amazing how far this movement has come!

Sara Lyle-Ingersoll smiles brightly as she poses with her 9-year-old son, Loch, outdoors in Denver during the winter. They are bundled up in winter jackets, with Sara wearing a purple puffer coat and Loch in a red and black jacket. The sky is clear and blue, and the mountains are visible in the background.
My youngest is the age at which the HPV vaccine is first recommended.

Becoming an Unintentional Advocate

When Heather’s story, “I Hate Tumors,” was eventually published in Jane in March 2006, it struck a nerve. Reader mail poured in; our online message boards were active. The article was syndicated in the UK edition of Glamour and shared widely. One woman wrote, “That article saved my life! After I read it, I made an appointment with my gyno and found out that I had HPV and two precancerous lesions on my cervix. I’m fine now, but what if I had waited?” The feature went on to win a Front Page Award for Science, Medicine, and Health from the Newswomen’s Club of New York, which was gratifying, even though I wish I’d never had to write it in the first place.

While I didn’t consider myself an advocate back then, I seized the moment to speak about the need for cervical cancer awareness on as many TV and radio shows and in as many publications and places as possible. When I interviewed Tamika for the aforementioned feature story, “I Still Hate Tumors,” a follow-up article that came out in Jane in March 2007, she said she had seen a segment that Heather’s little sister and I did on The Tyra Banks Show. She told me it impressed her “to see people talking about cervical cancer correctly.”

Two-page magazine spread from Jane Magazine featuring an article titled "I Hate Tumors," written by Sara Lyle about her friend Heather Lyn Martin's battle with cervical cancer. The left page has text, while the right page includes a photo of Heather (right) and Sara as college freshmen.
This is the opening spread of the article I wrote in Jane Magazine in 2006 about my friend Heather’s battle with cervical cancer. I made her a T-shirt that said “I hate tumors” while she was in the hospital, inspiring the story’s title. The photo on the right-hand page is of Heather and me during our college years in Florida.
The first spread of a follow-up story in Jane magazine. On the right page, a collage of photos includes Heather in the top left, wearing her 'I Hate Tumors' shirt. Below her, Heather's sister Donna displays a fresh tattoo featuring one of Heather's favorite quotes. Tamika is also pictured at a Livestrong event.
This is the first spread of the follow-up story, “I Still Hate Tumors,” published in Jane a year later. On the right page, Heather is in the top left, wearing her “I hate tumors” shirt. That’s Tamika in yellow at a Livestrong event before we first spoke.

In 2008, I shared Heather’s story with hundreds of attendees at the Global Summit of Women in Beijing, which was nerve-wracking but empowering. (Tamika helped me prepare for the speech!) Over time, I participated in several of her organization’s walks in D.C. and New York. Tamika invited me to attend the very first Cervivor School in New York in 2014, where I earned an honorary certificate since I’m not a cervical cancer survivor. (Hats off to all of the Cervivor School graduates who have come up since then!)

Tamika Felder stands with the first group of Cervivor School graduates, including Sara Lyle-Ingersoll, an honorary student whose best friend died from cervical cancer. The group is gathered in New York City for the inaugural Cervivor School in 2014.
A diverse group of individuals, all attendees of the 2024 Cervivor School, pose for a group photo in a well-lit room decorated with teal and white balloons. The group consists of women wearing Cervivor-themed shirts, casual and professional attire, with a warm, supportive atmosphere. Some attendees are seated while others stand behind them.
I had the honor of attending both the first Cervivor School a decade ago (top photo) as well as the most recent one in Minneapolis.

She even used my Brooklyn apartment as a staging area for the first series of CervivorTV episodes, featuring different people impacted by cervical cancer, including me (that’s the video below). Since then, Tamika and I have stayed in touch through marriages, my living abroad, and both becoming mothers. I have always been cheering for her – and the Cervivor mission and community – from the sidelines.

What I Hope to Bring to Cervivor

Now, after all the growth and impact the organization has achieved, coming back into the Cervivor world as its Communications Director feels less like a job and more like a calling.

A little about my professional background: After Jane, I held leadership roles at magazines you may have heard of like Woman’s Day and Good Housekeeping. I also lived in Asia for seven years, where I was the Editor-in-Chief of The Finder, a popular publication for foreigners living in Singapore. (Tamika even wrote a story for The Finder during Cervical Cancer Awareness Month one year!) For the past year-plus, I’ve worked independently, contributing to niche publications and global media outlets and, yes, collaborating with Tamika behind the scenes.

My goal at Cervivor? To continue to infuse heart and mind into all our communications, delivering a message of hope and solidarity that reflects Cervivor’s commitment to the ultimate mission: to #EndCervicalCancer. I aim to help us achieve the ambitious goals set by Tamika and the organization’s leadership, powered by the dedication of our Cervivor Ambassadors, community members, and supporters.

A photo of Sara Lyle-Ingersoll outdoors with sunglasses on, smiling, and wearing a Pap Rally & Run T-shirt. She attended the event in New York City in 2014.
Me at a Pap Rally & Run in New York in 2014, the last one I attended before moving abroad.
Sara Lyle-Ingersoll, now Cervivor's Communications Director, at one of the non-profit’s early awareness and fundraising events in Washington, D.C., sharing Heather’s story with a powerful message on her T-shirt.
Tamika invited me to an early Pap Rally & Run, where I shared Heather’s story and wore our T-shirt.

Heather’s legacy – and that of other women who didn’t make it – lives on in our work. Together, we will continue fighting for a future where no woman has to lose the battle to cervical cancer.

A collage of names of women who have died from cervical cancer, accompanied by the hashtag #EndCervicalCancer.
Heather and I didn’t know Tamika when she was starting Cervivor, and Heather passed away before they could meet. Too many continue to be lost and every loss hurts.

Thank you for welcoming me back to the Cervivor family. I look forward to working alongside each of you as we advocate, educate, and empower.

Let’s kick this cancer’s ass!

P.S. If you want to connect with me on LinkedIn or contact me directly at [email protected], I would love that. 

With gratitude,


Sara Lyle-Ingersoll
Cervivor, Inc.
Communications Director
Read My Story Here

Uniting to End Cancer Disparities for All

Every year, during the third week of June, communities across the United States come together to observe National Black Family Cancer Awareness Week. This important week, spearheaded by the U.S. Food and Drug Administration’s (FDA) Oncology Center of Excellence, aims to raise awareness about the disproportionate impact of cancer on Black families and to promote cancer prevention, screening, and treatment within this community.

Understanding the Disparities
Cancer affects all demographics, but statistics reveal a troubling disparity: Black Americans are more likely to develop and die from cancer compared to other racial and ethnic groups.

The reasons for this disparity are multifaceted, involving socioeconomic factors, access to healthcare, environmental exposures, and genetic predispositions.

National Black Family Cancer Awareness Week is designed to address these disparities by:

  1. Promoting Education and Awareness: Increasing awareness about the higher cancer risks faced by Black families encourages proactive health measures. Understanding the importance of early detection and regular screenings can significantly improve survival rates.
  1. Highlighting Preventative Measures: Educating the community about lifestyle choices that can reduce cancer risk, such as maintaining a healthy diet, regular physical activity, and avoiding tobacco and excessive alcohol use, is crucial.
  1. Encouraging Participation in Clinical Trials: There is a significant underrepresentation of Black Americans in clinical trials, which can hinder the development of effective treatments for this demographic. National Black Family Cancer Awareness Week seeks to increase awareness and participation in these trials, ensuring that new treatments are tested for efficacy across diverse populations.

Community Engagement
One of the most impactful aspects of National Black Family Cancer Awareness Week is its focus on community involvement.

Tamika Felder, Founder & Chief Visionary and Kimberly Williams, Chief Diversity Equity and Inclusion Officer, Charleston, SC
Tiera Wade, Cervivor Ambassador, Akron, OH

Local organizations, healthcare providers, and advocates host a variety of events and initiatives to engage the community, such as:

  • Health Fairs and Screenings: Offering free or low-cost cancer screenings and health check-ups to encourage early detection.
  • Educational Workshops: Providing information on cancer prevention, treatment options, and the importance of regular medical check-ups.
  • Support Groups and Counseling Services: Creating spaces for those affected by cancer to share their experiences, receive support, and find resources.

Real Stories, Real Impact
Hearing from individuals who have been affected by cancer can be incredibly powerful. Testimonials from cancer survivors, family members, and healthcare providers highlight the real-life impact of cancer within the Black community. These stories create solidarity and provide hope, reminding us that we are not alone in this fight.

Taking Action
Here are some ways you can get involved in National Black Family Cancer Awareness Week:

  1. Spread the Word: Use social media platforms to share information and resources. The hashtags #Cervivor #CervivorNoir #BlackFamCan #EndCervicalCancer are a great way to join the conversation and reach a wider audience.
  2. Participate in Local Events: Attend health fairs, workshops, and other events in your community. Encourage friends and family to join you.
  1. Volunteer: Offer your time to local organizations that are hosting events or providing support services.
  1. Get Screened: If you haven’t already, schedule a cancer screening. Encourage your loved ones to do the same. The hashtag #Screen4Me is a great way to spread awareness and share the importance of screening.

National Black Family Cancer Awareness Week is more than just a week of activities; it’s a call to action for year-round commitment to addressing and reducing the impact of cancer on Black families. By coming together, we can make significant strides in education, prevention, and treatment, ultimately saving lives and creating healthier communities.

Cervivor Community Members and Cervical Cancer Survivors (Left to Right): Keesha Carter, Gwendolyn Jackson, and Lindsay Gullatte-Lee

As we observe National Black Family Cancer Awareness Week, let’s remember that awareness and action go hand in hand. Together, we can create a future where cancer disparities are a thing of the past, and every family has the knowledge and resources to fight cancer effectively.

Raising Awareness to Build Health Equity

Health equity must be pursued relentlessly in communities of color including the Black community to address long-standing disparities and ensure the well-being of every individual. Achieving health equity includes dismantling systemic barriers, such as discriminatory practices, unequal access to quality healthcare, and socioeconomic inequities that disproportionately impact Black individuals.

Here are a few holidays and awareness campaigns to share with your networks during the month of June:

Juneteenth
Also known as Freedom Day or Emancipation Day, is an annual celebration observed on June 19th to commemorate the emancipation of enslaved African Americans in the United States. Originating in Galveston, Texas, in 1865, Juneteenth marks the day when Union General Gordon Granger arrived with the news of freedom, proclaiming the end of slavery in Texas, two years after the Emancipation Proclamation was signed. It has since become a significant cultural and historical milestone, symbolizing the triumph of freedom over oppression and serving as a reminder of the ongoing pursuit of equality and justice for all.

Caribbean American Heritage Month
Celebrated annually in June, is a time dedicated to recognizing and celebrating the rich contributions and vibrant cultures of Caribbean Americans in the United States. In conjunction with this important observance, it is crucial to shed light on significant health issues that affect the Caribbean American community, such as cervical cancer. Cervical cancer is a leading cause of cancer-related deaths among women in the Caribbean and Caribbean American populations. During this month, we’re raising awareness about the importance of regular screenings, early detection, and prevention strategies to combat cervical cancer and promote women’s health in the Caribbean American community. We can empower individuals to take proactive steps toward a healthier future.

National Black Family Cancer Awareness Week
An important week-long observance that aims to shed light on the disproportionate impact of cancer on the Black community and raise awareness about prevention, early detection, and treatment options. By addressing disparities in healthcare access and providing support networks, this initiative plays a crucial role in fostering resilience, advocating for equitable care, and ultimately working towards eliminating cancer-related disparities among Black families.

By implementing culturally sensitive care, increasing healthcare access and affordability, and prioritizing community empowerment including sharing personal stories, we can foster a future where every person in the community enjoys equitable opportunities for their best health and is free from the burden of historical injustices.

Are you a cervical cancer patient or survivor?
Add your story to our Cervivor Stories and help spread awareness of cervical cancer! Your story has the power to create change and it matters.

We Are Cervivor: Spirit Week 2023 Recap

Cervivor Spirit Week gives our community a chance to bring some fun to an otherwise serious topic of cervical cancer awareness and prevention. As our Cervical Cancer Awareness Month Committee Co-Chair, Jenn Myers says, “It can be a heavy topic but we are the voices that need to do this work.”

We definitely had a ton of fun with everyone this week as we splashed social media with so much teal & white awareness! We love how many people took notice, shared their stories, and joined in on our cause.

Cervivor Español unofficially kicked off the spirit week with a MeetUp on Saturday then we transitioned into the theme days starting on Sunday! Sports Day Sunday brought out all the sporty-Cervivors representing their favorite teams. Lisa Gopman reminded us to get our cervical cancer screening and vaccinate our kids against HPV all while showing off her Bengal pride.

There were so many great Movie Monday quotes from some classic Hollywood films. Kel Bel spent the weekend watching Harry Potter movies with her daughter while recovering from her hysterectomy and shared this Albus Dumbeldore line that hits her every time, “Happiness can be found even in the darkest of times, if one only remembers to turn on the light.” Mic drop.

Our Cervivor Noir and Cervivor API groups kicked off their inaugural MeetUps to further our commitment to diversity, equity, and inclusion for anyone impacted by cervical cancer. There were stories shared so powerful and we cannot wait to see the work they all do in furthering our mission to end cervical cancer. (If you identify as Black, join Cervivor Noir and if you identify as Asian or Pacific Islander, join Cervivor API).

On Talk to Me Teal & White Tuesday we asked you what Cervivor means to you and here’s what you shared with us.

“Cervivor means no one fights alone.” ~ Christy

“Cervivor means sharing our stories and using our voices to spread awareness and to end cervical cancer and to let other women know they are not alone.” ~ Brooke

You gave us all the cozy vibes on Warm Up Wednesday and Cervivors were sharing pics snuggled under blankets and some with their pets. Joy shared the unconditional love from her cat and Arlene was living the Wonder Woman Snuggie life.

Joy & her cat
Wonder Woman Arlene

The favorite food of choice on Tasty Thursday seemed to be none other than… tacos! They really are the perfect food! Sharing our tasty treats helped us get ready for Saturday’s amazing session, Cooking with Tracy Citeroni, who demonstrated a versatile, healthy and delicious quinoa ‘risotto’. You can grab the recipe here to cook on your own!

We even kicked off our first-ever Cervivor Book Club meeting by discussing Brene Brown’s Daring Greatly! As we headed into our weekend, we asked you to share your happy places on TGIFriyay. Sand, surf, mountains, lakes, fireside, wilderness trails, and museum strolls hit the top of your lists for joy-inducing places we like to be.

Phyllis captured magic in Hawaii
Kristine’s sunset
Amanda’s trail

And we ended this year’s spirit week with a favorite, Sock It To Cervical Cancer to bring out your favorite statement socks with a Cervivor flare!

New Cervivor socks!
Tasha
Rachel

Through this time, we continued to honor the joy and Cervivor spark of our late Cervivor sister, Jodi Madsen. Cervivor Spirit Week was one of her favorite things from last year and she was a master in fun content creation and social media advocacy.

We hope this week has inspired you to continue these ways of advocating throughout the rest of 2023. It is truly incredible to see the power of our community and it’s a great reminder that we are Cervivor and we are unstoppable!

PRESS RELEASE: Cervivor Founder and Chief Visionary, Tamika Felder Invited to Share Opening Remarks for First Lady, Dr. Jill Biden and the American Cancer Society’s Launch of The National Breast and Cervical Cancer Roundtables

WASHINGTON, D.C. – In February 2022, the American Cancer Society announced they would be launching two national roundtables: one for cervical cancer and the other for breast cancer. This was a response to President Biden’s call to action in reducing cancer incidence and death rates faster. This initiative is to bring together leading organizations and experts in the cervical and breast cancer space to drive progress and improve the lives of cancer patients, as well as their families.

The objectives of the national roundtables align with the President’s Cancer Panel’s report Closing Gaps in Cancer Screening: Connecting People, Communities, and Systems to Improve Equity and Access. 

The report addresses the need to:

  • Improve and Align Communication: Develop effective communications about cancer screening that reach all populations; and expand and strengthen National Cancer Roundtables that include a focus on cancer screening.
  • Facilitate Equitable Access: Barriers contribute to lower rates of cancer screening initiation and the recommended follow-up observed among many populations in the United States; there is a need to provide and sustainably fund community-oriented outreach and support services to promote appropriate screening and follow-up care plus increase access to self-sampling for cancer screening.
  • Strengthen Workforce Collaborations: Team-based care has the potential to improve implementation of cancer screening but in order to accomplish this, supportive policies and a commitment to team-based care approaches are needed which include the empowerment of healthcare team members to support screening plus having the opportunity for training and residency programs; and expanding access to genetic testing and counseling for cancer risk assessments to catch cancer early.
  • Create effective health IT: Providers and patients alike are faced with more information than they can process in a reasonable amount of time. Health information technology (IT) has potential to help providers, patients, and healthcare systems quickly access and effectively use clinical knowledge and patient-specific data.

Cervivor Founder and Chief Visionary, Tamika Felder was invited to speak on behalf of cervical cancer patient advocates and their families to increase awareness, impact change, and work collectively towards eliminating cervical cancer. Tamika and Cervivor, Inc. have been long-standing influencers on the panel since 2003, helping to provide vision as well as patient stories. She shares, “For me it is personal. My legacy won’t be the lives that I bring into this world but the lives I will save.”

First Lady Jill Biden attends an American Cancer Society Roundtable event, Monday, October 24, 2022, in the State Dining Room of the White House. (Official White House Photo by Adam Schultz)

Recording artist and cancer prevention advocate, Mary J. Blige shared the personal impact cancer has had on her family in recent years and why she has dedicated so much time to awareness. She phrases a key message, “I’ve dedicated time to making people understand their health is their wealth and urging them to make it a priority.”

American Cancer Society CEO, Dr. Karen Knudsen states, “We at the American Cancer Society represent all 1.9 million Americans that hear each year that they will have cancer and we are absolutely resonating with the goal of the Cancer Moonshot to end cancer as we know it.”

Dr. Karen Knudsen, Tamika Felder, First Lady Dr. Jill Biden, and Mary J. Blige

Dr. Knudsen also brings to light that breast cancer still remains to be the second leading cause of cancer death for women in this country and number one for Black and Latina women. 14,000+ women are diagnosed with cervical cancer and over 4,000 will die from the disease. Black and Latina women are again, impacted at nearly twice the rate as their Caucasian peers.

First Lady, Dr. Biden emphasizes there should be no woman left behind. There is an absolute need for collaborative efforts including the patient advocate voice because this impacts us all. The focus is to put patients and their families at the center of their cancer – from diagnosis to survivorship and we are rewriting the narrative of cancer.

“We don’t have to be afraid of cancer anymore!” 

First Lady Jill Biden bids farewell to singer Mary J. Blige, American Cancer Society CEO Dr. Karen Knudsen and cancer survivor Tamika Felder after an American Cancer Society Roundtable event, Monday, October 24, 2022, in the Red Room of the White House. (Official White House Photo by Erin Scott)

We stand with the First Lady, the American Cancer Society, and so many more leading organizations. We are committed to this mission as we are reminded of the daily impact in our community of a cervical cancer diagnosis, the treatment and difficulties in survivorship, and of those lives that have been lost from a preventable disease.  

Watch the full livestream recording here.

Honoring Culture & Making an Impact

Alexander Hamilton.
General Colin Powell.
Shirley Chisolm.
And Kadiana Vegee.

These Caribbean-Americans are worthy of a shout out, and Cervivor wants to shout from the rooftops Kadiana’s name because she is the epitome of beauty and pride. As we celebrate Caribbean-American Heritage Month, we want to share Kadiana’s survivor story which reminds us of true beauty.

Having lost her mother to ovarian cancer, and her father to prostate cancer, Kadiana and her sisters took genetic tests to learn where their own health stood. While her sisters were in the clear, Kadiana’s tests revealed the BRCA 1 gene mutation. She quickly chose to have preventative surgeries.

“I had a double mastectomy without reconstruction, and I also had to have my ovaries and my fallopian tubes removed,” explained Kadiana. “ … The decision that I made was not just for myself and to stay alive, but it was also for my kids.”

The most frequent cancers in the Caribbean are prostate, breast, lung and bronchial, colorectal, and cervical cancers, according to BMC Cancer journal. Further, the five most frequent sites for cancer deaths include lung and bronchial cancers, prostate, colorectal, breast and stomach.

To be specific, Black-Caribbean women have a high prevalence of late-stage breast and cervical cancer diagnosis due to a low prevalence of screenings, according to dignity, shame, stigma, or ignorance in avoidance of breast and cervical cancer screenings among women of Caribbean Descent, published by the Open Journal of Social Sciences. After conducting focus groups, researchers concluded that a lack of trust in the health system, stigma, and shame contributed to avoidance of cancer screening – all similar to what we see and experience for ourselves.

While Kadiana acknowledges cancer will “always be a part of my life, from the long lasting side effects to the constant fear of reoccurrence,” her fervor to thrive, her beauty and her pride in taking back her life can be seen, felt, and heard. We are elated to know that Kadiana is a Cervivor advocate willing to share her story, boast her war scars, and champion the need for rights, resources and self advocacy.

“It felt like a blessing because I knew and I had the option,” said Kadiana about making her decision. “I stand unashamed … It’s not how I look on the outside. It’s how I look on the inside, and I really do feel beautiful.”

Clinical Trial Awareness Month: Cervical Cancer Needs YOU!

That first season of a TV, Netflix, or cable series is a total experiment. Producers wonder how the characters will resonate with the target audience. Advertisers are hopeful that their two-minute commercials and ads are crafted well enough to bring in sales. And actors cross their fingers that fans love each episode more and more, and demand a second season. The result: a cult following of a show that lasts for years, providing viewers the comfort of entertainment and solace.

While it may be a stretch, we can think about clinical trials in the same way. This method of medical research, is in fact, a pilot program for scientists to experiment, test, and prove what works, and what can result in medical breakthroughs – again, for the comfort and solace of those impacted by health challenges like cervical cancer.

You may have heard us at Cervivor championing the dire importance of clinical trials. We continue to stress the importance as this is the only way we can pave a way toward slowing down the loss of members in our community, thriving without having to lose parts of our bodies, and ultimately eliminating cervical cancer.

We said it before:

  • We need clinical trials to drive progress.
  • We need trials to determine the safety and effectiveness of every type of treatment.
  • And in order to determine that safety and effectiveness, we need volunteers.

We choose not to subscribe to the stigma around being a “guinea pig” or a “test dummy.” Without clinical trials, treatment, diagnosis, and prevention efforts are slowed down. The effectiveness of new medication, treatment, and therapy can only be proven through trial – and yes, error. Take a look at the thousands of trials around the globe currently recruiting patients, in addition to those that are active, completed, and terminated with results. Thanks to people including several of our Cervivor community members like Teolita, Erica, Jenn, and Linda much more work is being done daily to make sure our community – and the generation after us, and after them – can thrive.

“I decided that if this clinical trial was good enough for Jimmy Carter, it was good enough for me!” – Teolita Rickenbacker

It’s important to note that Cervivor advocates for cultural competence throughout our medical journey, including in the clinical trials process – and we should all be looking out for this. This means, making sure that the medical community understands, and is intentional about how they communicate with a diverse audience of women, whether Black, Brown, young, mature, and those who speak a language not native to their medical team. It is super important that the medical community, including those coordinating trials, speak different languages, and understand the experience of those who are part of a focus group. This important aspect aids in building and maintaining trust with those participating, which, in turn, helps us trust in both the process and the expertise of trial organizers.

This process takes a lot of teamwork: scientists work on hypotheses, patients report on progress and challenges, and doctors monitor outcomes. The result: an increase in clarity, more answers, more awareness, more options, and longer lives. Have a discussion on clinical trials with your care team and support system. Learn more with these recommended resources:
https://www.webmd.com/cancer/cervical-cancer/cervical-cancer-clinical-trials
https://www.clinicaltrials.gov/ct2/home

If you have experience with a clinical trial and want to share it with us, contact us at [email protected].

The Cervivor Podcast: Season 1 Recap

In anticipation of the Season 2 release, we’re taking a look back on Season 1 of the Cervivor Podcast hosted by our very own Founder and Chief Visionary, Tamika Felder. It was a season where we laughed, cried, and learned from guests during Cervivor School 2017. We give honor and observance to those featured in these podcasts that are no longer with us. To be able to hear their voices, laughter and transparency is a special treat for us. We hope you think so, too.

If you haven’t listened to Season 1 yet, take a moment and do so now – currently available on Anchor.fm, Apple Podcasts, Google Podcasts, Pocket Casts, Radio Public, and Spotify.

Recap by Episode:

  1. Cervivor’s “Most Enthusiastic” awardee, shares all the things we wanted to know but didn’t want to ask in “Dry Panties, Depends, and Urine. What Does This Have to Do with Cervical Cancer?” Turn the volume all the way up and be proud as you listen to Holly Lawson talk about obstacles during diagnosis.
  2. “Everybody’s voice makes a difference,” says Erica Frazier Stum whose school-aged son knows his mother may be gone sooner than she should be. This podcast episode is a special treat hearing Erica’s voice posthumously who passed away in 2019.
  3. “Education 101: What is Lymphedema?” Heather Banks drops a few jewels around compression undergarments, drainage, swelling, and giving yourself grace when you just … can’t. 
  4. Balancing school, work, her grandmother’s dementia, and an unexpected stage 4 cervical cancer diagnosis, Teolita Rickenbacker says she found her calling amidst an overwhelming period. “It’s nothing wrong with having cervical cancer; it’s nothing wrong with having any kind of cancer. It’s just how you define it.” Listen to “The Will to Live: How Faith Got Her Through a Cancer Diagnosis.”
  5. In “Acceptance of Death: How She is Making Her Story Matter,” Lisa Moore shared her story of diagnosis, kidney failure, and coming to grips that once she passed, her 30-year-old husband would likely start a family with someone else. “I have accepted death. I’m done being stuck, I’m done being treated. I’m ready to just live my life … it’s a different kind of hope.”
  6. The aftermath of a car accident reveals Sierra Thetford has cancer, but despite a six-month prognosis to live, she sought solace in sharing her story and becoming a gym rat. Listen to “Wrecking into Cancer: How the Gym Became Her Refuge.”
  7. Lynn Tromp talks about cervivorship globally and being open to new experiences, “I trusted my medical doctor. He spoke to me with confidence. Even though it was a trial, he spoke to me with confidence,” said Lynn who lives in South Africa. Listen to “Cancer in another country: A Tell-all From South African.”
  8. In “Toxicity in Relationships: Coping with Cancer,” Dr. Ramani Durvasula talks with Tamika Felder about feminism, narcissistic relationships, and convoluted thoughts that we can experience during diagnosis and treatment. 

Season 2 of the Cervivor Podcast is moving past the archives. Join us on Friday, May 13, 2022 for the Season 2 Episode 1 release!

We’ll be welcoming our first guest, Joslyn Chaiprasert-Paguio. Joslyn was diagnosed with the Human Papillomavirus (HPV) at the age of 18 and with cervical cancer at the age of 24. She shares her story to encourage women and future generations, like her daughter, to advocate for themselves and make their health a priority. You’ll also hear what else you can expect on this Season of the Cervivor Podcast.

For more Cervivor-related content, check out our award-winning YouTube channel, CervivorTV. Follow Cervivor on all social media platforms and sign up for our newsletter. If you would like to be interviewed for upcoming Cervivor Podcast episodes or to request content or speakers for future episodes, fill out this form or contact us at [email protected].

21 Years of Cervivorship

Today, we’re celebrating a special edition of #TealandWhiteTuesday. Our Founder and Chief Visionary, Tamika Felder is celebrating 21 years of Cervivorship!

Tamika was just 25 years old when she was diagnosed with cervical cancer on April 12, 2001. She endured a hysterectomy stripping her of her fertility, followed by chemotherapy, and radiation. Cervical cancer changed her life forever. 

In 2005, she started Tamika & Friends, Inc. a nonprofit dedicated to cervical cancer survivors and their friends and family. At the time there truly wasn’t any support for cancer survivors and the Internet was just getting off the ground. Tamika needed support. She found the more she told her story, the more it reached other women. Tamika wanted to help empower others to share their stories and that’s how Cervivor was born!

But Tamika didn’t stop there. She understood her calling of living her life beyond a cervical cancer diagnosis. Over the years, she has continued to transform the lives of each person impacted by a cervical cancer diagnosis. Tamika not only empowers them to use their voice, but she teaches them that their pain can have purpose, and they have the power to create change.  

Here are a few things she’s learned as she looks back on her experience with cancer:

  • I was a survivor from the onset of my diagnosis. Each day is survivorship. Sure, there are huge milestones. The first year, the magical number 5. But what matters is each day is another day from the one before. 
  • No matter your faith (or lack thereof) cancer is scary. And it’s okay to be scared. 
  • We all get by with a little help (or really a lot) when it comes to cancer from our friends/family. 
  • You won’t ever be the same. As with any traumatic experience you are forever changed.
  • Accepting that cancer has changed you and living in the “new normal” means that you can move forward. Even if it’s at a slower pace. 
  • Life is meant to be lived. And it doesn’t matter how much time. Sure, I’ve never be told that there is nothing left but what I’ve learned from others who have is that you have to live while you have life within you. 
  • Surviving cancer doesn’t mean you have to live in a bubble. It also doesn’t mean you have to become a daredevil. 
  • Surviving means living. 

Tamika has dedicated her life to cancer advocacy from eliminating the stigma of the human papillomavirus (HPV) (and being deemed a “Cancer Rebel” by Newsweek), to training patient advocates to share their stories, and to eliminating the healthcare disparities within communities of color.

“My greatest lesson is that life comes with an expiration date — from cancer or otherwise. It matters what we do with our time here. Life continues to surprise me. I was diagnosed with cancer when I was 25. I’ll be 47 this year and life is still surprising me in the best way possible. I don’t know how many years I have left, but what I can tell you is that I am going to live in a way that says I survived cancer.”

– Tamika Felder, Founder and Chief Visionary, Cervivor


This is only a small fraction of what Tamika has accomplished since she began her journey with cervical cancer and we couldn’t be more grateful for her resilience and leadership to create the community we now know as Cervivor. Thank you, Tamika!

Join us in celebrating Tamika’s 21 years of Cervivorship by:
1. Start living life for YOU. Don’t wait until something traumatic happens to start living life.
2. Vote for Becky’s video. People die of cancer. I’m blessed to still be here. 
3. Donate $21 to Cervivor.
4. Schedule your cervical cancer screening.
5. Vaccinate your children and protect them from HPV-related cancers.

A History of Impact, Yesterday and Today

As Black History Month (February) comes to a close, and Women’s History Month (March) begins, we thought we’d take a walk through history and share some key Black, female leaders in the field of medicine and cancer research. 

First Black, female physician in the U.S. 

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Rebecca Lee Crumpler, MD (1831 — 1895) worked as a nurse for eight years in Charlestown, Massachusetts.  Because this was in the 1850s, she was able to work without any formal training (keep in mind the first nursing school opened in 1873).  She was admitted to the New England Female Medical College in 1860.  She graduated a few short years later in 1864 becoming the first African American to graduate from the New England Female Medical College as well as the first Black woman to earn a medical degree.  When the Civil War ended in 1865, she moved to Richmond, VA and joined other black physicians to care for freed slaves who would otherwise have had no access to medical care. She worked with the Freedmen’s Bureau, as well as missionary and community groups, even though black physicians experienced intense racism working in the postwar South.

First Black licensed nurse

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Mary Eliza Mahoney (1845-1926) knew at a young age that she wanted to be a nurse.  She had early jobs at the New England Hospital for Women and Children, working as a janitor, cook, and washer women, then got the opportunity to work as a nurse’s aide. She applied and was admitted to the facility’s nursing school (one of the first in America) in 1878.  It is said that 42 applicants were admitted to the program and only four completed the 16-month program.  Mary was one of the four and would become known as the first Black licensed nurse.  She followed a career in private nursing due to the discrimination she faced as a public health nurse. She retired from nursing after dedicated 40 years, however, she didn’t stop advocating for equality. Mary was a Women’s Rights activist.  After the 19th Amendment was ratified, she became one of the first women to register to vote in Boston! 

Founder of the first hospital for African Americans in Atlanta

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Dr. Georgia Rooks Dwelle (1884 – 1977) attended Spelman College and in 1900 she became the school’s first graduate to go on to medical school. After completing her degree, she returned to her home state of Georgia and received the highest score on the Georgia State Medical Board examination that year. She became one of only three African American women physicians in Georgia at that time. When she settled in Atlanta, she witnessed first-hand the dire poverty and terrible conditions in which many of the city’s poorest Black residents lived and the lack of medical care they received. She was determined to set up a practice where conditions would be sanitary and proper services would be offered. Her initiative started with just a few rented rooms and grew into Atlanta’s first general hospital for African Americans, the Dwelle Infirmary.  She continued expanding services for the hospital and by 1935 had a well-baby clinic, a clinic for venereal disease, and a ‘Mother’s Club’ for African American women.  

First woman president of the New York Cancer Society

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Dr. Jane Cooke Wright (1919 – 2013) was the daughter of the first Black graduate of Harvard Medical School, Louis Tompkins Wright.  She graduated from New York Medical College in 1945 and was hired as a physician with the New York City Public Schools. She decided to work with her father, who was serving as the director of the Cancer Research Foundation at Harlem Hospital.  Chemotherapy was experimental at that time, and as a team they began testing anti-cancer chemicals and helping patients achieve some remission.  Following her father’s death in 1952, Dr. Jane Wright was appointed head of the Cancer Research Foundation, at the age of 33. She went on to become the director of cancer chemotherapy research at New York University Medical Center and was appointed to the President’s Commission on Heart Disease, Cancer, and Stroke by President Lyndon B. Johnson. In 1971, Dr. Wright became the first woman president of the New York Cancer Society. At a time when African American women physicians numbered only a few hundred in the entire United States, Dr. Wright was the highest ranked African American woman at a nationally recognized medical institution.

Making Impact Today

These trailblazers of the past helped pave the way for the trailblazers of today, such as:

At the forefront of COVID-19 vaccine development

Dr. Kizzmekia “Kizzy” Corbett is at the forefront of COVID-19 vaccine development. A viral immunologist at the Vaccine Research Center at the National Institute of Allergy and Infectious Diseases, National Institutes of Health, she is one of the leading scientists behind the government’s search for a vaccine. Corbett is part of a team at NIH that worked with Moderna, the pharmaceutical company that developed one of the two mRNA vaccines that has shown to be more than 90% effective. Today, together with her research Corbett is taking on another challenge: tempering vaccine hesitancy by talking about COVID-19 science in communities of colour.

Developing cancer therapies with lasers and nanoparticles

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Dr. Hadiyah-Nicole Green, age 42, is one of the first African American women in the nation to earn a Ph.D. in physics, holds the distinction of being only the second African American woman and the fourth African American to receive a Ph.D. in physics from the University of Alabama at Birmingham (UAB). Today, Dr. Green specializes in developing targeted cancer therapies using lasers and nanoparticles. Her expertise lies at the intersection of nanotechnology, immunotherapy, and precision medicine with a focus on developing a new cancer therapy platform that uses laser-activated nanoparticles to completely eliminate tumors after a single treatment. Beyond her academic work, she founded the Ora Lee Smith Cancer Research Foundation – named in memory of her late aunt who raised her. Dr. Green has intertwined her life’s work and professional focus into the mission of the organization: to change the way cancer is treated and reduce the suffering of cancer patients by providing a treatment that is accessible, affordable, and most importantly, effective. 

Applying computational modeling to cancer therapies

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Stacey D. Finley is a professor of biomedical engineering at the University of Southern California, where she leads the Computational Systems Biology Laboratory. She applies computational modeling to study  biologic processes that underlie cancer, such as angiogenesis, metabolism, and immunotherapy. The biochemical networks that regulate these processes involve numerous cell types, molecular species, and signaling pathways, and the dynamics occur on multiple timescales. Therefore, her systems biology approach, including experiment-based computational modeling, is required to understand these complex processes and their interconnectedness in cancer, her research website explains. Models can simulate biological processes, test interventions and  identify which tumors will respond favorably to a particular therapy, aiding in the development and optimization of effective therapeutics.

These are only just a few of the incredible Black, female medical pioneers we decided to highlight.  Let’s take a moment to celebrate these individuals and their impact.  Their legacies will carry on serving all of us for many years to come.  

The Nurse Becomes the Patient

Karen is a breast cancer survivor, a cervical cancer Cervivor and a registered nurse (RN). She shares her unique perspective of being on “both sides” of the healthcare system – as a provider and a patient:

I was working as a nurse when I got “the call” – my gynecologist telling me over the phone that my Pap was abnormal and that I needed to have a biopsy. I didn’t get terribly scared at that time. I knew what a biopsy was. I knew what HPV was. I knew what an abnormal Pap was. “It’s just a biopsy looking for more information,” I’d reassured myself. When the results came back cancer, I wanted to vomit. 

The Google “black hole” that even nurses can fall into

Explaining everything to my family was emotionally hard for me. Before I could do that, I personally needed to have a plan, I needed to feel I was in control. I researched nursing school materials, cancer organizations, cancer statistics and treatment plans. I learned early that the last thing anyone with any type of cancer should do is “Google it.”

As a nurse, I had access to quality medical sources. I had credible people I could call. But the lure of Google is strong. As a healthcare provider, I’ve had patients get on blogs and forums and come to me scared by something someone had said – often something that had little to do with their own individual case. Google is a black hole for so many. Even for me at times, even with my nursing training. I’m thankful I had a network of friends who were also nurses to reach out to for information. 

The caregiver becomes the patient

As I began treatment, I was able to immediately bond with my oncology provider nurses and the surgery nurses. Many times, however, the care staff had to remind me that I was the patient and to stop trying to do things that I shouldn’t be doing! I’ve heard that doctors are the worst patients. I admit that nurses have got to be too. 

I think because I was a nurse, I tried to be particularly “helpful” when I was in the hospital receiving care. Having worked with residents and medical students before, I was very open to them watching and asking questions. I often told residents and medical staff in training that they can ask me anything, they just need to know that I don’t have a filter when I answer. I tell them the down and dirty truth!

As a nurse, not being in the position of caregiver can be a challenge. Many times nurses will put their own personal needs behind everyone else. So having my family and friends take care of me warmed my heart. Going through radiation and chemo treatment was difficult. I had nausea after chemotherapy (I can’t even look at a Goldfish cracker anymore). I had muscle spasms and diarrhea (I called it “liquid death”). My family and friends taking care of me showed me their love. There is a saying “what you give, you can get back tenfold.” I definitely felt swaddled in love. They even organized a fundraiser to help me with my expenses.

The endurance challenge of returning to nursing after cancer treatments

The first part of July 2016, I returned to my nursing job. I think this is one of the hardest jobs to return to after cancer because of the time on your feet and the endurance needed. What normally only took me 15 minutes would take me an hour to complete. My legs felt like I had concrete in my shoes. I needed to be able to go to the bathroom at a moment’s notice because of diarrhea and bladder issues. My body hurt everywhere. I had panic attacks that were debilitating. I felt guilty because I knew I wasn’t holding up to my standards of care. There were many times that I worried that I would make mistakes. There were also several times that my charting was done late because I couldn’t get to it with everything else going on. The best analogy that I can think of is “this is like running a marathon on crutches.”

Ultimately, I had to leave my job. I fell into a dark pit of depression and anxiety. 

The past few years since my cervical cancer treatments have been rough. I’ve had to have repeated biopsies because of abnormal Pap results. I’ve seen a gastroenterologist, a urologist, and an orthopedic doctor along with my psychiatrist and counselor. I’ve been diagnosed with radiation colitis that causes me severe abdominal pain and diarrhea. I’ve had to have my hip replaced because of a tear in the cartilage that wasn’t repairable due to the radiation. My depression and panic attacks are still debilitating. I also have been diagnosed with lymphedema of my right leg. I have to elevate my legs four times a day for 40 minutes – above my head, mind you! I also have to wear compression hose and hook up to a machine that pushes the fluid out of my leg every night.

These days I’m working at keeping my head together. It’s one day at a time, and sometimes, one minute at a time. With the help of my family, friends, medical teams, and my Cervivor community, I’m surviving.

Educating doctors and nurses about cervical cancer prevention

With the help of Cervivor and my training at Cervivor School, my goals now are to educate and advocate to general practitioners that they need to discuss HPV immunizations with every patient, no matter their age or sex.

My goal is to promote education to medical providers so that they will in turn educate their patients and friends on HPV prevention and the importance of the annual women’s health exam. I reach out to medical schools to connect with medical students and residents. I want to share my story with them, have them hear what I went through as both a nurse and a patient, and encourage them to be more proactive when it comes to cancer screening and prevention. I think being a nurse and speaking to them as a nurse and not just a patient can be particularly powerful.

Also, because of my nursing training I can be an effective communicator about HPV immunization and screening and will convey information in a way that people will understand. Like, when you talk about there being more than 400 different strains of HPV, only some of which can cause a cancer. I can relate it to different strains of the flu or the cold, so that people can grasp a little bit better idea of it. 

I am proud to say that I am a Cervivor Ambassador. My Cervivor school training has offered me the tools and understanding of how to listen to others’ questions and concerns and how to encourage them to talk to their providers about Pap testing, HPV testing and HPV vaccination. 

After all, If you don’t ask, your provider can’t answer.  

Karen North lives in Liberty, Missouri. She is a retired registered nurse. Her world is her family, fur-babies, and friends. As of the writing of this blog post in 2020, she is a six-year breast cancer survivor and a, come June,  four-year cervical cancer survivor. 

Read Karen’s Cervivor story.

Read Karen’s blog post on being both a breast cancer survivor and cervical cancer Cervivor. 

Take Advantage of the Season of Giving to Build Up Cervivor

Use the “Season of Giving” to do some fundraising for Cervivor so we can keep up our good work. Did you know that about 25% of all annual giving in the U.S. occurs during the last three months of the year? We’ve all no doubt received the end-of-year appeals letters from local and national nonprofits. Our fundraising work may be smaller but is much more personal because of the stories are ours. The community is ours. Want to help fundraise but not sure how? Here are a few starting suggestions. Please reach out to us at [email protected] and we can help you brainstorm and plan.

  • Donate yourself, then ask for a match. Donate to Cervivor and ask your employer to match. Post info about your donation on Facebook/Instagram, say why you gave and encourage your friends to match, with a link to our donation page.
  • Start a Facebook fundraiser: Facebook’s fundraiser makes it easy to select a beneficiary (Cervivor!) and kick off a social media fundraising campaign. Share why Cervivor is important to you. Make a “Christmas with a Difference” or “All I Want for Christmas (or whatever holiday you celebrate) is for Cervical Cancer to be Eliminated” fundraiser. Let us know what creative ideas you have! Share a link and we’ll promote your fundraiser in our blog or newsletter.
  • Take advantage of Giving Tuesday by donating or asking others to donate: On the heels of “Black Friday” and “Cyber Monday,” Giving Tuesday (Dec. 3 – the Tuesday after Thanksgiving) is a global day of giving is fueled by the power of social media. It’s a great opportunity to donate to Cervivor and to help raise money for Cervivor. Last year we raised more than $10,000 for Cervivor on this one day. Help us keep up the momentum. Each donation helps us grow our outreach, activities and advocacy. 
  • If you’re shopping on Amazon for the holidays, sign up for Amazon Smile and select Cervivor as your charity of choice. We get a contribution from Amazon each time you shop, all year long, so you can feel even better about buying presents for your family…or yourself!
  • Host a Friendsgiving: Are you more an IRL (in real life) person than a social media person? Convene your friends for a “Cervivor Friendsgiving” meal. Share what you are grateful for. Share your Cervivor story and educate about prevention. Ask friends to donate to Cervivor, or to come to the dinner with $10, $20, $50 or whatever makes sense. Cervivor is about the power of community of women there to support each other – not so different from your own community of friends. Tie the two together. 

Thanksgiving kicks off the holiday season ahead. Big meals. Cooking. Shopping. Turkey Day. Christmas. Hanukkah. Kwanzaa. New Year’s Eve. All of this then leads to our favorite month of the year: Cervical Cancer Awareness Month in January – which rolls around when we are all barely coming up for air from the holidays. So now is the time to get started. We hope these holiday action steps for our community are helpful. We are so appreciative of your support.

Hair Today, Gone Tomorrow: Cancer & Self Image

I have learned so much from cancer. They say, “Through darkness comes light.” I really believe that’s true.

In remission for the third time, having to lose my hair due to chemotherapy was hard on me as a woman. I know most will say, “It’s just hair.” Even I say it too, just to convince myself to stay strong. But, in fact, it sucks. It truly opened my eyes to everything I once wasn’t happy with.

Having cervical cancer reminded me of how I was so hard on myself and picked myself apart. I know I’m not the only woman who’s ever felt that way. I look back and think, “Wow Jill, you were so beautiful. Why didn’t you see it? Why did you pick yourself apart and not embrace your hips that measured 44 inches, or embrace your Roman nose?” After all, it’s my personal features that give me my character. Don’t get me wrong, I had confidence, but I still found things that I thought weren’t “perfect.” Nothing is perfect!

Every now and then I like to look back on pictures of myself before cancer. Why did I complain? I was fine the way I was. Now I’m fighting something more meaningful. I’m fighting for my life. I’ve learned to embrace life’s changes, how my body has changed and how I’m Mrs. T (bald) once again. Or how going #2 is completely different from before. Because I have a colostomy bag, this is now totally different.

So my advice to other women, especially women with cancer is to love WHO YOU ARE. Be happy with how you were created; focus on what you HAVE and NOT what you DON’T. Believe me, there’s something greater out there for you, if you believe. I’m a people watcher, sounds creepy I know. I often wonder to myself whether or not the person I’m admiring knows how eccentric he or she is. Being in the city regularly due to my medical appointments, I get to see all colors of the rainbow. The culture differences, the true beauty behind just how different we may look. But internally we’re all the same.

No matter what type of cancer you have ladies, just remember, you’re beautiful inside and out. Your inner beauty will always be there. We might need time adjusting to our shiny new heads or new gadgets attached to our bodies. But, with all the hardships that come along with our new appearances and emotions due to cancer, just remember how bad ass we truly are.

I hope to inspire other women dealing with Cervical Cancer to share their stories and true emotions without fear. Tell it how it Is; don’t hold back. Our cancer is tough, but somehow being painted as “easy.” If I can reach you with my story, just imagine who you’ll inspire by sharing yours. Let’s come together, share our stories, and help one another through our battles. We can help prevent future cases of Cervical Cancer, the one cancer that can often be prevented with a vaccine.

From now on, I’m going to love every inch of me because I’m beautiful inside and out. I will also remind my friend’s how beautiful they are as well. You have one life. Live it, love it, embrace the changes, take care of yourself, and be kind to yourself and others.

Now that I’ve gained my confidence back, I’m going to rock my bald head, wear my wigs and not care who’s looking. Because they could really be thinking, “Wow, she’s so fierce.” Those stares may not have anything to do with my cancer.

So gentlemen, don’t be afraid of our appearances, we’re strong women who know how valuable life is, how anything can change but we still ride the waves. How special love truly is. If you see a friend or a loved one going through the changes of cancer, please remind them how beautiful they are.

Jillian Scalfani is a young 34-year-old mother with an incurable form of cervical cancer. She and her children have a great support system when it comes to her friend’s and family. Read more about Jillian here.

Native American Heritage Month: Beverly Bushyhead

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November is Native American Heritage Month. Cervical cancer affects American Indian women 2 to 5 times more often than women from other racial groups.

What follows is a personal story of cervical cancer survival from Beverly Bushyhead, MA, MPA, of the Eastern Band of Cherokee Indians.

How I Learned to Live for Myself

By Beverly Bushyhead, MA, MPA

When I learned at age 40 that I had stage III B cervical cancer, it sounded like a death sentence. I remember thinking, My children are too young to be left alone! Because the 10 cm tumor on my cervix was inoperable, I would receive lots of chemotherapy and radiation. The only survivor with similar staging and treatment to mine wouldn’t talk about it—the experience had been too horrible.

The survivor was right. It was horrible. At first, weekly chemotherapy and daily radiation were easily managed. But weakness and radiation burns caught up to me—showers became unbearably painful. Even baths hurt terribly, and black burned skin would float to the surface. I would sit in the water and cry. I apologized to my body. I thanked it for all it had done: carrying my children through pregnancy, feeding them and always serving me well. One day, I realized that my body was me—it wasn’t something separate going through this. All of me was experiencing this.

Immediately, I went into a series of traditional ceremonies with my community. During sweats, I pictured the tumor melting. My children sang healing songs. But I didn’t pray for instant healing—I prayed for strength and clarity. At the sun dance, where prayers were said for me, I received items like eagle plumes and prayer ties. The water ceremony was also very powerful—and the hospital showed respect for it. I can never forget the amazing change the ceremony brought to the lymph node surgery I had less than an hour later. My traditions are everything to me, and they were what I held onto during this time.

Some people avoided me. One relative had three checkups because she feared she could catch cancer from me! There was judgment and whispering. Folks didn’t know what to do. Others helped, though, donating food and time. Still, I drove myself to every radiation treatment and most chemotherapy treatments. It was exhausting and lonely.

Some people in the community felt I should refuse chemotherapy and radiation treatments and use only traditional, spiritual practices. Others thought I should ask for a miracle. Some said traditions wouldn’t work if I chose medical treatments. I was terrified to die. I had to do what I thought was best.

My final treatments involved the surgical implantation of radioactive material and the insertion of seven needles filled with iridium into my sensitive, burned skin. Radiation to the max. Lead panels were placed around my hospital bed, and radiation was measured every 30 minutes. I awoke with a button in my hand to deliver morphine, a governor preventing overdosing. It was comforting to push that button—the pain was excruciating. I was devastated to learn that the first of the two operations had perforated my uterus and would have to be repeated the next morning.

It hurt to stretch. It hurt to move. It hurt to breathe deeply. So I tried to lie very still. The sun shone through the window. I could feel the warmth on my arm. I was grateful for the distraction from the pain. I was completely enveloped in the growing warmth of the sunlight. I let my mind linger on how it felt. I closed my eyes. In that moment I was completely happy. It was a startling revelation: If I could be happy in the middle of a horrific experience, then happiness was a choice I could focus on.

Initially, I had been going through cancer treatment for my children—my son, age 13, and twin daughters, who were 9. One of my daughters said in the beginning that she’d kill herself if I died, so I’d started a support group for kids with a parent experiencing cancer to provide coping skills and information. But after many personal, humbling and painful parts of going through treatment, there came a time when I was doing it for me. I wanted to live! And no matter how it turned out, I was here now.

Beverly BushyheadMy sweet children ate meals by my bedside. Even after I returned to bed and was sleeping, it was the most wonderful joy to hear them talking and laughing near me. I always wanted to be with them if I could. As I recovered, I finished my bachelor’s degree because I couldn’t die without finishing it! Then, over the next 5 years, I went on to earn two master’s degrees. Now, whatever’s on my list, will not be ignored.

My children, now 24 and 20, are grown up. I am grateful to see them as amazing and wonderful adults. It is an honor and privilege to be their mother.

I continue to deal with effects of all that radiation. Perhaps it’s the price for survival. But I’ve learned to love myself. And I learned how strong I am.

American Indians say a people are not defeated until the women’s hearts are on the ground. Well, I am determined to sing my song until my last breath.

Media – TJMS Inside Her Story with Jacque Reid

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Jacque Reid Tamika Felder CervivorToday is the last day of Gynecologic Cancer Awareness month and it was so great to end it by sharing my story this morning on the Tom Joyner Morning Show. Jacque Reid of TJMS and Single and Living Fab has a phenomenal segment called, “Inside Her Story” and boy, did we go INSIDE MY STORY…my coochie story to be exact. I’ve been through so many things on my journey with cancer, but the one thing that I’ve learned is it is imperative to share so that we can prevent cervical cancer. If you missed the segment, check it out here.

We got in a lot of information in a short period of time and I just wanted to share some additional information, because so many of your have reached out to me via social media.

Here are the top things you should know:

  • First and foremost, if you haven’t had a well woman exam it’s time to schedule one.
  • If you are ages 9 to 26 get the HPV Vaccine.
  • If you are 21 and sexually active, get a Pap Test.
  • For those of you who are 30 and over add an HPV Test.

I want women of color to know that we develop cervical cancer more often than white women and we are more likely to die. We have to change this health disparity by getting screened. No one likes to get a pelvic exam, but we have to do it.

Uninsured? We’ve got you covered. Check out this link.

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Don’t hesitate, call today!